Effect of Covid-19 on Caregivers of Persons with Dementia

Covid-19 对痴呆症患者照顾者的影响

• 批准号: 10220410
• 负责人: Brent Peter Forester
• 金额: $ 44.63万
• 依托单位: JOHNS HOPKINS UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-09-01 至 2022-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10220410
• 关键词: Affect; Agitation; Alzheimer' s Disease; Alzheimer' s disease caregiver; Alzheimer' s disease patient; Assisted Living Facilities; Behavior; Behavioral; COVID-19; COVID-19 pandemic; Caregiver Burden; Caregivers; Caring; Communicable Diseases; Communities; Continuity of Patient Care; Death Rate; Decision Making; Dementia; Dronabinol; Elderly; Employment; Family; Family Caregiver; Family Relationship; Fibrinogen; Formal caregiver; Goals; Guidelines; Health; Healthcare; Healthcare Systems; Home; Infection Control; Institutes; Interview; Long-Term Care; Methods; Morbidity - disease rate; Nature; Nursing Homes; Outpatients; Patient Care; Patients; Personal Satisfaction; Persons; Procedures; Quarantine; Randomized Controlled Trials; Role; Severities; Shelter facility; Stress; Structure; Time; Vaccines; Work; behavior change; caregiving; experience; infection risk; informal caregiver; mortality; pandemic disease; risk mitigation; stressor

The US and its healthcare systems are experiencing an unprecedented crisis through the COVID-19 pandemic that is having a major impact on PWD, their family caregivers, and the front- line professional staff who support them. In many communities, death rates from COVID- 19 disproportionately involve older adults and PWD, especially those living in assisted living facilities and nursing homes. Health workers in these facilities, and caring for older adults at home, are also at risk of infection, morbidity and even mortality.Infection control guidelines and mandates have shut down institutional access to visitors and instituted quarantining procedures that further isolate PWD. Lack of structured activities, sheltering in place, caregiver stressors around employment, finances, and risk mitigation all have the potential to exacerbate behavioral issues in PWD. The nature of the pandemic also creates the need for urgent, real-time decision- making, in the face of an evolving infectious disease that is highly communicable, leads to unpredictable and precipitous declines and for which there is no cure or vaccine. Specific Aims: The goal of this study is to engage family and professional (CNAs,LPNs, RNs) caregivers of PWD across the care continuum (nursing homes, assisted living facilities, and in the community) to study the impact of COVID-19 on the health and well-being of PWD and their caregivers, the caregiving experience and the impact of COVID-19 on patient behaviors and work/family relationships. Through a mixed-methods study involving 600 formal and informal caregivers of PWD residing in the community, in assisted living facilities (ALF) and nursing homes, we will accomplish this goal through the following aims: Aim 1: Describe the caregiver lived experience during the COVID-19 pandemic Aim 2: Examine how COVID-19 related factors (including quarantining, isolation, etc.) have affected caregiver stress. Aim 3: Explore the role of COVD-19 related factors (i.e., PPE, caregiver stress) on behavior changes and severity in PWD. Aim 4: Assess the impact of COVID-19 on caregiver planning and health care decision-making

美国及其医疗体系正在经历一场前所未有的危机

项目成果

Cannabinoids for Agitation in Alzheimer's Disease.

• DOI: 10.1016/j.jagp.2021.01.015
• 发表时间: 2021-12
• 期刊: The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry
• 作者: Outen JD;Burhanullah MH;Vandrey R;Amjad H;Harper DG;Patrick RE;May RL;Agronin ME;Forester BP;Rosenberg PB
• 通讯作者: Rosenberg PB