An Effectiveness-Implementation Trial of SPIRIT in ESRD

SPIRIT 在 ESRD 中的有效性实施试验

基本信息

  • 批准号:
    10361836
  • 负责人:
  • 金额:
    $ 9.35万
  • 依托单位:
  • 依托单位国家:
    美国
  • 项目类别:
  • 财政年份:
    2017
  • 资助国家:
    美国
  • 起止时间:
    2017-06-01 至 2024-03-31
  • 项目状态:
    已结题

项目摘要

ABSTRACT This R01 supplement submitted in response to NOT-OD-20-097, Research on the 2019 Novel Coronavirus and the Behavioral and Social Sciences, addresses one of the four focused areas specified in the notice: to examine “downstream health impacts resulting from social, behavioral, and economic impacts, including differences in risks and resiliency based on gender, race and ethnicity, socioeconomic status, and other social determinants of health.” The COVID pandemic has brought fear and uncertainty to all aspects of life and especially to medical care. Research has shown that after experiencing a natural disaster, people exhibit more risk averse behaviors, and that belief systems can change: people “update” their perception of background risk and perceive the world to be a much riskier place. Although studies have shown that values and preferences for end-of-life care are stable over time especially after individuals made an effort to actively think about their end-of-life preferences, another body of literature suggests that abrupt and disturbing social changes, such as disasters, can affect the psychological mechanisms underlying cognitive performance. The effects of a disaster may bring doubt to clinicians as well as to families regarding how to interpret an advance directive or end-of-life care preferences that were expressed some time prior to the pandemic. There is very little empirical data to guide advance care planning (ACP) with our sickest patients in the setting of a disaster and especially one that is so novel. Therefore, we seek to learn whether in the setting of this novel disaster patients with serious chronic illness are more or less likely to want aggressive treatment. This supplement research is to generate new empirical data on the impact of the COVIDE-19 pandemic on patients' end-of-life preferences, to address whether the stability of preferences is disrupted by the pandemic, and to identify patient characteristics, including race/ethnicity, associated with pre-/post-pandemic changes. We will leverage the parent study (R01NR017018), a cluster randomized trial of an evidence-based ACP intervention (SPIRIT), in which we are currently following 143 dyads (65% Blacks) who successfully completed both the baseline and 2- week post-intervention follow-up before the outbreak. In this new longitudinal cohort study, we will recruit 100 dyads from the pool of 143 to repeat the study assessment battery 2 more times along with new COVID-19 Stress Scales. The specific aims are to: 1) compare the stability of patients' goals-of-care preferences over time, from pre-outbreak to during-outbreak, by group (SPIRIT vs control) and estimate effect by race (Blacks and Whites); 2) assess the stability in the preparedness outcomes (dyad congruence, patient decisional conflict, and surrogate decision-making confidence) comparing pre-outbreak to during-outbreak by group, and estimate race effect; and 3) examine the associations of the COVID-19 Stress, sex, race/ethnicity, and other sociodemographic characteristics (e.g., education level, income) to change in the outcomes and the stability of patients' goals-of-care preferences after the COVID-19 outbreak.
摘要

项目成果

期刊论文数量(4)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
C-The Missing Tenet Within the ABCDEF Bundle.
C-ABCDEF 捆绑包中缺失的原则。
  • DOI:
    10.1097/ccm.0000000000004311
  • 发表时间:
    2020
  • 期刊:
  • 影响因子:
    8.8
  • 作者:
    Patak,Lance;Tate,JudithA;Happ,MaryBeth
  • 通讯作者:
    Happ,MaryBeth
Informal Caregiving Networks of Older Adults With Dementia Superimposed on Multimorbidity: A Social Network Analysis Study.
  • DOI:
    10.1093/geroni/igad033
  • 发表时间:
    2023
  • 期刊:
  • 影响因子:
    7
  • 作者:
    Song, Mi-Kyung;Paul, Sudeshna;Happ, Mary Beth;Lea, Janice;Pirkle, James L.;Turberville-Trujillo, Linda
  • 通讯作者:
    Turberville-Trujillo, Linda
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MI-KYUNG SONG其他文献

MI-KYUNG SONG的其他文献

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{{ truncateString('MI-KYUNG SONG', 18)}}的其他基金

Center for the Study of Symptom Science, Metabolomics and Multiple Chronic Conditions
症状科学、代谢组学和多种慢性病研究中心
  • 批准号:
    9763654
  • 财政年份:
    2018
  • 资助金额:
    $ 9.35万
  • 项目类别:
An Effectiveness-Implementation Trial of SPIRIT in ESRD
SPIRIT 在 ESRD 中的有效性实施试验
  • 批准号:
    10205754
  • 财政年份:
    2017
  • 资助金额:
    $ 9.35万
  • 项目类别:
An Effectiveness-Implementation Trial of SPIRIT in ESRD
SPIRIT 在 ESRD 中的有效性实施试验
  • 批准号:
    9301866
  • 财政年份:
    2017
  • 资助金额:
    $ 9.35万
  • 项目类别:
Preparation for End of Life Decision Making in Mild Alzheimer's Disease
轻度阿尔茨海默病临终决策的准备
  • 批准号:
    9922847
  • 财政年份:
    2017
  • 资助金额:
    $ 9.35万
  • 项目类别:
An Effectiveness-Implementation Trial of SPIRIT in ESRD
SPIRIT 在 ESRD 中的有效性实施试验
  • 批准号:
    9890004
  • 财政年份:
    2017
  • 资助金额:
    $ 9.35万
  • 项目类别:
Preparation for End of Life Decision Making in Mild Alzheimer's Disease
轻度阿尔茨海默病临终决策的准备
  • 批准号:
    9423416
  • 财政年份:
    2017
  • 资助金额:
    $ 9.35万
  • 项目类别:
Mapping Multidimensional Illness Trajectories of Patients With ESKD
绘制 ESKD 患者的多维疾病轨迹
  • 批准号:
    8521388
  • 财政年份:
    2011
  • 资助金额:
    $ 9.35万
  • 项目类别:
Mapping Multidimensional Illness Trajectories of Patients With ESKD
绘制 ESKD 患者的多维疾病轨迹
  • 批准号:
    8257799
  • 财政年份:
    2011
  • 资助金额:
    $ 9.35万
  • 项目类别:
Mapping Multidimensional Illness Trajectories of Patients With ESKD
绘制 ESKD 患者的多维疾病轨迹
  • 批准号:
    8725529
  • 财政年份:
    2011
  • 资助金额:
    $ 9.35万
  • 项目类别:
Mapping Multidimensional Illness Trajectories of Patients With ESKD
绘制 ESKD 患者的多维疾病轨迹
  • 批准号:
    8339362
  • 财政年份:
    2011
  • 资助金额:
    $ 9.35万
  • 项目类别:
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