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The experience of visible differences and body image in scleroderma: A Scleroderma Patient-centered Intervention Network (SPIN) study

The experience of visible differences and body image in scleroderma: A Scleroderma Patient-centered Intervention Network (SPIN) study
硬皮病中可见差异和身体形象的体验:以硬皮病患者为中心的干预网络 (SPIN) 研究
批准号:
336260
负责人:
Jewett Lisa R
金额:
$0.11万
依托单位国家:
加拿大
项目类别:
财政年份:
2015
资助国家:
加拿大
项目状态:
已结题
起止时间:
2015-10-01 至 2016-10-01

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项目成果

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中文摘要
翻译
患有罕见疾病的人通常无法获得针对其需求的工具包,这些工具包可以帮助改善生活质量。系统性硬化症(SSc)或硬皮病是一种罕见的慢性疾病,可影响各种器官,包括
英文摘要
People living with rare diseases often do not have access to toolkits that are specific to their needs and can help improve quality of life. Systemic sclerosis (SSc), or scleroderma, is a rare, chronic disease that can affect various organs including the
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会议论文
Body Image Measures Among Individuals with Visible Differences from Skin Conditions: A Systematic Review
  • 批准号:
    297046
  • 项目类别:
    Miscellaneous Programs
  • 资助金额:
    $0.44万
  • 财政年份:
    2013
  • 负责人:
    Jewett Lisa R
  • 依托单位:
Social anxiety from disfigurement due to medical illness: From assessment to intervention
Development and validation of measures of body image distress in systemic sclerosis
  • 批准号:
    182826
  • 项目类别:
    Studentship Programs
  • 资助金额:
    $1.27万
  • 财政年份:
    2009
  • 负责人:
    Jewett Lisa R
  • 依托单位:
海外基金