2021 Pediatric Dermatology Research Alliance (PeDRA) Annual Conference
2021 Pediatric Dermatology Research Alliance (PeDRA) Annual Conference
批准号:
10318476
负责人:
Yvonne E Chiu
金额:
$6.02万
依托单位国家:
美国
项目类别:
财政年份:
2021
资助国家:
美国
项目状态:
已结题
起止时间:
2021-08-16 至 2022-07-31
关键词:
AddressAffectAreaCaringChildChild WelfareChildhoodClinicalCollaborationsDataDermatologicDermatologyDiseaseDisease ManagementEducationExposure toFDA approvedFamilyFoundationsGoalsGrowthHealthIndustryInstitutionLeadMentorsMissionNatural HistoryOralOutcomePatient RepresentativePatient advocacyPatientsPhysiciansProductivityResearchResearch PersonnelResearch PriorityResearch Project GrantsScientistStandardizationTherapeuticTimeTreatment ProtocolsUpdateVisionWell in selfWorkburden of illnesscare providersdigitalevidence based guidelineshealingimprovedinfancyinnovationinterestknowledge baselecturesmedical specialtiesmeetingsnovelpatient populationposterspreventresearch and developmentskillsskin disordersocialsuccesssymposiumtherapeutic development
中文摘要
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英文摘要
PROJECT SUMMARY
Pediatric dermatology is a relatively young specialty that has lacked robust data about the natural history and
long-term outcomes of skin disorders that begin in infancy and childhood. In addition, evidence-based
guidelines of care, standardized treatment protocols, and FDA approved therapies for the majority of pediatric
dermatologic disorders are sparse. The Pediatric Dermatology Research Alliance (PeDRA) was founded in
2012 to address these crucial yet unmet needs. PeDRA's primary mission is to create, inspire, and sustain
research to prevent, treat, and cure childhood skin disease. The long-term goal of PeDRA is to leverage such
research to improve the health outcomes of children with skin disorders. Annual conferences have been
integral to the success of PeDRA, providing a forum for educating investigators, identifying and prioritizing
research needs and opportunities, and developing and initiating innovative projects. A combination of didactic
lectures, expert-led interactive discussions, panel and poster sessions, and disease-focused small-group
sessions are the foundation of PeDRA's meetings. This proposal is for the 9th PeDRA Annual Conference, set
to take place in October of 2021 with the following aims: 1) Provide education to pediatric dermatology
investigators on engagement with a broad and diverse group of collaborators; 2) Advance existing research
projects and develop new research priorities within PeDRA's focus areas; and 3) Provide a forum for the
dissemination of final and ongoing research results from a broad group of investigators to a diverse audience
that includes patient stakeholders, industry representatives, and researchers from multiple fields. The expected
outcome of this meeting will be valuable interactions and partnerships that will enhance the productivity of
researchers in pediatric dermatology and lead to the conduct of impactful, high-quality studies. These activities
will accelerate the pace of pediatric dermatology research, allowing clinicians to better understand, prevent and
treat skin disease in children, and giving patients and families options to manage disease and make informed
treatment decisions.
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