Who will care for me next? Transitioning to adulthood with hydrocephalus.
Who will care for me next? Transitioning to adulthood with hydrocephalus.
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DOI：
10.1542/peds.2008-3834
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发表时间：
2009-11
期刊：
影响因子：
8
通讯作者：
Clark EB
中科院分区：
文献类型：
--
作者：
Simon TD;Lamb S;Murphy NA;Hom B;Walker ML;Clark EB
脑积水是一种典型的慢性疾病，伴随儿童进入成年期。本研究的目的是：（1）审查青年脑积水患者的医疗保健需求如何得不到满足，（2）估计儿童期发作的脑积水患者的数量，（3）描述为青年脑积水和其他慢性儿科疾病提供护理的新计划，（4）提出促进成功的脑积水过渡护理的国家战略。患有脑积水的成年人需要不断获得专业的外科和医疗服务。现有的护理模式无法满足这一需求。在美国，18至35岁的年轻人患有脑积水并需要治疗的人数预计在未来20年内每年将超过40 000人。我们正在发展儿科和成人医疗和外科专家的综合团队，为儿科脑积水患者提供持续，协调，全面的护理。这种设置将培训我们未来的医生队伍最佳的过渡护理。还需要协调各国的努力。提供者需要对脑积水患者实施适当的管理和过渡护理。我们必须在地方和国家层面上努力改变护理模式，提高医疗服务质量，改善年轻脑积水患者的预后。
Hydrocephalus is a prototypical chronic condition that follows children into adulthood. The objectives of this study were to (1) review how the health care needs of young adults with hydrocephalus are not being met, (2) estimate the numbers of adults with childhood-onset hydrocephalus, (3) describe a novel program to provide care for young adults with hydrocephalus and other chronic pediatric conditions, and (4) propose national strategies to promote successful hydrocephalus transition care. Adults with hydrocephalus need continuous access to expert surgical and medical providers. Existing care models fail to meet this need. The number of young adults who have hydrocephalus, are aged 18 to 35 and need treatment in the United States is predicted to exceed 40 000 annually within the next 2 decades. We are developing integrated teams of pediatric and adult medical and surgical specialists to provide continuous, coordinated, comprehensive care for individuals with hydrocephalus in a pediatric setting. This setting will train our future physician workforce on optimal transition care. Coordinated national efforts are also needed. Providers need to implement appropriate management and transition care for individuals with hydrocephalus. We must work at local and national levels to transform the care model, improve the quality of health care delivery, and improve outcomes for young adults with hydrocephalus.
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DOI：
10.1111/j.1469-8749.2007.00458.x
发表时间：
2007-06-01
影响因子：
3.8
作者：
Barf, H. A.;Post, M. W. M.;Prevo, A. J. H.
通讯作者：
Prevo, A. J. H.
影响因子：
2.1
作者：
Kennedy, A.;Sloman, F.;Sawyer, S. M.
通讯作者：
Sawyer, S. M.
影响因子：
0.7
作者：
KAUFMAN, BA;TERBROCK, A;PARK, TS
通讯作者：
PARK, TS
影响因子：
5.5
作者：
McDonagh, J. E.;Southwood, T. R.;Shaw, K. L.
通讯作者：
Shaw, K. L.
影响因子：
0.7
作者：
CUSIMANO, MD;MEFFE, FM;SERMER, M
通讯作者：
SERMER, M