Prognostic awareness and communication of prognostic information in malignant glioma: a systematic review.
Prognostic awareness and communication of prognostic information in malignant glioma: a systematic review.
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DOI：
10.1007/s11060-014-1487-1
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发表时间：
2014-09
影响因子：
3.9
通讯作者：
Applebaum, Allison J.
中科院分区：
文献类型：
--
作者：
Diamond, Eli L.;Corner, Geoffrey W.;De Rosa, Antonio;Breitbart, William;Applebaum, Allison J.
关键词：
恶性神经胶质瘤（MG）是一种毁灭性的神经系统疾病，预后普遍较差，其临床病程以进行性功能和认知障碍为特征。一小部分文献探讨了患者和护理人员的预后意识（PA），或对癌症患者预后的理解。检查 MG 患者的 PA 和对预后信息的渴望的研究有限。我们试图回顾有关 PA 和向 MG 患者传达预后信息的现有文献。纳入了 14 项检查 PA 或有关预后信息交流的经验和偏好的研究。各项研究中 PA 的定义和测量方法各不相同，参与者的准确 PA 患病率从 25% 到 100% 不等。可能有一部分患者不需要准确的预后信息，尽管目前尚不清楚预测这种偏好的患者和疾病特征。本综述表明，重症肌无力患者希望以一种保留希望的方式传达预后信息。需要进行系统研究，以确定 MG 独特的临床环境中预后信息的沟通需求。
Malignant glioma (MG) is a devastating neurological disease with a uniformly poor prognosis and a clinical course characterized by progressive functional and cognitive impairment. A small body of literature addresses patients’ and caregivers’ prognostic awareness (PA), or understanding of prognosis in patients with cancer. Studies that examine PA and desire for prognostic information among patients with MG are limited. We sought to review the existing literature on PA and communication of prognostic information to patients with MG. Fourteen studies examining PA or experience and preferences regarding communication of prognostic information were included. The definition and measurement of PA across studies varied, and the prevalence of accurate PA ranged from 25% to 100% of participants. There is likely a subset of patients who do not desire accurate prognostic information, although the patient and disease characteristics that predict this preference are currently unknown. This review suggests that patients with MG desire prognostic information communicated in a manner that preserves hope. Systematic investigation to define communication needs for prognostic information in the unique clinical setting of MG is needed.
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影响因子：
3.2
作者：
Applebaum AJ;Kolva EA;Kulikowski JR;Jacobs JD;DeRosa A;Lichtenthal WG;Olden ME;Rosenfeld B;Breitbart W
通讯作者：
Breitbart W
影响因子：
15.8
作者：
Moher D;Liberati A;Tetzlaff J;Altman DG;PRISMA Group
通讯作者：
PRISMA Group
影响因子：
5.4
作者：
Fagg, James;Curtis, Sarah;Arephin, Muna
通讯作者：
Arephin, Muna
影响因子：
5.9
作者：
Bradley, EH;Hallemeier, AG;Horwitz, SM
通讯作者：
Horwitz, SM
影响因子：
3.6
作者：
Lichtenthall, Wendy G.;Nilsson, Matthew;Zhang, Baohui;Trice, Elizabeth D.;Kissane, David W.;Breitbart, William;Prigerson, Holly G.
通讯作者：
Prigerson, Holly G.