Effect of Covid-19 on Caregivers of Persons with Dementia

Covid-19 对痴呆症患者照顾者的影响

• 批准号: 10220410
• 负责人: Brent Peter Forester
• 金额: $ 44.63万
• 依托单位: JOHNS HOPKINS UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2016
• 资助国家: 美国
• 起止时间: 2016-09-01 至 2022-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10220410
• 关键词: Affect; Agitation; Alzheimer' s Disease; Alzheimer' s disease caregiver; Alzheimer' s disease patient; Assisted Living Facilities; Behavior; Behavioral; COVID-19; COVID-19 pandemic; Caregiver Burden; Caregivers; Caring; Communicable Diseases; Communities; Continuity of Patient Care; Death Rate; Decision Making; Dementia; Dronabinol; Elderly; Employment; Family; Family Caregiver; Family Relationship; Fibrinogen; Formal caregiver; Goals; Guidelines; Health; Healthcare; Healthcare Systems; Home; Infection Control; Institutes; Interview; Long-Term Care; Methods; Morbidity - disease rate; Nature; Nursing Homes; Outpatients; Patient Care; Patients; Personal Satisfaction; Persons; Procedures; Quarantine; Randomized Controlled Trials; Role; Severities; Shelter facility; Stress; Structure; Time; Vaccines; Work; behavior change; caregiving; experience; infection risk; informal caregiver; mortality; pandemic disease; risk mitigation; stressor

The US and its healthcare systems are experiencing an unprecedented crisis through the COVID-19 pandemic that is having a major impact on PWD, their family caregivers, and the front- line professional staff who support them. In many communities, death rates from COVID- 19 disproportionately involve older adults and PWD, especially those living in assisted living facilities and nursing homes. Health workers in these facilities, and caring for older adults at home, are also at risk of infection, morbidity and even mortality.Infection control guidelines and mandates have shut down institutional access to visitors and instituted quarantining procedures that further isolate PWD. Lack of structured activities, sheltering in place, caregiver stressors around employment, finances, and risk mitigation all have the potential to exacerbate behavioral issues in PWD. The nature of the pandemic also creates the need for urgent, real-time decision- making, in the face of an evolving infectious disease that is highly communicable, leads to unpredictable and precipitous declines and for which there is no cure or vaccine. Specific Aims: The goal of this study is to engage family and professional (CNAs,LPNs, RNs) caregivers of PWD across the care continuum (nursing homes, assisted living facilities, and in the community) to study the impact of COVID-19 on the health and well-being of PWD and their caregivers, the caregiving experience and the impact of COVID-19 on patient behaviors and work/family relationships. Through a mixed-methods study involving 600 formal and informal caregivers of PWD residing in the community, in assisted living facilities (ALF) and nursing homes, we will accomplish this goal through the following aims: Aim 1: Describe the caregiver lived experience during the COVID-19 pandemic Aim 2: Examine how COVID-19 related factors (including quarantining, isolation, etc.) have affected caregiver stress. Aim 3: Explore the role of COVD-19 related factors (i.e., PPE, caregiver stress) on behavior changes and severity in PWD. Aim 4: Assess the impact of COVID-19 on caregiver planning and health care decision-making

美国及其医疗体系正在经历一场前所未有的危机 新冠肺炎大流行，对残疾患者、他们的家庭照顾者和 支持他们的一线专业工作人员。在许多社区，COVID的死亡率- 19不成比例地涉及老年人和残疾人，特别是那些生活在辅助生活中的人 设施和养老院。这些设施中的卫生工作者，并在 也有感染、发病甚至死亡的风险。感染控制指南和 命令已经关闭了机构对访客的准入，并建立了隔离程序 这进一步隔离了PWD。缺乏有组织的活动、适当的庇护、照顾者的压力来源 围绕就业、财务和风险缓解，都有可能加剧行为 PWD中的问题。大流行的性质也产生了对紧急、实时决策的需求。 面对一种高度传染性的不断演变的传染病，导致 不可预测的急剧下降，而且没有治愈方法或疫苗。 具体目标： 本研究的目标是让家庭和专业(CNA、LPN、RN)照顾者参与 护理连续体(养老院、辅助生活设施和社区)中的残障人士 为研究新冠肺炎对残疾人士及其照顾者健康福祉的影响， 护理体验及新冠肺炎对患者行为和工作/家庭的影响 两性关系。通过一项包括600名正式和非正式照顾者的混合方法研究 残疾人士居住在社区、辅助生活设施和护养院，我们会 通过以下目标实现这一目标： 目标1：描述新冠肺炎疫情期间照顾者的生活经历 目标2：检查新冠肺炎相关因素(包括隔离、隔离等)有 受影响的照顾者压力。 目的3：探讨COVD-19相关因素(PPE、照顾者压力)对行为的影响 PWD的变化和严重程度。 目标4：评估新冠肺炎对照顾者规划和医疗决策的影响

项目成果

Cannabinoids for Agitation in Alzheimer's Disease.

• DOI: 10.1016/j.jagp.2021.01.015
• 发表时间: 2021-12
• 期刊: The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry
• 作者: Outen JD;Burhanullah MH;Vandrey R;Amjad H;Harper DG;Patrick RE;May RL;Agronin ME;Forester BP;Rosenberg PB
• 通讯作者: Rosenberg PB