Outreach, Recruitment and Engagement Core

外展、招聘和参与核心

• 批准号: 10413835
• 负责人: John Lucas
• 金额: $ 30.96万
• 依托单位: MAYO CLINIC ROCHESTER
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-07-01 至 2024-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10413835
• 关键词: Address; Advance Care Planning; Advanced Development; African American; African American population; Alzheimer' s Disease; Americas; Awareness; Back; Caregiver support; Caregivers; Caring; Centers of Research Excellence; Cities; Clinic; Clinical; Communities; Community Developments; Community Healthcare; Community Outreach; Dementia; Development; Disease; Disease Progression; Education; Educational Curriculum; Enrollment; Ensure; Event; Family; Florida; Fostering; Frontotemporal Dementia; Genetic; Geography; Goals; Grant; International; Intervention; Investigation; Knowledge; Lewy Body Dementia; Lewy Body Disease; Methods; Minority Health Research; Modeling; Molecular; Neurodegenerative Disorders; Neurology; Outcome; Palliative Medicine; Participant; Patient Education; Patients; Personal Satisfaction; Persons; Play; Population; Procedures; Program Evaluation; Quality of life; Research; Research Personnel; Role; Science; Service delivery model; Services; Site; Social isolation; Training; Translating; Underrepresented Populations; Vision; Work; base; caregiver education; clinical practice; community based participatory research; coping; dementia care; dementia risk; education research; empowered; ethnic minority; experience; health care delivery; improved; innovation; interdisciplinary collaboration; loved ones; neuroimaging marker; neuropathology; next generation; novel; novel therapeutics; outreach; participant retention; professor; programs; recruit; skills; social; social influence; social stigma; success; symposium

PROJECT SUMMARY/ABSTRACT - OUTREACH, RECRUITMENT AND ENGAGEMENT CORE The Outreach, Recruitment, and Engagement (ORE) Core serves an essential role in the Mayo Clinic Alzheimer's Disease Research Center (ADRC) by: (1) facilitating recruitment and retention of diverse participants into the clinical, neuroimaging, biomarker, and neuropathology studies of center, (2) developing and evaluating innovative support programs for persons with Alzheimer's disease (AD) & AD-related disorders (ADRD) and their loved ones, and (3) advancing efforts to raise awareness and prepare communities to better manage and support residents with AD & ADRD and their families through community-based solutions. Operating at two geographically distinct sites in a coordinated fashion, ORE Core efforts meet center goals through targeted, site- specific activities in Jacksonville, FL (MCF) and Rochester, MN (MCR). Overall center recruitment is managed through the clinical practices of Clinical Core investigators, allowing ORE Core to focus recruitment efforts specifically on African Americans in the local Jacksonville community. These efforts are supported through activities and events developed and delivered in partnership with the Mayo Clinic ADRC African American Community Outreach & Advisory Board, the executive board and Vision Keepers of Jacksonville's New Town Success Zone, the City of Jacksonville's Dementia Care & Cure Initiative, the Central & North Florida chapter of the Alzheimer's Association, and local caregiver support agencies. We will foster retention of African American participants through a new collaborative effort with Clinical Core to provide advanced care planning services for these participants. To foster retention and inform best practices in patient and caregiver education, MCR ORE Core will continue to develop and refine innovative care programs in which participants will play a central role in identifying goals and evaluating outcomes. These efforts will focus primarily on persons with Lewy Body Disorders and Frontotemporal Dementia to reflect our center theme of Similarities and Differences Among Neurodegenerative Diseases. Retention events such as annual participant appreciation luncheons will continue at both sites. To increase community awareness and address threats to the well-being of persons with AD & ADRD, we will continue to foster the development of community-based solutions through the Dementia Friendly Community (DFC) framework of our outreach and engagement efforts. We will evaluate the impact of these programs on social constructs that negatively impact disease progression and quality of life, and we will continue efforts to implement and evaluate the impact of the DFC model in an African American community.

项目概要/摘要-外展、招募和参与核心 外展、招聘和参与（ORE）核心在 马约诊所阿尔茨海默病研究中心（ADRC）通过：（1）促进招募和 将不同的参与者保留在临床、神经影像学、生物标志物和神经病理学中 研究中心，（2）开发和评估创新的支持计划，为人与 阿尔茨海默病（AD）和AD相关疾病（ADRD）及其亲人，以及（3） 努力提高认识，使社区做好准备，更好地管理和支持AD居民 和ADRD及其家庭通过基于社区的解决方案。在两个地理位置上运行 以协调的方式，ORE核心工作通过有针对性的， 在佛罗里达州杰克逊维尔（MCF）和明尼苏达州罗切斯特（MCR）开展具体活动。总体中心招募情况为 通过临床核心研究者的临床实践进行管理，使ORE核心能够专注于 专门针对杰克逊维尔当地社区的非裔美国人的招聘工作。这些 通过与联合国开发计划署合作制定和实施的活动和活动， 马约诊所 和杰克逊维尔新城成功区的视觉守护者，杰克逊维尔的痴呆症城市 护理和治疗倡议，中央和北佛罗里达章阿尔茨海默氏症协会，和当地 照顾者支助机构。我们将通过一个新的方案， 与临床中心合作，为这些患者提供高级护理计划服务， 参与者为了促进保留并告知患者和护理人员教育的最佳实践，MCR ORE核心将继续开发和完善创新的护理计划，参与者将发挥 在确定目标和评估结果方面发挥核心作用。这些努力将主要侧重于 路易体障碍和额颞叶痴呆症患者，以反映我们的中心主题， 神经退行性疾病之间的相似性和差异。保留活动，如年度 将继续在这两个地点举行感谢与会者的午餐会。提高社区意识， 解决对AD和ADRD患者福祉的威胁，我们将继续促进 通过痴呆症友好社区（DFC）开发基于社区的解决方案 我们的外联和参与工作的框架。我们将评估这些计划对 对疾病进展和生活质量产生负面影响的社会结构，我们将继续 努力在非裔美国人社区实施和评估DFC模式的影响。