Exploring the influence of ethnic background, culture and faith on perceptions towards advance care planning conversations with British Muslim communi

探索种族背景、文化和信仰对与英国穆斯林社区的预先护理计划对话的看法的影响

• 批准号: 2886796
• 金额: --
• 依托单位: University of Leeds
• 依托单位国家: 英国
• 项目类别: Studentship
• 财政年份: 2023
• 资助国家: 英国
• 起止时间: 2023 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=studentship-2886796
• 关键词: Exploring; influence; ethnic; background; culture

Background and rationale: In the UK, there is evidence of lower uptake of Advance Care Planning (ACP) and palliative care among minoritised ethnic groups. These are people who do not self-identify as belonging to the White ethnic group (Saltus and Pithara, 2015). Population projections suggest that people from minoritised ethnic groups aged 65+ will reach 1.3 million by 2026 (Calanzani et al., 2013). Almost 1 in 3 of minoritised ethnic groups are British Muslims (The Muslim Council of Britain, 2015). Older British Muslims (65+) have higher prevalence of chronic illnesses such as diabetes, heart conditions and high blood pressure compared to the rest of the UK population. While older Muslim women being twice as likely to report having "bad" or "very bad" compared to the rest of the population of women in England (Sherif et al., 2019). Highlighting the need for ensuring ACP conversations around preference and future care are tailored for this group. Healthcare professionals describe challenges around ACP conversations that are inclusive of patients and families values and beliefs (Sherif et al., 2019, De Vries et al., 2019). Among people from minoritised ethnic groups, a number of barriers to conversations around ACP have been identified. These include limited awareness of ACP, mistrust of healthcare systems and apprehension about possible distress discussions about dying may cause for patients and families (Canny et al., 2022). From research with minoritised ethnic groups and British Muslims, there is a need for culturally competent and accessible ACP resources (Canny et al., 2022, Sherif et al., 2019, Moss et al., 2022), developed in collaboration with people from communities (Ahmed and Siddiqi, 2016). This can facilitate explorations of what is important to people from minoritised ethnic backgrounds and to deliver palliative and end of life care that gives them the best possible end of life experiences. Aims: The aims of this doctoral study will be: (1) to explore the influence of ethnic background, culture and faith on attitudes towards ACP conversations for British Muslims; (2) to co-produce a resource for patients and families and a guide or communication tool for healthcare professionals to support culturally competent ACP conversations with people from the British Muslim community.Methods: The PhD will consist of four phases. (Phase 1) A literature review to explore existing evidence on barriers and facilitators to ACP for Muslims. (Phase 2) Peer research in collaboration with Muslim Council of Britain to undertake interviews with others from the British Muslim community to explore understanding of palliative care, ACP and the potential influences of culture and faith on openness and attitudes towards this process. (Phase 3) Co-design workshops for developing recommendations. (Phase 4) Co-producing and disseminating a resource for patients and families and a guide or communication tool for health care practitioners.Expected Outcomes: This research will raise awareness and facilitate access to ACP for patients and families with British Muslim communities. A resource for patients and families to support them in engaging with ACP conversations, and a guide or communication tool that is culture and faith sensitive to support health care practitioners in palliative care settings in having ACP conversations with British Muslim communities. These will be co-produced with people from the British Muslim community and health care practitioners. Centering upon the voices of British Muslims and families will enable valuable insights into what culturally competent palliative care may look like.Plans for dissemination: As this project represents a collaboration between University College London, University of Leeds, Marie Curie and The Muslim Council of Britain, the outputs from this research have clear pathways to impact via the wide ranging reach and influence of the organisations involved.

背景和理由：在英国，有证据表明，少数族裔群体对高级护理计划（ACP）和姑息治疗的接受率较低。这些人不自我认同为属于白色族群（Saltus和Pithara，2015）。人口预测表明，到2026年，65岁以上的少数族裔人口将达到130万（Calanzani等人，2013年）。几乎三分之一的少数民族是英国穆斯林（英国穆斯林理事会，2015年）。与英国其他人口相比，英国老年穆斯林（65岁以上）患糖尿病、心脏病和高血压等慢性病的患病率更高。虽然与英格兰其他妇女相比，老年穆斯林妇女报告“坏”或“非常坏”的可能性是两倍（Sherif等人，2019年）。强调需要确保围绕优先和未来护理的ACP对话是为这一群体量身定制的。医疗保健专业人员描述了围绕ACP对话的挑战，包括患者和家庭的价值观和信仰（Sherif等人，2019年，De弗里斯等人，2019年）。在少数民族群体中，已经确定了围绕ACP进行对话的一些障碍。这些包括对ACP的认识有限，对医疗保健系统的不信任以及对死亡可能给患者和家庭造成的痛苦讨论的担忧（Canny等人，2022年）。根据对少数民族和英国穆斯林的研究，需要有文化能力和可获得的ACP资源（Canny等人，2022，Sherif等人，2019年，Moss等人，2022），与社区人士合作开发（Ahmed和Siddiqi，2016）。这可以促进探索什么是重要的人从少数民族背景，并提供姑息和临终关怀，给他们最好的生命结束的经验。目的：本博士研究的目的将是：（1）探讨种族背景，文化和信仰对ACP对话的态度，为英国穆斯林的影响;（2）共同制作的资源，为患者和家庭和医疗保健专业人员的指南或沟通工具，以支持文化能力的ACP对话与英国穆斯林社区的人。（第1阶段）文献综述，探讨穆斯林ACP障碍和促进因素的现有证据。（第二阶段）与英国穆斯林理事会合作进行同行研究，与英国穆斯林社区的其他人进行访谈，探讨对姑息治疗、ACP的理解以及文化和信仰对这一进程的开放性和态度的潜在影响。（第三阶段）共同设计讲习班，以拟订建议。（第四阶段）共同制作和传播患者和家庭资源以及卫生保健从业人员指南或交流工具。预期成果：这项研究将提高认识，并促进英国穆斯林社区患者和家庭获得ACP。为患者和家属提供资源，以支持他们参与ACP对话，并提供对文化和信仰敏感的指南或沟通工具，以支持姑息治疗环境中的医疗保健从业人员与英国穆斯林社区进行ACP对话。这些将与英国穆斯林社区和卫生保健从业人员共同制作。传播计划：由于该项目代表了伦敦大学学院、利兹大学、玛丽居里和英国穆斯林理事会之间的合作，因此该研究的成果通过参与组织的广泛影响力和影响力有明确的影响途径。