Facebook Intervention for Young Onset Melanoma Patients and Families

摘要 这项研究的重点是改善年轻发病者的防晒和皮肤监测措施。 黑色素瘤幸存者及其一级亲属（FDR）。作为一个群体，年轻的发病幸存者 被国家癌症研究所确定为一个独特的和不断增长的人群。幸存者的相对死亡率 第二个恶性肿瘤的风险高于39岁以上诊断患有癌症的成年人。年轻的FDR 黑素瘤患者患黑素瘤的风险增加。黑色素瘤幸存者和他们的FDR应该参与 定期全面皮肤检查、全面皮肤自我检查和防晒。尽管他们 增加的风险和事实，这一人口正在增长，FDR支付相对较少的注意防晒 和皮肤监视行为。尽管绝大多数年轻的黑色素瘤幸存者参与了 定期全面皮肤检查，许多人不定期进行皮肤自我检查或防晒。没有 针对独特和不断增长的年轻发病幸存者及其FDR人群的干预研究。 拟议的研究扩展了有效的行为干预，以改善总皮肤检查，皮肤自我， 考试，防晒行为之间的幸存者的所有年龄段的年轻发病患者和他们的 FDR。我们将通过Facebook上的秘密小组提供干预措施，这些小组由FDR和年轻发病者组成。 来自多个家庭的患者。我们的试点工作表明，我们可以让家庭参与Facebook群组。我们 将577名FDR和583名年轻发病的幸存者随机分为两个研究组：一个12周的年轻 黑色素瘤家庭Facebook干预或12周健康生活方式Facebook干预。参与者 将完成基线、干预后和6个月干预后调查。这项研究有一个主要的 还有两个次要目标主要目的是检查年轻黑色素瘤家族的疗效 Facebook干预与健康生活方式Facebook干预对总皮肤检查（主要）的影响 结果），皮肤自我检查频率和全面性，以及防晒措施（次要 年轻黑色素瘤幸存者的FDR结果）。第二个目标（幸存者）是检查 年轻的黑色素瘤家庭Facebook干预患者的皮肤自我检查频率， 全面性和防晒习惯。另一个次要目的是研究 干预效果

Abstract The proposed study focuses on improving sun protection and skin surveillance practices among young onset melanoma survivors and their first degree relatives (FDRs). As a group, young onset survivors have been identified by the National Cancer Institute as a unique and growing population. Survivors are at higher relative risk for a second malignancy than adults diagnosed with cancer over 39 years of age. FDRs of young melanoma patients are at increased risk for melanoma. Melanoma survivors and their FDRs should engage in regular total cutaneous exams, comprehensive skin self-examinations, and sun protection. Despite their increased risk and the fact that this population is growing, FDRs pay relatively little attention to sun protection and skin surveillance behaviors. Although the vast majority of young onset melanoma survivors engage in regular total cutaneous exams, many do not engage in regular skin self-exams or sun protection. There is no intervention research targeting the unique and growing population of young onset survivors and their FDRs. The proposed study expands an effective behavioral intervention to improve total cutaneous exams, skin self- exams, and sun protection behaviors among FDRs of survivors of all ages to young onset patients and their FDRs. We will deliver the intervention via secret groups on Facebook comprised of FDRs and young onset patients from multiple families. Our pilot work demonstrates we can engage families in a Facebook group. We will randomize 577 FDRs and 583 young onset survivors to one of two study arms: a 12-week Young Melanoma Family Facebook intervention or a 12-week Healthy Lifestyle Facebook intervention. Participants will complete a baseline, post-intervention, and a 6-month post-intervention survey. The study has one primary and two secondary aims. The primary aim (FDRs) is to examine the efficacy of the Young Melanoma Family Facebook intervention versus the Healthy Lifestyle Facebook intervention on total cutaneous exam (primary outcome), skin self-exam frequency and comprehensiveness, and sun protection practices (secondary outcomes) of FDRs of young melanoma survivors. A secondary aim (survivors) is to examine the efficacy of the Young Melanoma Family Facebook intervention on patients' skin self-exam frequency and comprehensiveness and sun protection habits. Another secondary aim is to examine the mechanisms of intervention efficacy.