"Out of the clear blue sky she tells me she loves me": Connection experiences between caregivers and people with dementia.
"Out of the clear blue sky she tells me she loves me": Connection experiences between caregivers and people with dementia.
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DOI：
10.1111/jgs.18297
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发表时间：
2023-07
影响因子：
6.3
通讯作者：
Possin, Katherine L.
中科院分区：
文献类型：
--
作者：
Sideman, Alissa Bernstein;Merrilees, Jennifer;Dulaney, Sarah;Kiekhofer, Rachel;Braley, Tamara;Lee, Kirby;Chiong, Winston;Miller, Bruce;Bonasera, Stephen J.;Possin, Katherine L.
痴呆症会阻碍痴呆症患者与其照顾者之间的关系和联系。然而，照顾痴呆症患者也提供了联系的机会，这对照顾者和残疾人士的福祉有影响。在这个定性研究中，我们描述和表征了护理人员与他们所照顾的痴呆症患者的联系方式。我们对痴呆症患者的护理人员进行了电话调查。在这篇论文中，我们分析了对一个开放式问题的回答，该问题关注于照顾者何时与他们所照顾的人最亲近。通过涉及多学科研究人员和临床医生团队的迭代过程，对反馈进行了分析和编码，并确定了主题。437名护理人员参与了本研究。我们确定了两个连接领域：基于活动的连接和基于情感的连接。在基于活动的连接中，出现了以下主题：日常活动；回忆;照料活动；小说的经验;和家人朋友在一起。在情感联系中，出现了以下主题：爱、欣赏和感激的表达；物理情感;分享情感的：分享情感或情感经历的；有时，残疾人似乎又恢复了“自我”。研究结果为看护人如何体验与他们所照顾的人的联系感提供了见解。人们呼吁将注意力从减轻压力转向优化积极体验，以更好地支持护理人员的健康和福祉。利用这些见解来促进照顾者与残疾人之间的联系的干预措施可能会为这对二人组的成员带来更好的健康和福祉。对于那些在有限的支持或喘息中挣扎的护理人员来说，积极体验的放大可能特别重要。临床医生可能会对使用一个关于连接的问题感兴趣，作为一种更全面地了解护理者当前体验的方式。
Dementia can impede the relationship and connection between the person with dementia (PWD) and their caregiver. Yet, caregiving in dementia also offers opportunities for connection, which has implications for caregiver and PWD well-being. In this qualitative study, we describe and characterize ways caregivers felt connected to the person with dementia they care for. We conducted a telephone-based survey with caregivers of people with dementia. For this paper, we analyzed responses to an open-ended question focused on when caregivers feel most connected to the person they are caring for. Responses were analyzed and coded and themes were identified through an iterative process involving a multidisciplinary team of researchers and clinicians. 437 caregivers participated in this study. We identified two domains of connection: activity-based and emotion-based connections. Within activity-based connections, the following themes emerged: everyday activities; reminiscing; activities of caregiving; novel experiences; and time with family and friends. Within emotional connections, the following themes emerged: expressions of love, appreciation, and gratitude; physical affection; sharing an emotion or emotional experience; and times when the PWD seems like “themself” again. Findings provide insights into ways caregivers experience a sense of connection with the person they care for. There is a call to shift away from focusing on reducing stress and toward optimizing positive experiences as a way to better support caregivers’ health and well-being. Interventions that leverage these insights to foster caregiver – PWD connection could lead to better health and well-being for both members of the dyad. The amplification of a positive experience may be particularly important for caregivers who are struggling with limited support or respite. Clinicians may be interested in using a question about connection as a way to more fully understand a caregiver’s current experience.
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影响因子：
14
作者：
通讯作者：
--
DOI：
10.1002/trc2.12010
发表时间：
2020-01-01
影响因子：
4.8
作者：
Bernstein, Alissa;Merrilees, Jennifer;Possin, Katherine L.
通讯作者：
Possin, Katherine L.
影响因子：
5.7
作者：
FARRAN, CJ;KEANEHAGERTY, E;WILKEN, CS
通讯作者：
WILKEN, CS
影响因子：
2.3
作者：
Bernstein Sideman, Alissa;Wells, Jenna L.;Merrilees, Jennifer;Shdo, Suzanne M.;Yee, Claire I.;Possin, Katherine L.;Levenson, Robert W.
通讯作者：
Levenson, Robert W.
DOI：
10.1073/pnas.1701597114
发表时间：
2017-07-11
影响因子：
11.1
作者：
Lwi, Sandy J.;Ford, Brett Q.;Levenson, Robert W.
通讯作者：
Levenson, Robert W.