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NF1 and me. What late adolescents need to know and what they have to say about their health, privacy and social life.

NF1 and me. What late adolescents need to know and what they have to say about their health, privacy and social life.
NF1 和我。
批准号：
305719
负责人：
Bouffard Chantal
金额：
$10.11万
依托单位：
Universit de Sherbrooke
依托单位国家：
加拿大
项目类别：
Operating Grants
财政年份：
2014
资助国家：
加拿大
项目状态：
已结题
起止时间：
2014-03-01 至 2016-03-01
来源：
https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=305719&lang=en
关键词：
Empirical-Inductive Research Intergenerational Dialogue Late Adolescence Medical Anthropology Neurofibromatosis Neurofibromatosis Type 1 Social Representations Of Neurofibromatosis Type 1

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英文摘要
Based on the experiences of late adolescents aged 15 to 19 affected by Neurofibromatosis Type 1 (NF1), this research project has as purpose to expand knowledge on their needs and concerns given the impact of this illness on their health, private life (sex
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