The impact of COVID-19 and social distancing on people with Parkinson's disease: a survey study.
The impact of COVID-19 and social distancing on people with Parkinson's disease: a survey study.
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DOI：
10.1038/s41531-020-00153-8
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发表时间：
2021-01-21
期刊：
影响因子：
--
通讯作者：
Alcalay RN
中科院分区：
文献类型：
--
作者：
Feeney MP;Xu Y;Surface M;Shah H;Vanegas-Arroyave N;Chan AK;Delaney E;Przedborski S;Beck JC;Alcalay RN
随着 COVID-19 大流行继续影响国际社会，人们对其对帕金森病 (PwPD) 患者的健康和日常活动的影响知之甚少。为了更好地了解为减轻 SARS-CoV-2 在残疾人士中传播而实施的公共卫生政策对情绪和行为的影响，并探讨有助于获得远程医疗等替代医疗保健机制的因素，我们通过帕金森病基金会和哥伦比亚大学帕金森病卓越中心的邮件列表对残疾人士和护理合作伙伴进行了匿名知识、态度和实践调查，平均回复率为 19.3%。 1,342 名残疾人士提供了足够的信息纳入最终分析。大约一半的受访者报告 PD 症状出现负面变化，其中 45-66% 的受访者报告情绪紊乱。远程医疗的使用率从大流行之前的 9.7% 增加到大流行期间的 63.5%。较高的收入和高等教育与远程医疗的使用相关。与物理、职业、言语或心理健康治疗相比，服务更常用于预约医生。近一半（46%）的残疾人倾向于在冠状病毒爆发结束后始终或有时继续使用远程医疗。获得远程医疗支持/指导，并有护理伙伴、朋友或家人帮助他们进行远程医疗就诊，增加了大流行结束后继续使用远程医疗的可能性。总而言之，PD 症状和管理实践受到 COVID-19 的显着影响。鉴于远程医疗所观察到的人口限制，迫切需要扩大其实施范围，包括额外的身体、职业、心理和言语治疗，增加对远程医疗的支持，并覆盖服务不足的（低收入）人群。
As the COVID-19 pandemic continues to affect the international community, very little is known about its impact on the health and day-to-day activities of people with Parkinson’s disease (PwPD). To better understand the emotional and behavioral consequences of the public health policies implemented to mitigate the spread of SARS-CoV-2 in PwPD, and to explore the factors contributing to accessing alternative health care mechanisms, such as telehealth, we administered an anonymous knowledge, attitude, and practice survey to PwPD and care partners, via the mailing lists of the Parkinson’s Foundation and Columbia University Parkinson’s Disease Center of Excellence with an average response rate of 19.3%. Sufficient information was provided by 1,342 PwPD to be included in the final analysis. Approximately half of respondents reported a negative change in PD symptoms, with 45–66% reporting mood disturbances. Telehealth use increased from 9.7% prior to the pandemic to 63.5% during the pandemic. Higher income and higher education were associated with telehealth use. Services were more often used for doctor’s appointment than physical, occupational, speech, or mental health therapies. Almost half (46%) of PwPD preferred to continue using telehealth always or sometimes after the coronavirus outbreak had ended. Having received support/instruction for telehealth and having a care partner, friend, or family member to help them with the telehealth visit increased the likelihood of continuous use of telehealth after the pandemic ended. Taken together, PD symptoms and management practices were markedly affected by COVID-19. Given the observed demographic limitations of telehealth, expanding its implementation to include additional physical, occupational, psychological, and speech therapies, increasing support for telehealth, as well as reaching underserved (low income) populations is urgently required.
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影响因子：
3.1
作者：
Lei, Lei;Huang, Xiaoming;Xu, Min
通讯作者：
Xu, Min
DOI：
10.1089/tmj.2006.12.58
发表时间：
2006-02-01
期刊：
TELEMEDICINE JOURNAL AND E-HEALTH
影响因子：
--
作者：
Masucci, MM;Homko, C;Bove, AA
通讯作者：
Bove, AA
影响因子：
8.6
作者：
Fasano, Alfonso;Cereda, Emanuele;Pezzoli, Gianni
通讯作者：
Pezzoli, Gianni
影响因子：
5
作者：
MUTCHLER, JE;BURR, JA
通讯作者：
BURR, JA
影响因子：
8.6
作者：
Cilia, Roberto;Bonvegna, Salvatore;Eleopra, Roberto
通讯作者：
Eleopra, Roberto