2021 Pediatric Dermatology Research Alliance (PeDRA) Annual Conference

2021年小儿皮肤病学研究联盟（PeDRA）年会

• 批准号: 10318476
• 负责人: Yvonne E Chiu
• 金额: $ 6.02万
• 依托单位: PEDIATRIC DERMATOLOGY RESEARCH ALLIANCE, INC
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-08-16 至 2022-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10318476
• 关键词: Address; Affect; Area; Caring; Child; Child Welfare; Childhood; Clinical; Collaborations; Data; Dermatologic; Dermatology; Disease; Disease Management; Education; Exposure to; FDA approved; Family; Foundations; Goals; Growth; Health; Industry; Institution; Lead; Mentors; Mission; Natural History; Oral; Outcome; Patient Representative; Patient advocacy; Patients; Physicians; Productivity; Research; Research Personnel; Research Priority; Research Project Grants; Scientist; Standardization; Therapeutic; Time; Treatment Protocols; Update; Vision; Well in self; Work; burden of illness; care providers; digital; evidence based guidelines; healing; improved; infancy; innovation; interest; knowledge base; lectures; medical specialties; meetings; novel; patient population; posters; prevent; research and development; skills; skin disorder; social; success; symposium; therapeutic development

PROJECT SUMMARY Pediatric dermatology is a relatively young specialty that has lacked robust data about the natural history and long-term outcomes of skin disorders that begin in infancy and childhood. In addition, evidence-based guidelines of care, standardized treatment protocols, and FDA approved therapies for the majority of pediatric dermatologic disorders are sparse. The Pediatric Dermatology Research Alliance (PeDRA) was founded in 2012 to address these crucial yet unmet needs. PeDRA's primary mission is to create, inspire, and sustain research to prevent, treat, and cure childhood skin disease. The long-term goal of PeDRA is to leverage such research to improve the health outcomes of children with skin disorders. Annual conferences have been integral to the success of PeDRA, providing a forum for educating investigators, identifying and prioritizing research needs and opportunities, and developing and initiating innovative projects. A combination of didactic lectures, expert-led interactive discussions, panel and poster sessions, and disease-focused small-group sessions are the foundation of PeDRA's meetings. This proposal is for the 9th PeDRA Annual Conference, set to take place in October of 2021 with the following aims: 1) Provide education to pediatric dermatology investigators on engagement with a broad and diverse group of collaborators; 2) Advance existing research projects and develop new research priorities within PeDRA's focus areas; and 3) Provide a forum for the dissemination of final and ongoing research results from a broad group of investigators to a diverse audience that includes patient stakeholders, industry representatives, and researchers from multiple fields. The expected outcome of this meeting will be valuable interactions and partnerships that will enhance the productivity of researchers in pediatric dermatology and lead to the conduct of impactful, high-quality studies. These activities will accelerate the pace of pediatric dermatology research, allowing clinicians to better understand, prevent and treat skin disease in children, and giving patients and families options to manage disease and make informed treatment decisions.

项目摘要 儿科皮肤病学是一个相对年轻的专业，缺乏关于自然史的可靠数据， 开始于婴儿期和儿童期的皮肤病的长期结果。此外，循证 护理指南，标准化的治疗方案，以及FDA批准的大多数儿科 皮肤病很少。儿科皮肤病学研究联盟（Pediatric Dermatology Research Alliance）成立于 2012年，我们将努力满足这些尚未满足的关键需求。佩德拉的主要使命是创造、激励和维持 预防、治疗和治愈儿童皮肤病的研究。佩德拉的长期目标是利用 研究以改善患有皮肤病的儿童的健康状况。年度会议已 必不可少的成功佩德拉，提供了一个论坛，教育调查人员，确定和优先考虑 研究需求和机会，以及开发和启动创新项目。一种教学方法的结合 讲座、专家主导的互动讨论、小组讨论和海报展示会以及以疾病为重点的小组讨论 会议是佩德拉会议的基础。本提案是为第九届佩德拉年会提出的， 将于2021年10月举行，目的如下：1）为儿科皮肤病学提供教育 研究人员与广泛而多样化的合作者群体接触; 2）推进现有研究 项目和开发新的研究优先事项在佩德拉的重点领域;和3）提供一个论坛， 向不同的受众传播广泛的研究人员群体的最终和正在进行的研究结果 其中包括患者利益相关者、行业代表和来自多个领域的研究人员。预期 本次会议的成果将是宝贵的互动和伙伴关系，将提高生产力 儿科皮肤病学研究人员，并导致进行有影响力的，高质量的研究。这些活动 将加快儿科皮肤病学研究的步伐，使临床医生能够更好地了解，预防和 治疗儿童皮肤病，并为患者和家庭提供控制疾病的选择， 治疗决定。