How can we get Iraq- and Afghanistan-deployed US Veterans to participate in health-related research? Findings from a national focus group study.

How can we get Iraq- and Afghanistan-deployed US Veterans to participate in health-related research? Findings from a national focus group study.
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DOI:
10.1186/s12874-018-0546-2
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发表时间:
2018-08-29
影响因子:
4
通讯作者:
Smith NL
Smith NL
中科院分区:
医学3区
文献类型:
--
作者:
Littman AJ;True G;Ashmore E;Wellens T;Smith NL

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研究参与者的招募往往充满了障碍。不良的回答率会降低统计功效,威胁内部和外部有效性,并增加研究成本和持续时间。军事人员被社会化为一套特定的法律、规范、传统和价值观;他们参与研究的意愿可能与平民不同。本研究的目的是更好地了解在持久自由行动(OEF)/伊拉克自由行动(OIF)中服役的美国(US)退伍军人对参与研究的研究和动机的看法,以便为OEF/OIF退伍军人呼吸健康的计划观察性研究招募提供信息。2015年,我们在美国五个城市的OEF/OIF退伍军人(n = 89)的目的性样本中进行了10个焦点小组。主要议题包括:参与或拒绝参与健康相关研究的原因、研究招募和开展的后勤工作、报酬、书面材料以及研究结果的信息共享偏好。两位作者使用模板分析独立编码数据。参与者确定了促使他们决定参与健康相关研究的三个标准:1)足够的补偿,2)帮助其他退伍军人的愿望,以及3)研究主题的重要性和相关性。对许多人来说,足够的补偿和这项研究将帮助其他退伍军人的感觉都是至关重要的。透明度的重要性成为一个关键主题;退伍军人传达了关于研究目的或程序的模糊语言会产生不信任。最后,参与者表示希望研究将其特定健康测试的结果以及整体研究结果反馈给研究参与者。OEF/OIF退伍军人将信任、透明沟通和尊重描述为他们愿意参与的研究的基本特征。还需要进一步的研究来确定我们的结果是否适用于其他美国退伍军人;然而,我们的结果强调了在其他人群中被报道为重要的招聘规则。研究人员可以受益于使用社区参与的研究方法,在开始研究之前寻求对招聘材料和策略的反馈。对于针对大样本(即数千人)的昂贵研究,测试各种招募策略可能很重要。本文的在线版本(10.1186/s12874-018-0546-2)包含补充材料,可供授权用户使用。
Research participant recruitment is often fraught with obstacles. Poor response rates can reduce statistical power, threaten both internal and external validity, and increase study costs and duration. Military personnel are socialized to a specific set of laws, norms, traditions, and values; their willingness to participate in research may differ from civilians. The aims of this study were to better understand the views of United States (US) Veterans who served in Operation Enduring Freedom (OEF)/ Operation Iraqi Freedom (OIF) on research and motivators for participating in research to inform recruitment for a planned observational study of respiratory health in OEF/OIF Veterans. We conducted 10 focus groups in a purposive sample of OEF/OIF Veterans (n = 89) in five US cities in 2015. Key topics included: reasons for participating or declining to participate in health-related research, logistics around study recruitment and conduct, compensation, written materials, and information sharing preferences for study results. Two authors independently coded the data using template analysis. Participants identified three criteria that motivated a decision to participate in health-related research: 1) adequate compensation, 2) desire to help other Veterans, and 3) significance and relevance of the research topic. For many, both sufficient compensation and a sense that the study would help other Veterans were critical. The importance of transparency arose as a key theme; Veterans communicated that vague language about study aims or procedures engendered distrust. Lastly, participants expressed a desire for studies to communicate results of their specific health tests, as well as overall study findings, back to research participants. OEF/OIF Veterans described trust, transparent communication, and respect as essential characteristics of research in which they would be willing to participate. Additional studies are needed to determine whether our results generalize to other US Veterans; nevertheless, our results highlight precepts that have been reported as important for recruitment in other populations. Researchers may benefit from using community-engaged research methods to seek feedback on recruitment materials and strategies prior to initiating research. For costly studies targeting a large sample (i.e. in the thousands), it may be important to test a variety of recruitment strategies. The online version of this article (10.1186/s12874-018-0546-2) contains supplementary material, which is available to authorized users.
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