Capacity-Building

能力建设

• 批准号: 10427708
• 负责人: Crystal Dawn, Greensky
• 金额: $ 35.54万
• 依托单位: FOND DU LAC RESERVATION
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-09-22 至 2027-03-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10427708
• 关键词: Address; Agreement; Chippewa; Clinic; Code; Collaborations; Communication; Communities; Copyright; Custom; Data; Data Analyses; Data Reporting; Development; Educational Curriculum; Educational workshop; Ensure; Epidemiology; Ethics; Exercise; Faculty; Fond du Lac; Fostering; Foundations; Funding; Health; Housing; Human Subject Research; Indigenous; Institutional Review Boards; Intellectual Property; Intervention; Knowledge; Mentors; Mentorship; Modeling; Native American Research Center for Health; Native Americans; Outcome; Ownership; Perception; Persons; Policies; Population; Prevention; Privacy; Procedures; Property Rights; Publications; Recording of previous events; Regulation; Research; Research Ethics; Research Infrastructure; Research Institute; Research Personnel; Research Project Grants; Research Support; Security; Site; Students; Surveys; System; Time; Training; Tribes; adverse outcome; base; biomedical resource; community based participatory research; community clinic; cultural competence; data access; data management; data repository; data sharing; epidemiologic data; experience; health data; health disparity; health training; human subject; improved; indigenous community; innovation; member; social; tribal community; tribal organization; webinar

Over the past two decades tribes have increasingly exercised their sovereignty with regards to the oversight of research conducted with its members and ownership of the products of that research, including data, publications, copyrights, and intellectual property rights. In order for significant health disparities to be resolved via federally funded health research, tribes need the ability to own, control, and use the data and other products created. This capacity-building project will build research infrastructure to foster health-related research and opportunities to enhance the cadre of students and faculty in health-related fields through developing that capacity at Fond du Lac Band of Lake Superior Chippewa (FDL) to provide access to social and biomedical resources and strengthen the research capabilities of the communities and their researchers. Specifically, our aims are to: 1. Coordinate NARCH tribal partnerships among FDL, Sisseton-Wahpeton Oyate (SWO), Native American Community Clinic (NACC), additional tribes/tribal organizations, and academic researchers to grow our research network in order to build relationships and encourage future research collaboration. 2. Develop the FDL Research Data Repository to gather, store, and curate multi-site tribal research data from the NARCH Epidemiologic Project to Increase Indigenous Capacity (EPIIC), as well as from other past and future research projects conducted at FDL. 3. Hire, train, and mentor a FDL Research Data Manager to be responsible for organizing, storing, and analyzing data as efficiently as possible, while upholding rigorous, agreed-upon standards in privacy, confidentiality, and security; and to respond in a timely way to tribal and regional partners’ requests for data and reports. 4. Develop and provide in-person and webinar-based trainings on research ethics for faculty researchers, students, IRB members, and tribal institutional officials. By creating this model within one tribe, we lay the foundation for a regional center for tribal research to gather, curate, and disseminate data that will serve a broad and diverse set of AIAN communities and promote tribally- initiated and -engaged research.

在过去的二十年中 研究与其成员和该研究产品的所有权，包括数据， 出版物，版权和知识产权。为了解决重大健康差异 通过联邦资助的健康研究，部落需要拥有，控制和使用数据和其他的能力 创建的产品。这个能力建设项目将建立研究基础设施，以促进与健康有关的 通过研究和机会来增强与健康相关领域的学生和教职员工的干部 在苏必利尔湖奇珀瓦湖（FDL）的Fond du lac乐队（FDL）中发展能力 以及生物医学资源，并增强社区及其研究人员的研究能力。 具体而言，我们的目标是： 1。FDL，Sisseton-Wahpeton oyate（SWO）的坐标Narch部落合作伙伴关系 社区诊所（NACC），其他部落/部落组织和学术研究人员，以发展我们 研究网络以建立关系并鼓励未来的研究合作。 2。开发FDL研究数据存储库，以收集，存储和策划多站点的部落研究数据 从Narch流行病学项目提高土著能力（Epiic）以及其他 FDL进行的过去和未来研究项目。 3.雇用，培训和指导FDL研究数据经理，负责组织，存储和 尽可能有效地分析数据，同时保留严格的，同意的公私标准， 机密性和安全性；并及时回应部落和区域合作伙伴的数据请求 和报告。 4。开发并提供基于面对面和网络研讨会的研究道德培训 研究人员，学生，IRB成员和部落机构官员。 通过在一个部落中创建此模型，我们为一个地区研究中心奠定了基础，以聚集， 策划并传播将为广阔且潜水员的Aian社区提供的数据，并在部落中促进 启动并引入研究。