Feasibility study to explore the development of an innovative subscription-based dementia resource centre to support families navigating cognitive impairment

Dementia Compass是一家社会企业，在过去的十年里一直致力于为有认知问题的人、他们的照顾者和家庭提供资源支持。随着人口老龄化，我们看到患有痴呆症的人数在增加，我们希望创造一个可持续的资源来扩大我们的能力和覆盖范围。痴呆症是一种渐进性疾病，会随着时间的推移而消失。随着病情的变化，需要的支持也在变化，然而，人们告诉我们他们需要的那种灵活的支持目前根本不存在。在过去十年中，我们与痴呆症患者及其家人一起工作，经常被告知现有的支持开始得太晚，不够灵活，无法随着人们的需求而改变，造成与认知超载和护理负担相关的不必要的健康影响。我们希望改变这种情况。这就是为什么我们建议建立一个以社区为基础的资源中心。这不是一个“医疗”设施。它更像是一个会员健身房或酒店，感染者和他们的家人可以在这里沿着成人学习和社会参与，以及在需要时进行预防性健康和治疗，无论白天还是晚上。而且，像健身房一样，它将通过每月订阅来支付费用，远低于兼职和全职护理的费用（目前，全职住宿护理每年的费用约为4.4万英镑）。我们还不知道这些费用是多少。该项目的一部分将与有认知问题的人，他们的家人，卫生专业人员，研究人员和相关领域的领导者合作，以解决这个问题。通过获得灵活的设施，家庭可以减少这些费用。更重要的是，人们将能够在家中生活更长时间，可以得到适合他们生活的24/7支持，并且可以参与研究表明可以减缓疾病进展的活动和学习。这是创新的，因为它是一种全新的服务提供模式。我们想证明，有一个市场需求，目前没有得到满足。我们希望我们的设施将成为一个示范模型，鼓励其他市场供应，满足日益增长的需求。这就是为什么作为我们计划的一部分，我们将与研究机构合作，评估我们为我们所服务的人所做的工作的有效性。

Dementia Compass is a social venture that has worked for the past decade providing resources to support people living with cognitive issues, their carers, and families.With an ageing population, we are seeing an increase in the number of people with a diagnosis of dementia and want to create a sustainable resource to expand our capacity and reach.Dementia is a progressive disease that worsens over time. As it changes, so too does support required to live well with the condition.However, the sort of flexible support that people tell us that they need simply does not exist at the moment. Over the last decade, working with people who have dementia and their families, we have often been told that support available begins too late and is not flexible enough to change with people's needs creating unnecessary health implications linked to cognitive overload and care burden.We want to change that.That is why we are proposing developing a community-based resource centre. This is not a 'medical' facility. It is more like a members' gym or a hotel, where PLWCI and their families can access adult learning and social engagement along with preventative health and therapy when they need it, day or night.And, like a gym, it will be paid for by a monthly subscription that is far lower than the costs of part-time and full-time care (at present, fulltime residential care costs around £44,000 each year). We don't know what these costs will be yet. Part of this project will be working with people living with cognitive issues, their families, health professionals, researchers and leaders in allied fields to work that out.By having access to a flexible facility, families can reduce these costs. More importantly, people will be able to remain living in their homes for longer, can get 24/7 support that fits their lives, and can engage in activities and learning which research has shown can slow disease progression.This is innovative because it is an entirely new model for service delivery. We want to prove that there is a market need that is not currently being met. Our hope is that our facility will be a demonstrator model which will encourage other market provision, meeting the growing need. That is why as part of our plans we will work with research bodies to evaluate the effectiveness of what we do for the people we serve.