Social media use and social support among adolescent siblings of children with cancer

癌症儿童青少年兄弟姐妹的社交媒体使用和社会支持

• 批准号: 10326344
• 负责人: Sarah E Wawrzynski
• 金额: $ 2.11万
• 依托单位: UNIVERSITY OF UTAH
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-01-01 至 2022-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10326344
• 关键词: 18 year old; Address; Adolescent; Adolescent Development; Affect; Age; Aggressive behavior; Anxiety; Attention; Award; Cancer Family; Child; Childhood Cancer Treatment; Chronic; Chronic stress; Consent; Data; Databases; Development; Diagnosis; Discipline of Nursing; Doctor of Philosophy; Emotional; Environment; Equation; Evaluation; Family; Family member; Friends; Funding; Future; Health; Healthcare; Image; Institutes; Intervention Studies; Interview; Knowledge; Lead; Learning; Life; Loneliness; Malignant Childhood Neoplasm; Malignant Neoplasms; Maps; Measures; Mediating; Medical; Mental Depression; Methods; Modeling; Monitor; Outcome; Parents; Participant; Perception; Performance; Persons; Play; Post-Traumatic Stress Disorders; Quality of life; Questionnaires; Reporting; Research; Research Methodology; Resources; Risk; Role; Sampling; Schools; Secure; Severities; Siblings; Social Adjustment; Social Network; Social Perception; Social support; Source; Structure; Support System; Surveys; Symptoms; Text; Time; Training; United States National Institutes of Health; Universities; Utah; Validation; Visual; age group; behavioral outcome; cancer diagnosis; care giving burden; caregiving research; college; design; emotional adjustment; experience; improved; interdisciplinary collaboration; meetings; physical symptom; programs; prospective; psychosocial; psychosocial adjustment; recruit; research and development; skills; social; social media; social observations; social relationships; social stress; stress management; support network

Project Summary/Abstract Being a sibling of a child diagnosed with cancer can be a lonely and unsettling experience. Necessarily, parents, other family and members of their social networks turn their attention to meeting the medical and support needs of the child diagnosed with cancer. Siblings of children with cancer have demonstrated a variety of poor psychosocial maladjustments including anxiety, depression, alienation, poor school functioning and lower quality of life. At the same time, up to 85% of adolescents report social media access and use, with many stating they are online multiple times a day. Emerging research suggests that these social media-mediated relationships and interactions (i.e., social networks) may serve as critical sources of support for this age group, and influence health outcomes more generally. According to the stress-buffering hypothesis, the perception of social support is a key factor in psychosocial outcomes in adolescents and their adjustment to living in a family affected by cancer. This proposal addresses two critical research objectives that have not been investigated among siblings of children with cancer. 1) Describe the role of social media within SoCwC’s self-identified social support network and 2) Examine how SM use influences the relationship between online social support and psychosocial adjustment. A mixed method approach will utilize semi- structured interviews with siblings to map their social eco-networks, observation of social media interactions, which will inform a quantitative assessment of social support, social media use and psychosocial adjustment. This study will identify ways in which social media support can be leveraged in meaningful ways for future interventions, study, and support among sibling of children with cancer. Training Plan: The proposed training aims to be achieved during the award period are: 1) Acquire theoretical and substantive knowledge relevant to the interplay of social relationships and stress on the psychosocial adjustment of children; 2) Apply and refine essential research skills related to working with and engage children, adolescents, and their families affected by cancer in research; 3) Design and develop a secure and efficient database and an online survey that will be used to screen, consent, and collect data. Learn and apply structural equation modeling to survey data gathered; 4) Learn research methods for assessing social networks and social media data that can be applied in my future program of research. Environment: The College of Nursing at the University of Utah has a strong nursing PhD program well known for their NIH funding and its focus on cancer and family caregiving research. Further, the University provides numerous opportunities for interdisciplinary collaboration for training for professional development and research including affiliation with Intermountain Healthcare and Huntsman Cancer Institute.

项目总结/文摘

项目成果

Bringing Together a Transdisciplinary Team to Create and Advance a Shared Vision for Research and Support for Siblings of Youth With Cancer.

组建一个跨学科团队，创建和推进共同的愿景，为患有癌症的青少年兄弟姐妹提供研究和支持。

• DOI: 10.1177/27527530221121727
• 发表时间: 2023
• 期刊: Journal of pediatric hematology/oncology nursing
• 作者: Amaro,ChristinaM;Alderfer,MelissaA;Gerhardt,CynthiaA;Wawrzynski,SarahE;Goldish,Melanie;Long,KristinA
• 通讯作者: Long,KristinA

Technology-Mediated Support Among Siblings of Children with Cancer.

癌症儿童兄弟姐妹中的技术介导支持。

• DOI: 10.1089/jayao.2022.0151
• 发表时间: 2023
• 期刊: Journal of adolescent and young adult oncology
• 影响因子: 2
• 作者: Wawrzynski,SarahE;Alderfer,MelissaA;Waters,AustinR;Linder,Lauri;Reblin,Maija;Guo,Jia-Wen;Litchman,Michelle;Cloyes,KristinG
• 通讯作者: Cloyes,KristinG

The Social Networks and Social Support of Siblings of Children with Cancer.

• DOI: 10.3390/children9010113
• 发表时间: 2022-01-15
• 期刊: Children (Basel, Switzerland)
• 作者: Wawrzynski SE;Alderfer MA;Kvistad W;Linder L;Reblin M;Guo JW;Cloyes KG
• 通讯作者: Cloyes KG

Social isolation and Social Media Consumption among Graduate students during COVID-19: An Examination using Social Comparison Theory.

COVID-19期间研究生的社会隔离和社交媒体消费：使用社会比较理论的考试。

• DOI: 10.29011/2688-9501.101257
• 发表时间: 2021
• 期刊: International journal of nursing and health care research
• 作者: Sisler,Shawna;Kent-Marvick,Jacqueline;Wawrzynski,SarahE;Pentecost,Ryoko;Coombs,LorindaA
• 通讯作者: Coombs,LorindaA

Prevalence of specialised palliative care consultation for eligible children within a paediatric cardiac ICU.

• DOI: 10.1017/s1047951121000433
• 发表时间: 2021-09
• 期刊: Cardiology in the young
• 影响因子: 1
• 作者: Delgado-Corcoran C;Bennett EE;Bodily SA;Wawrzynski SE;Green D;Moore D;Cook LJ;Olson LM
• 通讯作者: Olson LM