Capacity-Building

在过去的二十年里，部落越来越多地行使他们的主权，监督 与其成员进行的研究以及该研究产品的所有权，包括数据， 出版物、版权和知识产权。为了解决重大的健康差距， 通过联邦政府资助的健康研究，部落需要拥有，控制和使用数据和其他信息的能力。 产品创造。这一能力建设项目将建立研究基础设施，以促进与卫生有关的 研究和机会，以加强学生和教师在卫生相关领域的干部，通过 发展上级齐佩瓦湖丰迪拉克带的能力， 和生物医学资源，并加强社区及其研究人员的研究能力。 具体而言，我们的目标是： 1.协调解阵、Sisseton-Wahpeton Oyate（SWO）、美洲原住民 社区诊所（NACC），其他部落/部落组织和学术研究人员，以发展我们的 研究网络，以建立关系，并鼓励未来的研究合作。 2.开发FDL研究数据存储库，以收集、存储和管理多站点部落研究数据 来自提高土著能力的流行病学项目（EPIIC），以及来自其他 在FDL进行的过去和未来的研究项目。 3.雇用、培训和指导FDL研究数据经理，负责组织、存储和 尽可能有效地分析数据，同时坚持严格的、商定的隐私标准， 保密和安全;及时回应部落和区域伙伴的数据请求 和报告。 4.为教师开发和提供关于研究道德的面对面和基于网络的培训 研究人员、学生、IRB成员和部落机构官员。 通过在一个部落内创建这个模型，我们为部落研究的区域中心奠定了基础， 策划和传播将服务于广泛和多样化的AIAN社区的数据，并促进部落- 发起和参与的研究。

Over the past two decades tribes have increasingly exercised their sovereignty with regards to the oversight of research conducted with its members and ownership of the products of that research, including data, publications, copyrights, and intellectual property rights. In order for significant health disparities to be resolved via federally funded health research, tribes need the ability to own, control, and use the data and other products created. This capacity-building project will build research infrastructure to foster health-related research and opportunities to enhance the cadre of students and faculty in health-related fields through developing that capacity at Fond du Lac Band of Lake Superior Chippewa (FDL) to provide access to social and biomedical resources and strengthen the research capabilities of the communities and their researchers. Specifically, our aims are to: 1. Coordinate NARCH tribal partnerships among FDL, Sisseton-Wahpeton Oyate (SWO), Native American Community Clinic (NACC), additional tribes/tribal organizations, and academic researchers to grow our research network in order to build relationships and encourage future research collaboration. 2. Develop the FDL Research Data Repository to gather, store, and curate multi-site tribal research data from the NARCH Epidemiologic Project to Increase Indigenous Capacity (EPIIC), as well as from other past and future research projects conducted at FDL. 3. Hire, train, and mentor a FDL Research Data Manager to be responsible for organizing, storing, and analyzing data as efficiently as possible, while upholding rigorous, agreed-upon standards in privacy, confidentiality, and security; and to respond in a timely way to tribal and regional partners’ requests for data and reports. 4. Develop and provide in-person and webinar-based trainings on research ethics for faculty researchers, students, IRB members, and tribal institutional officials. By creating this model within one tribe, we lay the foundation for a regional center for tribal research to gather, curate, and disseminate data that will serve a broad and diverse set of AIAN communities and promote tribally- initiated and -engaged research.