Study of Psychological Processes and Self-Management Behavior in Patients Suffering from Early Rheumatoid Arthritis

早期类风湿性关节炎患者心理过程及自我管理行为的研究

• 批准号: 20791719
• 负责人: KUSABA Tomoko
• 金额: $ 2.25万
• 依托单位: Kurume University
• 依托单位国家: 日本
• 项目类别: Grant-in-Aid for Young Scientists (B)
• 财政年份: 2008
• 资助国家: 日本
• 起止时间: 2008 至 2010
• 项目状态: 已结题
• 来源: https://kaken.nii.ac.jp/grant/KAKENHI-PROJECT-20791719/
• 关键词: 早期関節リウマチ; 自己管理行動; リハビリテーション

This study was conducted to help identify effective methods of guiding and educating early-stage (one year or less from onset) rheumatoid arthritis (hereafter referred to as RA) sufferers. For this purpose, an analysis was conducted on factors that affect the mental processes and self-management behavior of early-stage RA patients, as well as on the current situation of the guidance given to the patients by healthcare personnel. The awareness of healthcare personnel regarding these issues was also examined.This study found that early-stage RA patients suffer from intense anxiety over their prognosis and over the way their daily life may be affected. Their anxiety is worsened because they do not understand how to proceed with self-management, and they want healthcare personnel to provide them with instruction as to how they should care for themselves. In addition, a survey of outpatient nurses revealed that, although the nurses were aware of the necessity of providing guidance and education for early-stage RA patients, they do not have time to do much about it. Further, there are no guidelines for patient education, and there is limited collaboration with other types of healthcare providers. The survey results suggest the necessity of establishing guidance and education methods and of holding seminars that are designed to enable healthcare personnel to provide early RA patients with mental support and assistance in practicing self-management.

本研究旨在帮助确定指导和教育早期（发病一年或更短时间）类风湿性关节炎（以下简称RA）患者的有效方法。为此，我们分析了影响早期RA患者心理过程和自我管理行为的因素，以及医护人员对患者的指导现状。还审查了保健人员对这些问题的认识。本研究发现，早期RA患者对其预后和日常生活可能受到影响的方式感到强烈焦虑。他们的焦虑加剧，因为他们不知道如何进行自我管理，他们希望医护人员向他们提供指导，告诉他们应该如何照顾自己。此外，一项对门诊护士的调查显示，尽管护士意识到对早期RA患者进行指导和教育的必要性，但他们并没有时间去做很多事情。此外，没有患者教育指导方针，而且与其他类型的医疗保健提供者的合作有限。调查结果表明，有必要建立指导和教育方法，并举办研讨会，使医护人员能够为早期RA患者提供精神支持和帮助，以实践自我管理。

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