Supporting self-care of long-term conditions in people with dementia: A systematic review.
Supporting self-care of long-term conditions in people with dementia: A systematic review.
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支持痴呆症患者长期状况的自我护理：系统评价。
DOI：
10.1016/j.ijnurstu.2019.103432
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发表时间：
2021
影响因子：
8.1
通讯作者：
Rees J
中科院分区：
文献类型：
--
作者：
Rees J
背景长期疾病在痴呆症患者中很常见；他们的自我管理是幸福的重要决定因素。随着痴呆症的进展，家庭护理人员经常支持或替代自我护理活动，并充当自我管理的代理人。目标对如何最好地启用和支持痴呆症患者长期状况的管理进行首次系统回顾，包括促进或抑制自我管理和代理人管理的因素。设计系统回顾。数据源我们系统地搜索了截至 11 月的 MEDLINE、PsychINFO、Embase 以及联合和补充医学数据库2018.审查方法我们确定了痴呆症患者中最普遍的需要自我管理的长期状况。然后，我们制定了纳入标准，以确定描述痴呆症患者长期状况的自我管理（或在家庭护理人员协助下的自我管理）的定性和定量研究。两位作者使用标准化检查表独立评估研究的有效性。我们使用数据驱动的聚合综合方法综合了定性和定量研究结果。结果我们纳入了 12 篇符合预定纳入标准的文章：7 篇定性研究、2 篇案例研究、2 篇定量研究和一篇混合方法研究。我们在这些研究中确定了四个主题：（1）痴呆症状阻碍治疗方案（健忘、理解力下降、沟通症状的能力以及行为和心理症状）； (2) 使例程变得更简单（使用记忆辅助工具并适应身体限制）； (3) 协商自我管理支持（护理人员的可用性和知识；平衡安全和赋权的需求）； (4) 与专业人士沟通（简化常规、针对具体情况的教育和承认护理人员的角色）。 结论 通过简化常规和提醒，可以支持痴呆症患者尽可能长时间地管理自己的健康，但如果无法再协商，护理人员通常会出于安全考虑而承担起自我管理的责任。赋予痴呆症患者继续参与护理的权利，可以减少这一转变所带来的损失。在支持患有长期疾病和痴呆症的人们时，临床医生和护理人员之间的沟通和合作至关重要。痴呆症和长期疾病患者的护理计划应包括明确讨论这些伙伴关系将如何运作，并指导护理人员可以用来支持人们自我管理长期疾病的策略。
BackgroundLong-term conditions are common in people living with dementia; their self-management is an important determinant of wellbeing. Family carers often support or substitute self-care activities, and act as proxies for self-management, as dementia progresses.ObjectivesTo conduct the first systematic review of how management of long-term conditions in people with dementia is best enabled and supported, including factors that facilitate or inhibit self-management and management by a proxy.DesignSystematic review.Data SourcesWe systematically searched MEDLINE, PsychINFO, Embase and Allied and Complementary Medicine databases up to November 2018.Review methodsWe identified the long-term conditions most prevalent in people with dementia that require an element of self-management. We then developed our inclusion criteria to identify qualitative and quantitative studies describing the self-management (or self-management assisted by family carers) of long-term conditions in people with dementia. Two authors independently rated study validity using a standardised checklist. We synthesised qualitative and quantitative findings using a data driven convergent synthesis approach.ResultsWe included 12 articles meeting predetermined inclusion criteria: seven qualitative, two case studies, two quantitative and one mixed methods study. We identified four main themes across these studies: (1) dementia symptoms impeding treatment regimens (forgetfulness, decreased understanding, ability to communicate symptoms and behavioural and psychological symptoms); (2) adapting routines to be simpler, (using memory aids and accommodating physical limitations); (3) negotiating self-management support (carer availability and knowledge; balancing needs for safety and empowerment); and (4) interface with professionals, (Routine simplification, condition specific education, and acknowledging carer role).ConclusionsPeople living with dementia can be supported to manage their own health for as long as possible, through simplifying routines and reminding, but where this can no longer be negotiated, carers take over responsibility for self-management, often due to safety concerns. Empowerment of people with dementia to remain involved in their care reduces the loss experienced by this transition. Communication and partnership between clinicians and carers is critical when supporting people living with a long-term condition and dementia. Care planning for people living with dementia and a long-term condition should include explicit discussion of how these partnerships will work and guidance on strategies carers can use to support people to self-manage long-term conditions.
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痴呆症和合并症患者的医疗组织和分娩：一项定性研究，探讨了患者，护理人员和专业人士的观点。
影响因子：
2.9
作者：
Bunn F;Burn AM;Robinson L;Poole M;Rait G;Brayne C;Schoeman J;Norton S;Goodman C
通讯作者：
Goodman C
DOI：
10.1177/1471301213488900
发表时间：
2015-01-01
影响因子：
2.4
作者：
Gillespie, Robyn J.;Harrison, Lindsey;Mullan, Judy
通讯作者：
Mullan, Judy
影响因子：
6.7
作者：
Cooper C;Lodwick R;Walters K;Raine R;Manthorpe J;Iliffe S;Petersen I
通讯作者：
Petersen I
在临床环境中，对患有痴呆症患者的慢性疾病自我管理支持。
影响因子：
3.3
作者：
Ibrahim JE;Anderson LJ;MacPhail A;Lovell JJ;Davis MC;Winbolt M
通讯作者：
Winbolt M
影响因子：
1.8
作者：
Poland F;Mapes S;Pinnock H;Katona C;Sorensen S;Fox C;Maidment ID
通讯作者：
Maidment ID