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Producing an Arthritis Value-framework with economic Evidence - Paving the Way for Rare Childhood Diseases

Producing an Arthritis Value-framework with economic Evidence - Paving the Way for Rare Childhood Diseases
制定具有经济证据的关节炎价值框架——为罕见儿童疾病铺平道路
批准号：
449998
负责人：
Marshall Deborah A
金额：
$21.86万
依托单位：
University of Calgary
依托单位国家：
加拿大
项目类别：
Operating Grants
财政年份：
2021
资助国家：
加拿大
项目状态：
已结题
起止时间：
2021-06-01 至 2024-06-01
来源：
https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=449998&lang=en
关键词：
Childhood Arthritis Economic Evaluation Equity Health Impact Mixed Methods Patient Partners Rare Disease Socioeconomic Burden Unmet Needs Value Framework

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英文摘要
Arthritis in children and youth is a group of rare and ultra-rare diseases. Children of all ages suffer from joint pain, stiffness and swelling slowly destroying they joints and resulting in life-long disability. Pain, decreased mobility and fatigue drama
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