NF1 and me. What late adolescents need to know and what they have to say about their health, privacy and social life.
NF1 and me. What late adolescents need to know and what they have to say about their health, privacy and social life.
NF1 和我。
批准号：
305719
负责人：
Bouffard Chantal
金额：
$10.11万
依托单位：
依托单位国家：
加拿大
项目类别：
Operating Grants
财政年份：
2014
资助国家：
加拿大
项目状态：
已结题
起止时间：
2014-03-01 至 2016-03-01
中文摘要
翻译
根据15至19岁受1型神经纤维瘤病（NF1）影响的晚期青少年的经验，该研究项目的目的是扩大对他们的需求和关切的认识，因为这种疾病对他们的健康、私人生活（性）的影响
英文摘要
Based on the experiences of late adolescents aged 15 to 19 affected by Neurofibromatosis Type 1 (NF1), this research project has as purpose to expand knowledge on their needs and concerns given the impact of this illness on their health, private life (sex
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