Supplement: Effects of Comorbidity Management and Complex Care Coordination on Cancer Caregivers

补充：合并症管理和复杂护理协调对癌症护理人员的影响

• 批准号: 10818788
• 负责人: Hoda J Badr
• 金额: $ 12.74万
• 依托单位: BAYLOR COLLEGE OF MEDICINE
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-06-01 至 2027-05-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10818788
• 关键词: Affect; Aftercare; Behavioral; Behavioral Sciences; Cancer Control; Cancer Control Research; Cancer Patient; Cancer Survivor; Cancer Survivorship; Caregiver Burden; Caregiver support; Caregivers; Caring; Chronic; Chronic Disease; Communication Barriers; Communities; Companions; Complex; Data; Distress; Eligibility Determination; Enrollment; Face; Family; Financial Hardship; Future; Geography; Goals; Health; Health Promotion; Health system; Healthcare; Healthcare Systems; Home Health Aides; Intervention; Interview; Knowledge; Malignant Neoplasms; Medical; Medicine; Mentorship; Methodology; Methods; Mexican Americans; Modeling; Oncologist; Oncology; Outcome; Parents; Pathway interactions; Patient Care; Patient Participation; Patients; Population; Postdoctoral Fellow; Primary Care; Quality of life; Randomized; Randomized, Controlled Trials; Research; Research Methodology; Research Personnel; Residual state; Resources; Risk; Scientist; Self Management; Statistical Data Interpretation; Support Groups; Support System; Surveys; Survivors; System; Time; Training; Uncertainty; Visit; Work; cancer care; cancer diagnosis; cancer risk; cancer therapy; care coordination; care delivery; care outcomes; career; career development; caregiver interventions; caregiving; caregiving research; college; comorbidity; enhanced care; experience; follow-up; health care availability; health care service; health disparity; health equity; health literacy; improved; improved outcome; informal caregiver; medically underserved; multiple chronic conditions; novel; post-doctoral training; preference; primary care provider; recruit; respite care; safety net; skill acquisition; skills; survivorship; training opportunity

PROJECT SUMMARY. The overarching goal of this Diversity Supplement is to prepare and launch Dr. Maria Lizette Rangel into an academic career as an independent scientist. Dr. Rangel is a behavioral scientist and post-doctoral research associate with a strong commitment to working with medically underserved cancer patients, families, and communities. Through this Diversity Supplement, she will gain crucial training in cancer control research focusing on cancer caregiving, challenges of comorbidity management during/after cancer- directed treatment, and advanced statistical analysis. With an eye toward developing interventions to support caregivers in managing patient comorbidities across the cancer control continuum, specific aims of this supplemental research are to: 1) Examine whether patient participation in the parent OPTIMISE (Oncology- Primary Care Partnership to Improve Comprehensive Survivorship Care) enhanced care pathway for comorbidity management results in improved outcomes for caregivers in terms of lower levels of caregiver burden, distress, and financial hardship relative to usual medical care (UMC); 2) Describe the challenges that caregivers face in managing patient comorbidities during cancer-directed treatment; and, 3) Describe the challenges that caregivers experience as the patient transitions from cancer-directed treatment to post-treatment survivorship. Dr. Rangel will achieve these aims by recruiting the caregivers of patients who are eligible and enrolled in the parent OPTIMISE trial and conducting a mixed-methods companion study using caregiver interview and survey data. To supplement the research plan, career development goals include 1) gaining a foundational understanding of cancer control health equity research, 2) develop theoretical and conceptual knowledge in cancer caregiving research, 3) continue developing the methodological and analytical qualitative, quantitative, and mixed methods skills required to conduct rigorous mixed methods research, and 4) acquire professional development skills to support a career as an independent investigator. Along with the valuable training and career development opportunities afforded through this supplement, the findings supported by Dr. Rangel’s research will provide crucial data on the unmet needs of cancer caregivers and enable her to develop a competitive K99/R00 proposal to develop an intervention for caregivers of cancer patients with comorbidities and launch her career as an independent investigator.

项目摘要。本多样性增刊的总体目标是准备并启动玛丽亚博士 莉泽特·兰格尔作为一名独立科学家开始了学术生涯。 Rangel 博士是一位行为科学家 博士后研究员，坚定致力于治疗医疗服务不足的癌症 患者、家庭和社区。通过这份多样性补充，她将获得重要的癌症培训 控制研究重点关注癌症护理、癌症期间/之后合并症管理的挑战- 定向治疗和先进的统计分析。着眼于制定干预措施来支持 护理人员在整个癌症控制过程中管理患者合并症，其具体目标 补充研究的目的是： 1) 检查患者对父母的参与是否优化（肿瘤学- 初级保健合作伙伴关系以改善综合幸存者护理）增强了共病的护理途径 管理可改善护理人员的结果，降低护理人员的负担、痛苦、 以及与常规医疗护理 (UMC) 相关的经济困难； 2) 描述护理人员面临的挑战 在癌症定向治疗期间管理患者合并症； 3) 描述所面临的挑战 当患者从癌症定向治疗过渡到治疗后生存时，护理人员的经历。 Rangel 博士将通过招募符合资格并参加该项目的患者的护理人员来实现这些目标。 家长 OPTIMIZE 试验并使用看护者访谈和调查进行混合方法伴随研究 数据。作为研究计划的补充，职业发展目标包括 1) 获得基础知识 了解癌症控制健康公平研究，2）发展以下方面的理论和概念知识： 癌症护理研究，3) 继续开发定性、定量、 以及进行严格的混合方法研究所需的混合方法技能，以及 4) 获得专业知识 发展技能以支持独立调查员的职业生涯。除了宝贵的培训和 通过本补充提供的职业发展机会，兰格尔博士的研究结果支持 研究将提供有关癌症护理人员未满足的需求的重要数据，并使她能够开发一种 竞争性 K99/R00 提案旨在为患有合并症和癌症患者的护理人员制定干预措施 作为一名独立调查员开始了她的职业生涯。