Characterizing Quality of Life in Caregivers of People with Parkinson’s Disease and Dysphagia
Characterizing Quality of Life in Caregivers of People with Parkinson’s Disease and Dysphagia
复制标题
帕金森病和吞咽困难患者的护理人员的生活质量特征
DOI：
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发表时间：
2021
期刊：
影响因子：
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通讯作者：
M. Troche
中科院分区：
文献类型：
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作者：
Sarah E. Perry;J. Borders;Avery E. Dakin;M. Troche
照顾患有吞咽困难的家庭成员会对照顾者的健康产生负面影响，尽管人们对吞咽困难的严重程度或具体症状如何影响这一点知之甚少。本研究的目的是探讨帕金森氏症患者吞咽困难的客观指标如何影响其照顾者的生活质量。50名帕金森病患者的照顾者（主要是配偶）完成了一项照顾者生活质量调查。结果进行了比较，医疗图表审查，访谈，并从照顾对象吞咽的仪器评估。结果包括照顾者的生活质量评分，气道侵入和咽残留的评级，帕金森病的持续时间。完成了描述性和回归分析。所有的照顾者都报告生活质量下降，28%的人有严重的适应障碍。每一位帕金森病患者都表现出气道侵犯和/或咽部残留。总之，老年护理接受者年龄和较长的疾病持续时间与护理者生活质量较差相关[adj. R2 = 0.10-0.12，p = 0.03-0.4]。无论是气道侵犯还是咽部残留都与照顾者的生活质量无关（p > 0.05）。研究结果证实，帕金森病和吞咽困难患者的护理人员的生活质量降低;然而，目前评估护理人员生活质量的方法可能无法充分考虑吞咽困难的具体负担。结果强调，迫切需要制定吞咽困难的具体评估照顾者的生活质量，以促进识别高风险的照顾者，并帮助支持系统的发展，以改善照顾者和照顾对象的健康结果。
Caring for a family member with dysphagia can negatively impact caregiver wellbeing, although little is known about how dysphagia severity or specific symptoms influence this. The purpose of this study was to examine how objective measures of dysphagia in people with Parkinson’s disease influenced their caregivers’ quality of life. Fifty caregivers (mainly spouses) of people with Parkinson’s disease completed a caregiver quality of life survey. Results were compared to medical chart reviews, interviews, and instrumental evaluations of swallowing from the care recipients. Outcomes included caregiver quality of life score, ratings of airway invasion and pharyngeal residue, and Parkinson’s disease duration. Descriptive and regression analyses were completed. All caregivers reported reduced quality of life, with 28% having severely disturbed adaptation. Every care recipient with Parkinson’s disease demonstrated airway invasion and/or pharyngeal residue. Together, the combination of older care recipient age and longer disease duration was associated with poorer caregiver quality of life [adj. R2 = 0.10–0.12, p = 0.03–0.4]. Neither airway invasion nor pharyngeal residue was related to caregiver quality of life (p > 0.05). Findings confirmed that caregivers of people with Parkinson’s disease and dysphagia experience reduced quality of life; however, current methods of assessing caregivers’ quality of life may not adequately account for dysphagia-specific burden. Results highlight the urgent need for the development of dysphagia-specific assessments of caregivers’ quality of life to facilitate identification of high-risk caregivers and aid the development of support systems to improve health outcomes for caregivers and care recipients.
影响因子：
9.6
作者：
Troche, Michelle S.;Brandimore, Alexandra E.;Hegland, Karen W.
通讯作者：
Hegland, Karen W.
影响因子：
5.7
作者：
PEARLIN, LI;MULLAN, JT;SKAFF, MM
通讯作者：
SKAFF, MM
吞咽障碍作为年迈父母照顾者负担的独立危险因素的影响：一项横断面研究。
DOI：
10.1016/j.gerinurse.2019.06.008
发表时间：
2020
期刊：
Geriatric nursing (New York, N.Y.)
影响因子：
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作者：
Namasivayam-MacDonald,AshwiniM;Shune,SamanthaE
通讯作者：
Shune,SamanthaE