Quality evaluation and improvement on educational and support program for cancer patients and their families

1. 本研究的目的是提高对癌症患者及其家属的支持项目的质量。1)调查癌症患者及其家属出院后对支持项目的需求。结果，65.2%的患者（n =158）期望参与支持计划。2)他们期望从支持计划中获得以下信息；A)关于身体状况和治疗的信息，b)应对不安和担忧的方法，c)如何解决工作和经济困难，d)关于姑息治疗的信息。3)癌症患者自由描述其经历，并对其进行定性分析。因此，从癌症患者的经历中发现了以下几点：A)精神（抑郁，消极，对生活的不确定等），b)身体状况和日常生活，c)患者与家庭的关系，以及社会生活。4)根据调查结果对方案和教材进行修订。此外，我们还召开了进度会议，以提高项目的质量。对癌症患者及其家属的支持项目的过程和结果进行了评估。1)癌症增加的“癌症患者间交流”评价得分。2)在“与有共同感受的同伴一起度过的轻松”和“对痛苦或困难的应对能力的提高”方面均有效果。

1. The purpose of this research was to have improved the quality of the support program intended for the cancer patient and the family.1) We investigated cancer patient and family's needs for the support program after leaving hospital. As a result, 65.2% of the patients( n =158) expected participation in the support program.2) They expected the following information to be obtained from the support program ; a) information on physical conditions and treatments, b) coping way of uneasiness and worry, c) how to settlement of work and economic difficulties, d) information on palliative care.3) The cancer patients freely described their experiences those were qualitatively analyzed. As a result, the following matters have been found from the cancer patient's experience ; a) mental (depression, negation, uncertainty for life and so on), b) physical condition and daily life, c) relations between patient and family, and social life.4) The program and the teaching materials were made revised on the investigation results. Moreover, we held the progress meeting to improve the quality of the program.2. The support program to the cancer patient and the family was evaluated about the process and the outcome.1) The evaluation score of "exchange among cancer patients" for which the cancer has increased.2) And, the effect concerning "ease spent with companion who shares feelings" and "improvement of coping ability to pain or difficulties" were admitted.