Health Information Preferences and Curability Beliefs Among Patients With Advanced Cancer.
Health Information Preferences and Curability Beliefs Among Patients With Advanced Cancer.
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DOI：
10.1016/j.jpainsymman.2020.07.023
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发表时间：
2021-01
影响因子：
4.7
通讯作者：
Breitbart W
中科院分区：
文献类型：
--
作者：
Saracino RM;Polacek LC;Applebaum AJ;Rosenfeld B;Pessin H;Breitbart W
准确的预后理解与肿瘤学中增加的提前护理计划、症状控制和患者自主性相关。预后理解对患者健康和预后信息偏好（HIP）的影响是未知的，对医疗保健沟通有重要意义。本研究报告：1）描述晚期癌症患者的HIP特征; 2）检查具有不同可治愈性信念的患者之间的HIP差异; 3）确定具有不同可治愈性信念的患者的特征和心理健康的差异。这项横断面研究利用了一项大型随机对照心理治疗试验中患者基线数据（随机分组前）的次要数据分析。206名参与者从单一设施的门诊招募。入选标准：年龄≥18岁，会说英语，IV期实体瘤癌症，Distress Thermometer评分≥4。大多数参与者更喜欢尽可能多地了解他们的癌症，治疗（69.4%，n=143）和疾病的可能结果（72.3%，n=149）。大多数参与者准确地将他们的癌症描述为不太可能治愈或无法治愈（62.6%，n=129）。根据预后理解水平，高血压患者之间没有显着差异。正确的预后理解与宗教信仰、更好的生活质量和生存幸福感相关。在本研究中，预后理解（即，但这并不意味着他们的信念与HIPs无关。因此，肿瘤临床医生必须评估患者对接收信息的兴趣和偏好。未来的研究应进一步澄清偏好的框架和内容的预后信息提供者和改善预后的理解，以促进以病人为中心的临终关怀的测量。
Accurate prognostic understanding is associated with increased advance care planning, symptom control, and patient autonomy in oncology. The impact of prognostic understanding on patients’ health and prognostic information preferences (HIPs) is unknown and has important implications for healthcare communication. The present study: 1) characterized the HIPs of patients with advanced cancer; 2) examined differences in HIPs between patients with varying curability beliefs and; 3) identified differences in the characteristics and psychological well-being of patients with varying curability beliefs. This cross-sectional study utilized a secondary data analysis of baseline data (prerandomization) for patients enrolled in a large randomized, controlled psychotherapy trial. 206 participants were recruited from outpatient clinics at a single facility. Inclusion criteria: ≥18 years old, English-speaking, stage-IV solid tumor cancer, Distress Thermometer score ≥4. Most participants preferred as many details as possible about their cancer, treatment (69.4%, n=143), and likely outcome of their disease (72.3%, n=149). Most participants accurately described their cancer as unlikely curable or incurable (62.6%, n=129). There were no significant differences in HIPs based on level of prognostic understanding. Poorer prognostic understanding was associated with religiosity and better quality of life and existential well-being. In the present study, prognostic understanding (i.e., curability beliefs) was not associated with HIPs. Therefore, oncology clinicians must evaluate patients’ interest and preferences for receiving information. Future research should further clarify preferences for the framing and content of prognostic information from providers and improve the measurement of prognostic understanding to facilitate patient-centered end of life care.
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影响因子：
3.2
作者：
Applebaum AJ;Kolva EA;Kulikowski JR;Jacobs JD;DeRosa A;Lichtenthal WG;Olden ME;Rosenfeld B;Breitbart W
通讯作者：
Breitbart W
影响因子：
6.2
作者：
Breitbart W;Pessin H;Rosenfeld B;Applebaum AJ;Lichtenthal WG;Li Y;Saracino RM;Marziliano AM;Masterson M;Tobias K;Fenn N
通讯作者：
Fenn N
影响因子：
5.9
作者：
Bradley, EH;Hallemeier, AG;Horwitz, SM
通讯作者：
Horwitz, SM
影响因子：
4.4
作者：
Cohen, S. Robin;Sawatzky, Richard;Gadermann, Anne M.
通讯作者：
Gadermann, Anne M.
影响因子：
120.7
作者：
Lamont, EB;Christakis, NA
通讯作者：
Christakis, NA