World Endometriosis Research Foundation Endometriosis Phenome and Biobanking Harmonisation Project: I. Surgical phenotype data collection in endometriosis research.
World Endometriosis Research Foundation Endometriosis Phenome and Biobanking Harmonisation Project: I. Surgical phenotype data collection in endometriosis research.
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DOI：
10.1016/j.fertnstert.2014.07.709
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发表时间：
2014-11
影响因子：
6.7
通讯作者：
Adamson, G. David
中科院分区：
文献类型：
--
作者：
Becker, Christian M.;Laufer, Marc R.;Stratton, Pamela;Hummelshoj, Lone;Missmer, Stacey A.;Zondervan, Krina T.;Adamson, G. David
标准化子宫内膜异位症手术表型信息的记录和腹腔镜下获得的相关样本采集，允许对该疾病进行大规模的合作研究。这是一项国际合作，涉及来自16个国家的34个临床/学术中心和3个行业合作者。2013年举办了两次研讨会，汇集了全球子宫内膜异位症研究和管理的54位临床，学术和行业领导者。没有。术后评分表包含一般和妇科患者和手术信息，疾病程度，病变的位置和类型，以及任何其他结果，在几轮审查期间开发。纳入了评论者中心使用的任何系统性手术数据收集工具。开发标准推荐（SSF）和最低要求（MSF）表格，以收集子宫内膜异位症手术表型的数据。SSF和MSF包括病变的详细描述、手术和样本采集模式、合并症和手术结束时的潜在残留疾病，沿着以前发表的工具，如修订后的美国生殖医学学会和子宫内膜异位症生育指数分类工具，以进行比较和验证。这是学术中心和行业之间的第一次多中心国际合作，旨在解决特定疾病表型数据收集的标准化问题。子宫内膜异位症表型组和生物库协调项目SSF和MSF是通过允许对该疾病进行大规模合作研究来增加我们对子宫内膜异位症发病机制的理解的重要工具。
To standardize the recording of surgical phenotypic information on endometriosis and related sample collections obtained at laparoscopy, allowing large-scale collaborative research into the condition. An international collaboration involving 34 clinical/academic centers and three industry collaborators from 16 countries. Two workshops were conducted in 2013, bringing together 54 clinical, academic, and industry leaders in endometriosis research and management worldwide. None. A postsurgical scoring sheet containing general and gynecological patient and procedural information, extent of disease, the location and type of endometriotic lesion, and any other findings was developed during several rounds of review. Comments and any systematic surgical data collection tools used in the reviewers' centers were incorporated. The development of a standard recommended (SSF) and minimum required (MSF) form to collect data on the surgical phenotype of endometriosis. SSF and MSF include detailed descriptions of lesions, modes of procedures and sample collection, comorbidities, and potential residual disease at the end of surgery, along with previously published instruments such as the revised American Society for Reproductive Medicine and Endometriosis Fertility Index classification tools for comparison and validation. This is the first multicenter, international collaboration between academic centers and industry addressing standardization of phenotypic data collection for a specific disease. The Endometriosis Phenome and Biobanking Harmonisation Project SSF and MSF are essential tools to increase our understanding of the pathogenesis of endometriosis by allowing large-scale collaborative research into the condition.
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影响因子：
6.1
作者：
Johnson, Neil P.;Hummelshoj, Lone
通讯作者：
Hummelshoj, Lone
影响因子：
6.7
作者：
Fassbender, Amelie;Vodolazkaia, Alexandra;D'Hooghe, Thomas
通讯作者：
D'Hooghe, Thomas
DOI：
10.1111/j.1471-0528.1980.tb04514.x
发表时间：
1980-01-01
期刊：
BRITISH JOURNAL OF OBSTETRICS AND GYNAECOLOGY
影响因子：
--
作者：
KONINCKX, PR;RENAER, M;BROSENS, IA
通讯作者：
BROSENS, IA
影响因子：
3
作者：
Bloom, KJ;Dowlat, K;Assad, L
通讯作者：
Assad, L
DOI：
10.1016/s0889-8545(05)70302-8
发表时间：
1997-06-01
影响因子：
3.2
作者：
Eskenazi, B;Warner, ML
通讯作者：
Warner, ML