NF1 and me. What late adolescents need to know and what they have to say about their health, privacy and social life.

NF1 和我。

• 批准号: 305719
• 负责人: Bouffard Chantal
• 金额: $ 10.11万
• 依托单位: Universit de Sherbrooke
• 依托单位国家: 加拿大
• 项目类别: Operating Grants
• 财政年份: 2014
• 资助国家: 加拿大
• 起止时间: 2014-03-01 至 2016-03-01
• 项目状态: 已结题
• 来源: https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=305719&lang=en
• 关键词: Empirical-Inductive Research; Intergenerational Dialogue; Late Adolescence; Medical Anthropology; Neurofibromatosis; Neurofibromatosis Type 1; Social Representations Of Neurofibromatosis Type 1

Based on the experiences of late adolescents aged 15 to 19 affected by Neurofibromatosis Type 1 (NF1), this research project has as purpose to expand knowledge on their needs and concerns given the impact of this illness on their health, private life (sex

基于15至19岁患有1型神经纤维瘤病(NF1)的晚期青少年的经历，鉴于这种疾病对他们的健康、私人生活(性)的影响，本研究项目的目的是扩大对他们的需求和关注的知识