Redefining Palliative Care-A New Consensus-Based Definition.

Redefining Palliative Care-A New Consensus-Based Definition.
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DOI:
10.1016/j.jpainsymman.2020.04.027
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发表时间:
2020-10
影响因子:
4.7
通讯作者:
Pastrana T
Pastrana T
中科院分区:
医学2区
文献类型:
--
作者:
Radbruch L;De Lima L;Knaul F;Wenk R;Ali Z;Bhatnaghar S;Blanchard C;Bruera E;Buitrago R;Burla C;Callaway M;Munyoro EC;Centeno C;Cleary J;Connor S;Davaasuren O;Downing J;Foley K;Goh C;Gomez-Garcia W;Harding R;Khan QT;Larkin P;Leng M;Luyirika E;Marston J;Moine S;Osman H;Pettus K;Puchalski C;Rajagopal MR;Spence D;Spruijt O;Venkateswaran C;Wee B;Woodruff R;Yong J;Pastrana T

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国际临终关怀和姑息治疗协会(International Association for Hospice and Palliative Care)制定了一个基于共识的姑息治疗(PC)定义,重点是缓解与健康相关的严重痛苦,这是柳叶刀委员会全球姑息治疗和疼痛缓解的概念。本文的主要目的是介绍新定义背后的研究。三阶段共识过程涉及来自所有收入水平国家的卫生保健工作者。在第1阶段,38名PC专家评估了世界卫生组织定义的组成部分,并提出了新的/修订的定义。在第二阶段,88个国家的412名国际临终关怀和姑息治疗协会成员表达了他们对建议组成部分的同意程度。在第三阶段,使用第二阶段的结果,专家小组制定了定义。基于共识的定义如下:姑息治疗是对所有年龄段的个人进行积极的整体护理,这些人因严重疾病而遭受严重的健康相关痛苦,特别是那些接近生命尽头的人。它旨在提高患者、其家人和护理人员的生活质量。该定义包括一些要点和其他细节,以及对政府减少个人电脑壁垒的建议。参与者对PC的看法和解释有显着不同。核心小组面临的最大挑战是试图在那些认为PC是所有痛苦的救济的人和那些认为PC描述了对剩余寿命非常有限的人的照顾的人之间找到一个中间立场。
The International Association for Hospice and Palliative Care developed a consensus-based definition of palliative care (PC) that focuses on the relief of serious health-related suffering, a concept put forward by the Lancet Commission Global Access to Palliative Care and Pain Relief. The main objective of this article is to present the research behind the new definition. The three-phased consensus process involved health care workers from countries in all income levels. In Phase 1, 38 PC experts evaluated the components of the World Health Organization definition and suggested new/revised ones. In Phase 2, 412 International Association for Hospice and Palliative Care members in 88 countries expressed their level of agreement with the suggested components. In Phase 3, using results from Phase 2, the expert panel developed the definition. The consensus-based definition is as follows: Palliative care is the active holistic care of individuals across all ages with serious health-related suffering due to severe illness and especially of those near the end of life. It aims to improve the quality of life of patients, their families and their caregivers. The definition includes a number of bullet points with additional details as well as recommendations for governments to reduce barriers to PC. Participants had significantly different perceptions and interpretations of PC. The greatest challenge faced by the core group was trying to find a middle ground between those who think that PC is the relief of all suffering and those who believe that PC describes the care of those with a very limited remaining life span.
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