Pronoun Use among Caregivers of People Living with Dementia: Associations with Dementia Severity Using Text Analysis of a Natural Language Sample.

Pronoun Use among Caregivers of People Living with Dementia: Associations with Dementia Severity Using Text Analysis of a Natural Language Sample.
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DOI:
10.1159/000522122
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发表时间:
2022-01
影响因子:
2.3
通讯作者:
Levenson, Robert W.
Levenson, Robert W.
中科院分区:
其他
文献类型:
--
作者:
Bernstein Sideman, Alissa;Wells, Jenna L.;Merrilees, Jennifer;Shdo, Suzanne M.;Yee, Claire I.;Possin, Katherine L.;Levenson, Robert W.

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痴呆症患者的家庭照顾者有着广泛的社会、身体、情感和经济责任。然而,很少有人知道照顾者和PLWD之间的关系和人际关系。我们检查了照顾者代词的使用,作为照顾者与PLWD之间联系的指标,以及它与照顾者和PLWD的健康和福祉的关联。PLWD的照顾者(N = 320)被要求描述最近一次他们觉得连接到PLWD在他们的照顾。反应被转录和编码,以量化代词的使用类别(我们-代词,我-代词,他们-代词)。照顾者还报告了他们的抑郁,负担,PLWD的痴呆严重程度和婚姻满意度。68名护理人员在初次调查后24个月重复了同样的调查。在这两个时间点,当PLWD的痴呆症更严重时,护理人员使用较少的“我们”代词。配偶照顾者比非配偶照顾者使用更多的我们代词和更少的我和他们代词。配偶关系与失智症严重程度之间存在交互作用,配偶照顾者与失智症严重程度之间存在较强的负相关。代词类别与照顾者负担或抑郁之间没有关联。随着痴呆症变得更加严重,护理人员可能会感到与PLWD的联系越来越脱节,这反映在“我们”代词的使用减少上。本研究强调了通过文本分析探索关系连接的机会。
Family caregivers of persons living with dementia (PLWDs) have extensive social, physical, emotional, and financial responsibilities. However, less is known about the relationship and interpersonal connection between caregivers and PLWDs. We examined caregiver pronoun use, as an index of the connection between the caregiver and PLWD and its associations with the caregiver's and PLWD's health and well-being. Caregivers of PLWDs (N = 320) were asked to describe a recent time they felt connected to the PLWD in their care. Responses were transcribed and coded to quantify pronoun use by category (we-pronouns, I-pronouns, and they-pronouns). Caregivers also reported on their depression, burden, and the PLWD's dementia severity and marital satisfaction. Sixty-eight caregivers repeated the same survey 24 months after the initial survey. Caregivers used less we-pronouns when the PLWD's dementia was more severe, at both timepoints. Spousal caregivers used more we-pronouns and less I- and they-pronouns than nonspousal caregivers. There was an interaction between spousal relationship and dementia severity, such that spousal caregivers exhibited a stronger negative association between dementia severity and we-pronoun use. There were no associations between pronoun category and caregiver burden or depression. Caregivers may feel increasingly disconnected from the PLWD as their dementia becomes more severe, as reflected by less we-pronoun usage. This study highlights the opportunity to explore relationship connection through text analysis.
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