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Quality evaluation and improvement on educational and support program for cancer patients and their families

癌症患者及其家属教育和支持计划的质量评估和改进

基本信息

批准号：
16592217
负责人：
UEHARA Masuko
金额：
$ 2.18万
依托单位：
SHINSHU UNIVERSITY
依托单位国家：
日本
项目类别：
Grant-in-Aid for Scientific Research (C)
财政年份：
2004
资助国家：
日本
起止时间：
2004 至 2006
项目状态：
已结题

项目摘要

1. The purpose of this research was to have improved the quality of the support program intended for the cancer patient and the family.1) We investigated cancer patient and family's needs for the support program after leaving hospital. As a result, 65.2% of the patients( n =158) expected participation in the support program.2) They expected the following information to be obtained from the support program ; a) information on physical conditions and treatments, b) coping way of uneasiness and worry, c) how to settlement of work and economic difficulties, d) information on palliative care.3) The cancer patients freely described their experiences those were qualitatively analyzed. As a result, the following matters have been found from the cancer patient's experience ; a) mental (depression, negation, uncertainty for life and so on), b) physical condition and daily life, c) relations between patient and family, and social life.4) The program and the teaching materials were made revised on the investigation results. Moreover, we held the progress meeting to improve the quality of the program.2. The support program to the cancer patient and the family was evaluated about the process and the outcome.1) The evaluation score of "exchange among cancer patients" for which the cancer has increased.2) And, the effect concerning "ease spent with companion who shares feelings" and "improvement of coping ability to pain or difficulties" were admitted.

1.本研究的目的在于改善癌症患者及家属的支援品质。1）调查癌症患者及家属出院后对支援计划的需求。结果显示，65.2%的患者（n =158）期望参与支持计划。2）他们期望从支持计划中获得以下信息; a）关于身体状况和治疗的信息，B）应对不安和担忧的方式，c）如何解决工作和经济困难，（3）癌症患者自由描述自己的经历，并进行定性分析。结果，从癌症患者的经历中发现了以下问题：a）精神（抑郁、否定、对生活的不确定等），B）身体状况和日常生活，c）患者与家庭的关系和社会生活。4）根据调查结果修改了计划和教材。此外，我们召开了进度会议，以提高程序的质量。对癌症患者及其家属的支援计划的过程和结果进行了评价。1）癌症患者的“癌症患者之间的交流”的评价得分提高了。2）承认了“与有共同感受的同伴一起度过的轻松”和“对痛苦或困难的应对能力的提高”的效果。