Communication and Coping: Addressing Mothers' Needs to Improve Outcomes in Adolescents with T1D

摘要 2019年新型冠状病毒(SARS-CoV-2)、新冠肺炎的影响以及遏制和缓解 病毒对健康和心理社会后果的影响尚不清楚。它可能会更加严重， 已经面临不良行为健康后果风险的人群，增加了已经 管理1型糖尿病(T1D)的苦恼家庭。我们正在进行的随机临床试验(R01DK11545， 沟通和应对：满足母亲的需求以改善1型青少年的结局 糖尿病)为研究史无前例的新冠肺炎大流行和社会影响提供了一个独特的机会 疏远。我们建议在现有项目的基础上，利用我们目前的样本收集更多 关于新冠肺炎和社交距离要求对青少年影响的详细信息 糖尿病管理以及母亲的压力和应对。我们将通过增加调查项目来实现这些目标 评估新冠肺炎的影响，并对以下母亲和青少年进行定性访谈 经历COVID的低、中、高影响。通过跟踪40个二元体的时间，我们将学习如何 当社交距离要求被满足时，新的惯例和健康行为会持续或终止 减少了。此外，我们将评估母亲使用新冠肺炎的经历如何影响她们的应对方式、社会支持、 和苦恼。这项研究将由一个多学科团队进行，成员包括Sarah Jaser博士、 儿科心理学家和两位合作者：家庭和社区心理学家林赛·梅伯里博士 世卫组织使用混合方法研究糖尿病患者的家庭支持，医学健康博士劳里·诺瓦克 在评估用于管理慢性健康状况的系统以及如何管理方面具有专业知识的人类学家 它们要么得到维护，要么被灾难破坏。拟议的研究可能会让我们的 了解新冠肺炎和社交疏远如何影响母亲痛苦和家庭糖尿病 管理，这具有重要的临床和研究意义。这项研究的结果可能被用来 在不确定时期促进最具适应性的应对和育儿策略。

SUMMARY The impact of the 2019 Novel Coronavirus (SARS-CoV-2), COVID-19, and efforts to contain and mitigate the effects of the virus on health and psychosocial outcomes is unknown. It is likely to be more severe in populations already at risk for adverse behavioral health outcomes, increasing problems among already distressed families managing type 1 diabetes (T1D). Our ongoing randomized clinical trial (R01DK11545, Communication and Coping: Addressing Mothers' Needs to Improve Outcomes in Adolescents with Type 1 Diabetes) offers a unique opportunity to study the effects of the unprecedented COVID-19 pandemic and social distancing. We propose to build on the existing project by leveraging our current sample to collect more detailed information about the impact of COVID-19 and social distancing requirements on adolescents' diabetes management and maternal stress and coping. We will achieve these aims by adding survey items to assess the impact of COVID-19 and conducting qualitative interviews with mother-adolescent dyads who are experiencing low, moderate, and high impact of COVID. By following 40 dyads over time, we will learn how new routines and health behaviors are sustained or discontinued when social distancing requirements are reduced. In addition, we will assess how mothers' experiences of COVID-19 affect their coping, social support, and distress. The study will be conducted by a multidisciplinary team, consisting of Sarah Jaser, PhD, a pediatric psychologist, and two collaborators: Lindsay Mayberry, PhD, a family and community psychologist who uses mixed methods to study family support in diabetes, and Laurie Novak, PhD, a medical health anthropologist with expertise in assessing the systems used in managing chronic health conditions and how they are maintained or disrupted by disasters. The proposed study has the potential to inform our understanding of how COVID-19 and social distancing influences maternal distress and family diabetes management, which has important clinical and research implications. Results from this study may be used to promote the most adaptive coping and parenting strategies during times of uncertainty.