"We Are Anxious Every Day": COVID-19 Impacts on Youth with Spina Bifida.
"We Are Anxious Every Day": COVID-19 Impacts on Youth with Spina Bifida.
复制标题
“我们每天都很焦虑”：Covid-19对脊柱裂的青年产生影响。
DOI：
10.1093/jpepsy/jsab070
复制
发表时间：
2021-09-27
影响因子：
3.6
通讯作者：
Holmbeck GN
中科院分区：
文献类型：
--
作者：
Stiles-Shields C;Kritikos TK;Ridosh MM;Starnes M;Holmbeck GN
这项研究考察了新冠肺炎大流行对患有脊柱裂(SB)的青少年和青壮年(AYA)以及患有SB的青少年父母的影响。Aya和SB(15-25；n = 298)和SB儿童的父母(n = 200)被招募来完成一项匿名的在线英语或西班牙语调查。参与者提供了有关人口统计和条件特征的信息，以及他们在行为保健方面获得和使用技术的情况。他们还完成了新冠肺炎暴露与家庭影响调查(CEFIS)，其中包括暴露、影响和痛苦分量表。使用探索性相关性和t检验来检验CEFIS评分与人口统计学、医学和访问特征之间的潜在关联。对来自CEFIS的定性数据进行了专题分析。暴露、冲击和痛苦分量表上的分数显示出显著的变异性。对于那些影响和痛苦程度较高的人，与暴露的人口统计学关联不同(例如，白人、非西班牙裔/拉丁裔Aya报告的暴露比率较高[p=.001]；认同小规模种族/族裔认同的Aya报告的影响较大[p≤.03])。对精神和行为健康的影响(n = 44)、对医疗护理的干扰(n = 28)和人际关系挑战(n = 27)是最常见的定性主题。目前的发现表明，基于人口、医疗和系统因素(例如，小型化状态)，SB患者及其家人受到的影响不同。建议支持患有SB和其他儿科疾病的家庭。
This study examined the impact of the COVID-19 pandemic on a national sample of adolescents and young adults (AYA) with spina bifida (SB) and parents of youth with SB. AYA with SB (15–25; n = 298) and parents of children with SB (n = 200) were recruited to complete an anonymous, online survey in English or Spanish. Participants provided information about demographic and condition characteristics, as well as their technology access and use for behavioral health care. They also completed the COVID-19 Exposure and Family Impact Survey (CEFIS), which includes Exposure, Impact, and Distress subscales. Exploratory correlations and t-tests were used to examine potential associations between CEFIS scores and demographic, medical, and access characteristics. Qualitative data from the CEFIS were analyzed using thematic analysis. Scores on the Exposure, Impact, and Distress subscales demonstrated significant variability. Demographic associations with Exposure differed for those with higher Impact and Distress (e.g., White, non-Hispanic/Latino AYA reported higher rates of exposure [p = .001]; AYA who identified with a minoritized racial/ethnic identity reported greater impact [p ≤ .03]). Impacts to mental and behavioral health (n = 44), interference with medical care (n = 28), and interpersonal challenges (n = 27) were the most commonly occurring qualitative themes. The current findings implicate differential impacts to individuals with SB and their families based on demographic, medical, and systemic factors (e.g., minoritized status). Recommendations to support families with SB and other pediatric conditions are made.
登录
查看更多内容
DOI：
10.1038/nrdp.2015.7
发表时间：
2015-04-30
期刊：
Nature reviews. Disease primers
影响因子：
--
作者：
Copp AJ;Adzick NS;Chitty LS;Fletcher JM;Holmbeck GN;Shaw GM
通讯作者：
Shaw GM
干草堆中的针头：在大流行期间识别儿科人群的可信移动健康应用程序。
影响因子：
3.6
作者：
Psihogios AM;Stiles-Shields C;Neary M
通讯作者：
Neary M
影响因子：
1.9
作者：
Kritikos TK;Smith K;Holmbeck GN
通讯作者：
Holmbeck GN
影响因子：
8
作者：
Patrick, Stephen W.;Henkhaus, Laura E.;Davis, Matthew M.
通讯作者：
Davis, Matthew M.
影响因子：
3.6
作者：
Hommeyer, JS;Holmbeck, GN;Coers, S
通讯作者：
Coers, S