A call for an integrated approach to improve efficiency, equity and sustainability in rare disease research in the United States.
A call for an integrated approach to improve efficiency, equity and sustainability in rare disease research in the United States.
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呼吁采取综合方法来提高美国罕见病研究的效率、公平性和可持续性。
DOI:
10.1038/s41588-022-01027-w
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发表时间:
2022-03
期刊:
影响因子:
30.8
通讯作者:
Tabor, Holly K.
中科院分区:
文献类型:
--
作者:
Halley, Meghan C.;Smith, Hadley Stevens;Ashley, Euan A.;Goldenberg, Aaron J.;Tabor, Holly K.
To build a more efficient, equitable, and sustainable approach to rare disease research in the United States, we must prioritize integrated research infrastructure and approaches that focus on understanding connections across rare diseases.
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DOI:
10.1080/15265161.2021.1996801
发表时间:
2021-12
期刊:
The American journal of bioethics : AJOB
影响因子:
--
作者:
Halley MC
通讯作者:
Halley MC
影响因子:
64.8
作者:
Green ED;Gunter C;Biesecker LG;Di Francesco V;Easter CL;Feingold EA;Felsenfeld AL;Kaufman DJ;Ostrander EA;Pavan WJ;Phillippy AM;Wise AL;Dayal JG;Kish BJ;Mandich A;Wellington CR;Wetterstrand KA;Bates SA;Leja D;Vasquez S;Gahl WA;Graham BJ;Kastner DL;Liu P;Rodriguez LL;Solomon BD;Bonham VL;Brody LC;Hutter CM;Manolio TA
通讯作者:
Manolio TA
影响因子:
3.7
作者:
Denton N;Molloy M;Charleston S;Lipset C;Hirsch J;Mulberg AE;Howard P;Marsh ED
通讯作者:
Marsh ED
影响因子:
24
作者:
Landry, Latrice G.;Rehm, Heidi L.
通讯作者:
Rehm, Heidi L.
DOI:
10.1164/rccm.201711-2357oc
发表时间:
2018-10-15
影响因子:
24.7
作者:
Rho, Jason;Ahn, Chul;Jain, Raksha
通讯作者:
Jain, Raksha