权益分类	功能权益	普通用户	{{item.name}}会员
{{category.name}}	{{benefitItem.name}}

QOL of Informal Caregivers of Dementia Patients

痴呆症患者非正式护理人员的生活质量

基本信息

批准号：
09670414
负责人：
TAZAKI Miyako
金额：
$ 1.73万
依托单位：
Science Univ.of Tokyo
依托单位国家：
日本
项目类别：
Grant-in-Aid for Scientific Research (C)
财政年份：
1997
资助国家：
日本
起止时间：
1997 至 1998
项目状态：
已结题

来源：
https://kaken.nii.ac.jp/grant/KAKENHI-PROJECT-09670414/
关键词：
Quality of Life Caregivers WHOQOL Burden of care Dementia patients 在宅介護者

项目摘要

The purpose of the research is to assess physical and mental burden of informal caregivers to take care of dementia patients from the point of view of Quality of Life (QOL) using WHOQOL-BREF instrument in India, Russia, Spain, and Tokyo in order to see how differences of family structure, social and human network, and availability of social welfare services would impact on QOL of caregivers across different societies. In Japan, data collection was conducted in Tokyo, Kobe, Nagasaki, and Okinawa where different sub-culture existed.The target participants are informal caregivers who have taken care of the patients at home who diagnosed as Dementia in Alzheimer's diseases (F00), Vascular dementia (F01), and Dementia in other diseases classified elsewhere by ICD-10 (F) who use a day care services, or short stay services of the institutions. For each dementia patient, data of disease classification, degree of dementia, other psychotic symptoms, and evaluation of problematic behaviors, care situation, social welfare services should be collected. For evaluation of mental and physical aspects of caregivers, GHQ-34 , WHOQOL -BREF will be used. Disease classification, degree of dementia, psychotic symptoms, and problematic behaviors should be diagnosed by a psychiatrists, care situation, and social welfare services and its utilization were answered by caregivers using an instrument to evaluate care situation. As results, it was found that each country had completely different strucutres, but the burden of caregivers regarded heavier in developed countries, and QOL scores differed in terms of the conditions of households, and availability of social services, and economic situations within each country.

本研究的目的是使用WHOQOL-BREF量表从生活质量（QOL）的角度评估印度、俄罗斯、西班牙和东京的非正式照顾者照顾痴呆患者的身心负担，以了解不同社会的家庭结构、社会和人际网络以及社会福利服务的可用性如何影响照顾者的生活质量。在日本，在存在不同亚文化的东京、科比、长崎和冲绳进行了数据收集。目标参与者是在家中照顾被诊断为阿尔茨海默病痴呆（F00）、血管性痴呆（F01）和ICD-10（F）分类的其他疾病痴呆（F）的患者的非正式护理人员，他们使用日托服务，或机构的短期服务。对于每一位痴呆患者，应收集疾病分类、痴呆程度、其他精神病症状、问题行为评价、护理情况、社会福利服务等资料。将使用GHQ-34、WHOQOL -BREF评价护理人员的精神和身体状况。疾病分类、痴呆程度、精神病症状和问题行为应由精神科医生诊断，照顾情况和社会福利服务及其利用由照顾者使用评估照顾情况的工具回答。结果发现，每个国家有完全不同的结构，但照顾者的负担在发达国家更重，生活质量得分在每个国家的家庭条件，社会服务的可用性和经济状况方面存在差异。