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Study of nursing support for family caregivers of patients with incurable diseases in the context of optimization model

优化模型背景下疑难杂症患者家庭照顾者护理支持研究

基本信息

批准号：
16592207
负责人：
HIRASAWA Noriko
金额：
$ 1.15万
依托单位：
Niigata College of Nursing
依托单位国家：
日本
项目类别：
Grant-in-Aid for Scientific Research (C)
财政年份：
2004
资助国家：
日本
起止时间：
2004 至 2005
项目状态：
已结题

来源：
https://kaken.nii.ac.jp/en/grant/KAKENHI-PROJECT-16592207/
关键词：
Family Nursing Family Caregiver Caregiving Experiences QOL Life incurable diseases establish strategies for fulfilling life 介護者

项目摘要

This study was conducted for a period of two years from 2004 to explore the nursing support system to help the caregivers (wives) of patients with an incurable disease to establish strategies for fulfilling life. In the first year, we interviewed 14 wives to ask about their life course, strategies they applied to their nursing care experience and their quality of life (QOL) in order to obtain basic data for development of a strategy model.The results of the interviews showed that the wives who adopted such positive strategies as continuing to study, volunteer work, or paying attention to their own health management had a better QOL in spite of the progression of their husband's illness and the subsequent increase in the work to provide care.In 2005, we prepared a draft for the "Strategy model for achievement a fulfilling life for wives of husbands with an incurable disease. We had a test operation and evaluation of the created model by interviewing seven wives whose husbands either underwent tracheotomy or died.The results showed that the wives' (i.e. the main family caregivers') acceptance of events was encouraged by relating their worst experience in life to the nursing support provider. Responses indicating the benefits of our strategy model, such as reorganizing life or changing the lifestyle, were observed.

本研究自2004年起为期两年，探讨护理支援系统，以协助不治之症患者的照顾者（妻子）建立充实生活的策略。在第一年，我们访谈了14位太太，询问她们的生命历程、对护理经验所采取的策略及生活质量，以取得发展护理经验策略模式的基础资料。或注意自己的健康管理的妇女生活质量更好，尽管她们的丈夫的疾病进展，随后提供护理的工作增加。2005年，我们起草了“为患有不治之症的丈夫的妻子实现充实生活的战略模式”草案。本研究以七位丈夫接受气管切开或死亡的妻子为对象，进行试作与评估，结果显示，妻子（即主要家庭成员）对事件的接受程度，会因将最糟的生活经验与护理支援提供者相关联而受到鼓励。我们观察到的反应表明我们的战略模型的好处，如重组生活或改变生活方式。