Development of an Intervention for Long-Distance Caregivers

为远程护理人员制定干预措施

• 批准号: 10300258
• 负责人: Verena Cimarolli
• 金额: $ 14.1万
• 依托单位: LEADINGAGE, INC.
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-09-15 至 2023-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10300258
• 关键词: Address; Adult; Advisory Committees; Alzheimer' s disease related dementia; Behavior Therapy; Behavioral Model; Caregiver Burden; Caregivers; Caring; Characteristics; Clinical Trials; Committee Members; Communities; Data Collection; Dementia; Development; Elderly; Emotional; Ensure; Ethnic group; Evaluation; Evidence based intervention; Family Caregiver; Feasibility Studies; Fostering; Foundations; Funding; Geography; Goals; Home; Home Care Agencies; Home Health Aides; Hour; Impaired cognition; Individual; Intervention; Intervention Studies; Knowledge; Manuals; Mental Health; Modeling; Modification; Outcome; Outcome Measure; Participant; Personal Satisfaction; Procedures; Process; Provider; Public Health; Randomized Controlled Trials; Research; Role; Sampling; Services; Stress; Stress and Coping; Tablets; Technology; Testing; Training; United States National Institutes of Health; base; care recipients; caregiver interventions; caregiving; caregiving research; design; efficacious intervention; efficacy testing; ethnic diversity; evidence base; experience; family caregiving; feasibility testing; improved; insight; intervention effect; knowledge base; new technology; patient home care; primary caregiver; psychosocial; racial and ethnic; racial diversity; recruit; remote delivery; response; social culture; socioeconomics; therapy design; therapy development; usability

Project Summary Prior caregiving research has mostly focused on geographically close caregivers of older adults with Alzheimer’s disease and related dementias (AD/ADRD), not considering the unique circumstances of long-distance caregivers (LDCs). However, from our previously funded R21 on long-distance caregiving (LDC; NIA; R21- AG050018) we know that a large proportion of LDCs helped care recipients (CRs) with significant cognitive impairment who were community-dwelling and that these LDCs experienced significant caregiver burden. Hence, there is a need to develop psycho-social interventions that can meet the specific needs of LDCs. This R21 application in response to PAR-19-071 seeks to draw on the knowledge gained in our previous R21 study to adapt an existing evidence-based caregiver intervention (Community REACH) to the needs and circumstances of LDCs and to test the feasibility of implementing such an adapted model in the field. Following the NIH Stage Model for Behavioral Intervention Development, the first objective of this application is to develop a novel technology-based, remotely delivered psychosocial intervention for LDCs of older adults with AD/ADRD living in the community, by adapting an existing intervention developed for proximate caregivers (Stage IA) based on findings from our previous NIA funded study on LDC (Stage 0). A second objective is to conduct feasibility testing of such an intervention in the field (Stage IB). Our long-term research goal is to implement a randomized controlled trial testing the potential of a technology-based, remotely delivered intervention for LDC of individuals with AD/ADRD living at home. The current application focuses on Stage I (behavioral intervention development and feasibility testing) and is the next step toward attainment of our long-term goal of testing the efficacy of such an intervention utilizing a randomized controlled trial (Stage II and III – efficacy testing). The development of the intervention through adaptation of Community REACH to the needs of LDCs will be achieved by creating an advisory committee of caregiving experts. Committee members will be asked to help integrate a set of specific findings from our Stage 0 study related to the challenges of LDC into the Community REACH intervention plan. The sample of LDCs (N=40) for the feasibility study will be drawn from family caregivers of community-dwelling older adults with AD/ADRD receiving non-medical home care via the access to home care agencies serving racially and ethnically diverse older adults with dementia. This will ensure that home care aides can support CRs in managing the technology (tablet) used to connect LDCs with CRs and aides as part of the intervention. We will identify LDCs living 2+ hours away who experience significant caregiver burden and invite them to participate in the intervention and feasibility study. The intervention will be delivered remotely by staff of the Family Caregiver Alliance (FCA). Project outcomes will advance the field by addressing a significant knowledge gap and providing a foundation for the design, implementation, and evaluation of LDC-specific psychosocial interventions that can have a long-term impact on the well-being of LDCs and the older adults for whom they care.

项目总结