A call for an integrated approach to improve efficiency, equity and sustainability in rare disease research in the United States.

A call for an integrated approach to improve efficiency, equity and sustainability in rare disease research in the United States.
复制标题

呼吁采取综合方法来提高美国罕见病研究的效率、公平性和可持续性。

DOI:
10.1038/s41588-022-01027-w
复制
发表时间:
2022-03
期刊:
影响因子:
30.8
通讯作者:
Tabor, Holly K.
Tabor, Holly K.
中科院分区:
生物学1区
文献类型:
--
作者:
Halley, Meghan C.;Smith, Hadley Stevens;Ashley, Euan A.;Goldenberg, Aaron J.;Tabor, Holly K.

文献摘要

参考文献

被引文献

相似文献

为了在美国建立一个更有效、公平和可持续的罕见病研究方法,我们必须优先考虑综合研究基础设施和方法,重点是了解罕见病之间的联系。
To build a more efficient, equitable, and sustainable approach to rare disease research in the United States, we must prioritize integrated research infrastructure and approaches that focus on understanding connections across rare diseases.
DOI: 10.1080/15265161.2021.1996801
发表时间: 2021-12
期刊: The American journal of bioethics : AJOB
影响因子: --
作者:
Halley MC
通讯作者: Halley MC
DOI: 10.1038/s41586-020-2817-4
发表时间: 2020-10
期刊: Nature
影响因子: 64.8
作者:
Green ED;Gunter C;Biesecker LG;Di Francesco V;Easter CL;Feingold EA;Felsenfeld AL;Kaufman DJ;Ostrander EA;Pavan WJ;Phillippy AM;Wise AL;Dayal JG;Kish BJ;Mandich A;Wellington CR;Wetterstrand KA;Bates SA;Leja D;Vasquez S;Gahl WA;Graham BJ;Kastner DL;Liu P;Rodriguez LL;Solomon BD;Bonham VL;Brody LC;Hutter CM;Manolio TA
通讯作者: Manolio TA
DOI: 10.1186/s13023-021-01806-4
发表时间: 2021-04-07
影响因子: 3.7
作者:
Denton N;Molloy M;Charleston S;Lipset C;Hirsch J;Mulberg AE;Howard P;Marsh ED
通讯作者: Marsh ED
DOI: 10.1001/jamacardio.2017.5333
发表时间: 2018-04-01
期刊: JAMA CARDIOLOGY
影响因子: 24
作者:
Landry, Latrice G.;Rehm, Heidi L.
通讯作者: Rehm, Heidi L.
DOI: 10.1164/rccm.201711-2357oc
发表时间: 2018-10-15
影响因子: 24.7
作者:
Rho, Jason;Ahn, Chul;Jain, Raksha
通讯作者: Jain, Raksha