Supplement: Effects of Comorbidity Management and Complex Care Coordination on Cancer Caregivers

补充：合并症管理和复杂护理协调对癌症护理人员的影响

• 批准号: 10818788
• 负责人: Hoda J Badr
• 金额: $ 12.74万
• 依托单位: BAYLOR COLLEGE OF MEDICINE
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-06-01 至 2027-05-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10818788
• 关键词: Affect; Aftercare; Behavioral; Behavioral Sciences; Cancer Control; Cancer Control Research; Cancer Patient; Cancer Survivor; Cancer Survivorship; Caregiver Burden; Caregiver support; Caregivers; Caring; Chronic; Chronic Disease; Communication Barriers; Communities; Companions; Complex; Data; Distress; Eligibility Determination; Enrollment; Face; Family; Financial Hardship; Future; Geography; Goals; Health; Health Promotion; Health system; Healthcare; Healthcare Systems; Home Health Aides; Intervention; Interview; Knowledge; Malignant Neoplasms; Medical; Medicine; Mentorship; Methodology; Methods; Mexican Americans; Modeling; Oncologist; Oncology; Outcome; Parents; Pathway interactions; Patient Care; Patient Participation; Patients; Population; Postdoctoral Fellow; Primary Care; Quality of life; Randomized; Randomized, Controlled Trials; Research; Research Methodology; Research Personnel; Residual state; Resources; Risk; Scientist; Self Management; Statistical Data Interpretation; Support Groups; Support System; Surveys; Survivors; System; Time; Training; Uncertainty; Visit; Work; cancer care; cancer diagnosis; cancer risk; cancer therapy; care coordination; care delivery; care outcomes; career; career development; caregiver interventions; caregiving; caregiving research; college; comorbidity; enhanced care; experience; follow-up; health care availability; health care service; health disparity; health equity; health literacy; improved; improved outcome; informal caregiver; medically underserved; multiple chronic conditions; novel; post-doctoral training; preference; primary care provider; recruit; respite care; safety net; skill acquisition; skills; survivorship; training opportunity

PROJECT SUMMARY. The overarching goal of this Diversity Supplement is to prepare and launch Dr. Maria Lizette Rangel into an academic career as an independent scientist. Dr. Rangel is a behavioral scientist and post-doctoral research associate with a strong commitment to working with medically underserved cancer patients, families, and communities. Through this Diversity Supplement, she will gain crucial training in cancer control research focusing on cancer caregiving, challenges of comorbidity management during/after cancer- directed treatment, and advanced statistical analysis. With an eye toward developing interventions to support caregivers in managing patient comorbidities across the cancer control continuum, specific aims of this supplemental research are to: 1) Examine whether patient participation in the parent OPTIMISE (Oncology- Primary Care Partnership to Improve Comprehensive Survivorship Care) enhanced care pathway for comorbidity management results in improved outcomes for caregivers in terms of lower levels of caregiver burden, distress, and financial hardship relative to usual medical care (UMC); 2) Describe the challenges that caregivers face in managing patient comorbidities during cancer-directed treatment; and, 3) Describe the challenges that caregivers experience as the patient transitions from cancer-directed treatment to post-treatment survivorship. Dr. Rangel will achieve these aims by recruiting the caregivers of patients who are eligible and enrolled in the parent OPTIMISE trial and conducting a mixed-methods companion study using caregiver interview and survey data. To supplement the research plan, career development goals include 1) gaining a foundational understanding of cancer control health equity research, 2) develop theoretical and conceptual knowledge in cancer caregiving research, 3) continue developing the methodological and analytical qualitative, quantitative, and mixed methods skills required to conduct rigorous mixed methods research, and 4) acquire professional development skills to support a career as an independent investigator. Along with the valuable training and career development opportunities afforded through this supplement, the findings supported by Dr. Rangel’s research will provide crucial data on the unmet needs of cancer caregivers and enable her to develop a competitive K99/R00 proposal to develop an intervention for caregivers of cancer patients with comorbidities and launch her career as an independent investigator.

项目摘要。该多样性补充的首要目标是准备和启动玛丽亚博士 Lizette Rangel以独立科学家的身份进入学术生涯。兰格尔博士是一位行为科学家， 博士后研究助理，坚定地致力于与医疗服务不足的癌症合作 患者、家庭和社区。通过这种多样性补充，她将获得癌症的关键培训 控制研究，重点是癌症治疗，癌症期间/之后并发症管理的挑战- 定向治疗和先进的统计分析。着眼于制定干预措施来支持 护理人员在整个癌症控制连续体中管理患者合并症， 补充研究的目的是：1）检查患者是否参与了母体OPTIMISE（肿瘤学- 初级保健伙伴关系，以改善综合生存护理）加强护理途径，为科摩罗 管理导致护理人员在护理人员负担、痛苦 与常规医疗护理（UMC）相关的经济困难; 2）描述护理人员在以下方面面临的挑战： 在癌症定向治疗期间管理患者合并症;以及，3）描述 护理人员在患者从癌症定向治疗过渡到治疗后生存时的经历。 博士Rangel将通过招募符合条件并参加 父母OPTIMISE试验，并使用护理人员访谈和调查进行混合方法同伴研究 数据作为研究计划的补充，职业发展目标包括：1）获得一个基本的 了解癌症控制健康公平研究，2）发展理论和概念知识， 癌症预防研究，3）继续发展定性，定量， 进行严格的混合方法研究所需的混合方法技能，以及4）获得专业 发展技能，以支持作为独立调查员的职业生涯。沿着有价值的训练和 通过这种补充提供的职业发展机会，Rangel博士的研究结果支持 研究将提供有关癌症护理人员未满足需求的关键数据，并使她能够制定一项 竞争性K99/R 00提案，为患有合并症的癌症患者的护理人员制定干预措施， 开始了她的独立调查员生涯