Lived experiences of patients with placenta accreta spectrum in Utah: a qualitative study of semi-structured interviews.
Lived experiences of patients with placenta accreta spectrum in Utah: a qualitative study of semi-structured interviews.
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DOI：
10.1136/bmjopen-2021-052766
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发表时间：
2021-11-03
期刊：
影响因子：
2.9
通讯作者：
Rothwell E
中科院分区：
文献类型：
--
作者：
Einerson BD;Watt MH;Sartori B;Silver R;Rothwell E
目的：描述在诊断和治疗胎盘增生谱（PAS）患者的生活经验。半结构化访谈的定性研究。内容分析用于分析访谈数据，使用一套一致的代码来指定包含类似材料的数据段。根据主题相似性对语码进行分析和分组。对专题结果进行了系统审查、核实和审计，以解决数据和分析的可靠性和严谨性问题。2017年至2020年在美国犹他州进行单一PAS项目。在研究期间患有PAS的患者是合格的。那些经历过胎儿死亡或终止妊娠的人被排除在外。在随机联系的25名患者中，17名同意参加访谈。这些人主要是非西班牙裔白人，高度生育，平均年龄为34.7岁。PAS患者的生活经历贯穿了从诊断、怀孕、分娩到产后护理和康复的整个过程。整个护理连续体的共同主题是：诊断和管理的情感负担；与健康结果有关的恐惧和不确定性；以及与医疗决策相关的自主权和医疗无助感的缺乏。许多患者经历了与出生有关的创伤，哀悼未来生育能力的丧失，并对缺乏治疗这种严重妊娠并发症的选择感到不满。接受PAS诊断和治疗的患者经常经历与他们怀孕和分娩目标相冲突的护理。PAS的临床护理将受益于旨在使患者和提供者参与共同决策的干预措施和旨在解决PAS患者的社会、心理和情感需求的系统。
To describe the lived experience of patients undergoing diagnosis and treatment of placenta accreta spectrum (PAS). Qualitative study of semi-structured interviews. A content analysis was used to analyse interview data using a consistent set of codes to designate data segments that contain similar material. Codes were analysed and grouped based on thematic similarities. Thematic results were systematically reviewed, verified and audited to address trustworthiness and rigour of the data and analysis. A single PAS programme in Utah, USA, from 2017 to 2020. Patients with PAS during the study period were eligible. Those experiencing fetal demise or termination were excluded. Of 25 patients contacted at random, 17 agreed to participate in interviews. Those included were predominantly non-Hispanic white, highly parous, with average age of 34.7 years. The lived experiences of patients with PAS emerged across the time continuum from diagnosis, pregnancy, birth, to postpartum care and recovery. Themes common across the care continuum were: the emotional burden of diagnosis and management; fear and uncertainty related to health outcomes; and lack of autonomy and medical helplessness related to medical decision-making. Many patients experienced birth-related trauma, mourned the loss of future fertility and were dissatisfied with the lack of options for treatment for this serious pregnancy complication. Patients undergoing diagnosis and treatment for PAS often experienced care that conflicted with their goals for pregnancy and birth. Clinical care for PAS would benefit from interventions aiming to engage patients and providers in shared decision-making and systems designed to address the social, psychological and emotional needs of patients with PAS.
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影响因子：
7.2
作者：
Bailit, Jennifer L.;Grobman, William A.;Blackwell, Sean C.
通讯作者：
Blackwell, Sean C.
DOI：
10.1016/s0002-9378(96)70117-5
发表时间：
1996-12-01
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10.1016/j.ejogrb.2020.09.014
发表时间：
2020-11-01
影响因子：
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作者：
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通讯作者：
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影响因子：
--
作者：
Kon, AA;Ackerson, L;Lo, B
通讯作者：
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