Interstitial cystitis patients’ use and rating of complementary and alternative medicine therapies
Interstitial cystitis patients’ use and rating of complementary and alternative medicine therapies
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间质性膀胱炎患者对补充和替代医学疗法的使用和评级
DOI：
10.1007/s00192-012-1966-x
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发表时间：
2010
影响因子：
1.8
通讯作者：
K. Whitmore
中科院分区：
文献类型：
--
作者：
P. O'Hare;Amy Hoffmann;P. Allen;B. Gordon;Linda Salin;K. Whitmore
前言和假设本研究的目的是描述补充和替代医学（CAM）治疗在间质性膀胱炎（IC）患者中的使用，患者对CAM治疗有效性的感知，以及诊断后时间与这些治疗感知有效性的关系。方法2009年4月，间质性膀胱炎协会（ICA）发起了一项基于互联网的CAM调查。受访者表明他们是否接受过IC诊断，多久以前，他们是否尝试过CAM，谁推荐它。在5分制中，受访者对49种疗法进行了评分。对于确认诊断的应答者，我们使用卡方拟合优度检验来评估哪些治疗方法被大多数尝试过的患者评价为积极或消极。使用单独的单向方差分析，我们根据诊断后的时间评估各组间平均感知有效性的差异，并在必要时进行事后检验。使用卡方检验，我们探讨了自诊断以来的时间与使用CAM和尝试的治疗次数的关系。结果共2101名受试者参与调查；1982例确诊为IC诊断。大多数（84.2%）尝试过辅助治疗，55%的人说医生推荐过辅助治疗。在那些尝试CAM的人中，82.8%尝试过饮食或物理治疗，69.2%尝试过其他治疗。在这些疗法中，22种被评为正面，20种被评为负面；7个没有定论。患者认为有帮助的疗法包括饮食管理和疼痛管理辅助疗法，如物理疗法、冷热疗法、冥想和放松、针灸、减压、运动和睡眠卫生。许多治疗方法对最近确诊的患者比很久以前确诊的患者效果更好。结论：需要随机、安慰剂对照研究来证明哪些疗法确实可以控制IC症状，并帮助将研究推向新的、富有成效的方向。
Introduction and hypothesisThe purpose of this study was to describe the use of complementary and alternative medicine (CAM) therapies among interstitial cystitis (IC) patients, patients’ perception of CAM therapies’ effectiveness, and the association of time since diagnosis with perceived effectiveness of these therapies.MethodsIn April 2009, the Interstitial Cystitis Association (ICA) initiated an Internet-based survey on CAM. Respondents indicated whether they received an IC diagnosis and how long ago, whether they tried CAM, and who recommended it. On a 5-point scale, respondents rated 49 therapies. For respondents confirming a diagnosis, we used a chi-square goodness-of-fit test to assess which therapies were rated positively or negatively by a majority of patients who tried them. Using separate one-way analyses of variance, we assessed differences in mean perceived effectiveness among groups based on time since diagnosis and conducted post hoc tests, if necessary. Using chi-square tests, we explored the association of time since diagnosis with the use of CAM and the number of therapies tried.ResultsA total of 2,101 subjects responded to the survey; 1,982 confirmed an IC diagnosis. Most (84.2 %) had tried CAM, and 55 % said physicians had recommended CAM. Of those trying CAM, 82.8 % had tried diet or physical therapy and 69.2 % other therapies. Of the therapies, 22 were rated positively and 20 negatively; 7 were inconclusive. Therapies patients perceived to be helpful included dietary management and pain management adjuncts such as physical therapy, heat and cold, meditation and relaxation, acupuncture, stress reduction, exercise, and sleep hygiene. Many therapies worked better for those diagnosed recently than for those diagnosed long before.ConclusionsRandomized, placebo-controlled studies are needed to demonstrate which therapies may indeed control IC symptoms and help send research in new and productive directions.
影响因子：
6.1
作者：
Missmer, Stacey A.;Chavarro, Jorge E.;Hankinson, Susan E.
通讯作者：
Hankinson, Susan E.