Current status of children with brain tumor and their families : For support of family health and development

我们设计并开展了一项多中心横断面观察性研究，对日本138名儿童脑肿瘤幸存者及其父母进行了研究，采用自我报告问卷和认知功能测试。此外，他们的主治医生被要求填写调查表。参与者（特别是18岁以上的参与者）来自社会经济地位较高的家庭，这表明经济限制可能会扰乱幸存者的医院就诊。91名幸存者（66%）有一个或多个晚期效应，35名幸存者（25%）有两个或两个以上晚期效应。他们在成年后仍然需要继续频繁地去医院/诊所就诊。我们将详细分析社会心理/认知数据。

We designed and conducted a multicentre cross-sectional observational study on 138 survivors with pediatric brain tumor and their parents in Japan, using self-report questionnaires and test battery for cognitive functions. In addition, their primary doctors were asked to complete survey sheets. Participants(especially those over 18 years old) were from higher socioeconomic families, which indicated that economic limitation might disrupt survivors' hospital visit. Ninety-one survivors(66%) had one or more late effect, and 35 survivors(25%) had two or more late effect. They still needed to continue frequent hospital/clinic visit in adulthood. We will analyze psychosocial/cognitive data in detail.