Reaching consensus for unified medical language in Fontan care.
Reaching consensus for unified medical language in Fontan care.
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DOI：
10.1002/ehf2.13294
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发表时间：
2021-10
影响因子：
3.8
通讯作者：
Veldtman GR
中科院分区：
文献类型：
--
作者：
Alsaied T;Rathod RH;Aboulhosn JA;Budts W;Anderson JB;Baumgartner H;Brown DW;Cordina R;D'udekem Y;Ginde S;Goldberg DJ;Goldstein BH;Lubert AM;Oechslin E;Opotowsky AR;Rychik J;Schumacher KR;Valente AM;Wright G;Veldtman GR
Fontan手术提高了单心室先天性心脏病患者的生存率。因此，有越来越多的青少年和成年人拥有方丹的发行量。由于方丹循环的独特特征，许多合并症在这一人群中得到了越来越多的认识。方坦共病定义的标准化将有助于促进研究和临床经验的理解、一致性和可解释性。统一Fontan的通用语言使用是对研究结果和临床结果进行数据比较的关键一步，并最终加快对这一不断增长的患者群体的管理改进。这个手稿的目的是为方丹姑息后的发病率创建统一的定义。在许多先天性心脏病组织的联合下，这项工作使用德尔菲方法在公认的专家中就Fontan护理和研究中的常用术语达成广泛共识。每个定义都经历了至少三轮的修订，通过发送给单心室护理领域专家的调查得出最终定义。在此手稿中总结了与Fontan手术相关的多种发病率达成共识的过程。在达成共识之前的不同版本也在支持信息中给出。表1是根据共识得出的最终定义。我们建议在临床护理、未来研究、注册表开发和临床试验中使用这些定义。
The Fontan operation has resulted in improved survival in patients with single‐ventricle congenital heart disease. As a result, there is a growing population of teenagers and adults with a Fontan circulation. Many co‐morbidities have been increasingly recognized in this population due to the unique features of the Fontan circulation. Standardization of how Fontan co‐morbid conditions are defined will help facilitate understanding, consistency and interpretability of research and clinical experience. Unifying common language usage in Fontan is a critical precursor step for data comparison of research findings and clinical outcomes and ultimately accelerating improvements in management for this growing group of patients. This manuscript aimed to create unified definitions for morbidities seen after the Fontan palliation. In association of many congenital heart disease organizations, this work used Delphi methodology to reach a broad consensus among recognized experts regarding commonly used terms in Fontan care and research. Each definition underwent at least three rounds of revisions to reach a final definition through surveys sent to experts in the field of single‐ventricle care. The process of reaching a consensus on multiple morbidities associated with the Fontan procedure is summarized in this manuscript. The different versions that preceded reaching the consensus are also presented in the Supporting Information. Table 1 represents the final definitions according to the consensus. We propose the use of these definitions for clinical care, future research studies, registry development and clinical trials.
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影响因子：
4.6
作者：
Almond, Christopher S. D.;Mayer, John E.;McElhinney, Doff B.
通讯作者：
McElhinney, Doff B.
DOI：
10.1053/j.semtcvs.2018.02.001
发表时间：
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影响因子：
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通讯作者：
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影响因子：
3.5
作者：
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通讯作者：
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