Informal Caregiving in a Medically Underserved Community: Challenges, Construction of Meaning, and the Caregiver-Recipient Dyad.
Informal Caregiving in a Medically Underserved Community: Challenges, Construction of Meaning, and the Caregiver-Recipient Dyad.
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DOI：
10.1177/2377960819844670
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发表时间：
2019-01
影响因子：
2
通讯作者：
Thompson K
中科院分区：
文献类型：
--
作者：
Gorawara-Bhat R;Graupner J;Molony J;Thompson K
人们对医疗服务不足社区的非正规护理人员面临的挑战知之甚少。本质性研究探讨他们的看法/经验，在医疗服务不足的社区在中西部美国。两个焦点小组（n = 12）进行了主题提取和分析。主题1包括感知到的障碍/未满足的需求;其中最普遍的是缺乏信息资源和支助团体。第二个主动和意外的主题强调了照顾者如何通过重新评估挑战来构建意义，为自己创造丰富的经验，加强他们与照顾者不断发展的二元关系。照顾的丰富性和包容性是并存的，并植根于照顾者-被照顾者-被照顾者的二元关系。照顾者使用意义制造作为应对挑战的策略。先前的研究证实了照顾者的挑战和意义，这项研究有助于描绘两者如何变得相互关联。政策制定者可以（a）通过增加信息资源和支持团体来减轻挑战，（B）提供培训，优化照顾者的意义创造，从而增强他们的积极经验。
Little is known about informal caregivers' challenges in medically underserved communities. This qualitative study explores their perceptions/experiences of caregiving in a medically underserved community in Midwest United States. Two focus groups (n = 12) were conducted and themes were extracted and analyzed. Theme 1 included perceived barriers/unmet needs; most prevalent of which were lack of informational resources and support groups. A second unsolicited and unanticipated theme highlighted how caregivers constructed meaning through reappraising challenges to create enriching experiences for themselves, reinforcing their evolving dyadic relationship with care-recipient. Challenging and enriching aspects of caregiving coexisted and were rooted in caregiver–care-recipient dyad. Caregivers used meaning-making as a coping strategy for challenges. Prior research corroborates caregivers' challenges and meaning-making; this study contributes by delineating how both become interrelated. Policy makers can (a) alleviate challenges by increasing informational resources and support groups and (b) provide training to optimize caregivers' meaning-making, thus enhancing their positive experiences.
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