What would it take to meaningfully attend to ethnicity and race in health research? Learning from a trial intervention development study.
What would it take to meaningfully attend to ethnicity and race in health research? Learning from a trial intervention development study.
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DOI：
10.1111/1467-9566.13431
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发表时间：
2022-12
影响因子：
2.9
通讯作者：
Pope, Catherine
中科院分区：
文献类型：
--
作者：
Rai, Tanvi;Hinton, Lisa;McManus, Richard J.;Pope, Catherine
健康研究参与缺乏种族多样性是一个多层面的问题。种族主义和交叉劣势迫使我们使用种族和民族类别来探索健康，但种族理论家警告说，这些可能会本质化和病态化。然而，另一种选择，即对色盲的追求，可能会掩盖种族和民族对健康的影响。本文描述了招募不同种族样本来为中风患者干预措施的制定提供信息的尝试。这项研究揭示了深刻的不确定性和紧张局势，我们用它来重新审视我们自己的立场和观点。我们关注研究人员和参与者的经验，以展示“通常”的研究实践如何在不知不觉中具有排他性，并促进“方法论的白度”（《英国社会学杂志》，2017，68，S214）。人们经常呼吁加强研究多样性，但健康研究仍然因使用有问题的认识论起点而受到污染，使少数群体的参与感到不安。医学社会学家，特别是那些从事临床试验的医学社会学家，在重新调整健康研究以关注种族和种族方面可以发挥至关重要的作用。这要求我们反思我们的做法，认识到我们在哪些方面与社会不平等同谋，并积极与社区合作以开展更具包容性的研究。
The lack of ethnic diversity in health research participation is a multi‐dimensional problem. Racism and intersectional disadvantage compel us to use racial and ethnic categories to explore health, but race theorists warn that these can be essentialising and pathologising. Yet, the alternative, the pursuit of colour‐blindness, can render the impact of race and ethnicity on health invisible. This paper describes the attempt to recruit an ethnically diverse sample to inform the development of an intervention for stroke patients. The study revealed deep uncertainties and tensions, which we use to re‐examine our own positionalities and perspectives. We focus on the experiences of researchers and participants to show how ‘usual’ research practices are unwittingly exclusionary and promote ‘methodological whiteness’ (The British Journal of Sociology, 2017, 68, S214). Calls for greater diversity in research are frequently made, yet health research remains tainted by the use of problematic epistemological starting points, rendering participation by minoritised people uneasy. Medical sociologists, especially those engaged in clinical trials, have a vital role to play in recalibrating health research to attend to ethnicity and race. This requires us to reflect on our practices, to recognise where we are complicit in replicating social inequalities and to actively engage with communities to produce more inclusive research.
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