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A Scoping Review to Examine the Extent and Quality of Literature on Symptoms in Children with Rare, Progressive Disorders

A Scoping Review to Examine the Extent and Quality of Literature on Symptoms in Children with Rare, Progressive Disorders
一项范围界定审查，旨在检查有关罕见、进行性疾病儿童症状的文献的范围和质量
批准号：
308841
负责人：
Siden Harold B
金额：
$3.64万
依托单位：
University of British Columbia
依托单位国家：
加拿大
项目类别：
Operating Grants
财政年份：
2014
资助国家：
加拿大
项目状态：
已结题
起止时间：
2014-04-01 至 2015-04-01
来源：
https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=308841&lang=en
关键词：
Chromosomal Conditions Complex Care Metabolic Disease Neurologic Conditions Pediatric Palliative Care Pediatrics Rare Disorders Scoping Review Symptom Assessment Symptom Management

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中文摘要
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英文摘要
<html> <body>There are conditions in childhood that seem to be rare, but together affect thousands of Canadians. Unfortunately, some of these diseases are severe, progressive and ultimately terminal. Often the disease arises due to problems in the nervou
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Research Priorities for Children with Life-threatening Genetic, Metabolic, Neorologic and Chromosomal Disorders: A Pan-Canadian Workshop Proposal
  • 批准号：
    343716
  • 项目类别：
    Miscellaneous Programs
  • 资助金额：
    $0.66万
  • 财政年份：
    2016
  • 负责人：
    Siden Harold B
  • 依托单位：
    University of British Columbia
PedPalASCNet: A Network for Accessible, Sustainable, and Collaborative Research in Pediatric Palliative Care
A Multi-Dimensional Strategy for Knowledge Translation in Pediatric Palliative Care Research
  • 批准号：
    193224
  • 项目类别：
    Miscellaneous Programs
  • 资助金额：
    $2.91万
  • 财政年份：
    2009
  • 负责人：
    Siden Harold B
  • 依托单位：
    University of British Columbia
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