Carers' quality of life and experiences of adult social care support in England.
Carers' quality of life and experiences of adult social care support in England.
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DOI：
10.1111/hsc.12089
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发表时间：
2014-07
影响因子：
2.4
通讯作者：
Malley J
中科院分区：
文献类型：
--
作者：
Rand S;Malley J
非正式护理人员对他们所照顾或照顾的人的福祉作出了重要贡献。在英国政策背景下，本研究的目的是探讨与成人社会照顾支持服务接触的照顾者的观点。2012年4月至7月期间，通过地方当局和护理机构招募了31名护理人员进行了一项定性研究，以收集有关护理人员在有和没有成人社会护理和支持他们自己或他们所照顾的人的情况下对生活质量（QoL）的体验和看法的数据。通过框架分析，确定了三个关键主题：(i)“为”照顾者或“为”照顾者提供的社会照顾服务的定义和社会照顾结果；（ii）照顾者获得社会照顾服务的机会；（三）非正式关怀的意义和价值。我们发现，护理人员的生活质量受到以下因素的影响：针对护理人员的社会护理支持和针对他们所照顾的人的社会护理支持，以及获得服务的机会、社区耻辱的经历，以及在做出护理决定时如何考虑个人需求和偏好。虽然英国的政策方向有很多值得欢迎的地方，但这项研究表明，如果要改善护理人员的生活，在这些领域的思考上存在一些差距，需要解决这些差距。
Informal carers make a vital contribution to the well-being of the people they care for or look after. Against the policy background in England, the purpose of this study was to explore the views of carers who are in contact with adult social care support services. A qualitative study with 31 carers, who were recruited via local authorities and carers' organisations, was conducted between April and July 2012 to collect data on carers' experiences and perceptions of their quality of life (QoL) with and without adult social care and support for themselves or the person they look after. Through framework analysis, three key themes were identified: (i) definitions of social care services ‘for’ the carer or ‘for’ care recipient and social care outcomes; (ii) carers' access to social care services; and (iii) the meaning and value of informal care. We find that carers' QoL is affected by social care support directed at carers and support directed at those they care for, as well as access to services, the experience of stigma in communities, and in how individual needs and preferences are considered when making decisions about care. While there is much to welcome in the direction of policy in England, this study has shown that there are some gaps in thinking around these areas that will need to be addressed if the lives of carers are to be improved.
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影响因子：
3.6
作者：
Netten, A.;Burge, P.;Wall, B.
通讯作者：
Wall, B.
影响因子：
2.4
作者：
Arksey, Hilary;Glendinning, Caroline
通讯作者：
Glendinning, Caroline
影响因子：
3.6
作者：
Malley JN;Towers AM;Netten AP;Brazier JE;Forder JE;Flynn T
通讯作者：
Flynn T
DOI：
10.1093/geronb/57.3.p195
发表时间：
2002-05-01
影响因子：
6.2
作者：
Lyons, KS;Zarit, SH;Whitlatch, CJ
通讯作者：
Whitlatch, CJ
影响因子：
2
作者：
Arksey, H
通讯作者：
Arksey, H