Patient Navigator Education and Training Strategies to Support Cancer Survivors in Tanzania

摘要 本申请是为回应特别利益通知(NOSI)而提交的，该通知的编号为“NOT-CA-21- 058.“宫颈癌是撒哈拉以南非洲妇女癌症死亡的主要原因。如中所示 在许多资源匮乏的国家，坦桑尼亚的宫颈癌患者在接受癌症方面面临许多障碍 诸如无法获得筛查计划、诊断延误、癌症旅行费用高昂等护理 中心，以及与癌症诊断和治疗有关的耻辱和神话。C 宫颈癌是， 然而，只要坚持早期诊断和治疗，就能高度治愈。 由于最近的运力- 坦桑尼亚正在建设宫颈癌筛查和治疗大楼，预计将有更多 有资格接受最终治疗的宫颈癌患者数量。这一增长 潜在的长期幸存者群体为破除有关癌症的神话提供了一个关键机会 并利用幸存者制定创新的健康促进干预措施。 来自东非内部的初步数据表明，通过癌症幸存者进行宣传和教育 他们的照顾者可以通过消除癌症在改善癌症预后方面发挥关键作用。 错误的观念和促进健康寻求行为。我们假设通过赋予权力， 传授知识，培训宫颈癌幸存者作为变革的推动者，我们将改进 坦桑尼亚宫颈癌患者的治疗依从性和治疗完成率。我们的 资助期的直接目标有两个。首先，我们将评估消费者的需求和行为 在坦桑尼亚的宫颈癌患者沿着癌症控制的连续。我们将开展焦点小组与 幸存者、照顾者和医疗保健提供者执行身体、精神、情感、 宫颈癌诊断的社会和经济影响，从诊断开始，一直持续到 而不只是治疗。此外，我们对生存经验的评估也将集中在一些问题上 与随访护理、治疗的晚期效应和生活质量有关。 将开发和试行一项课程，将宫颈癌幸存者培训为患者导航员。这 该提案旨在授权和培训宫颈癌幸存者成为患者的领航员和代理人 变化。我们的长期目标是提高宫颈疾病的治疗依从性和治疗完成率。 坦桑尼亚癌症患者通过实施患者导航服务。

ABSTRACT This application is submitted in response to the Notice of Special Interest (NOSI) identified as “NOT-CA-21- 058.” Cervical cancer is the leading cause of cancer mortality among women in sub-Saharan Africa. As in many low-resource countries, cervical cancer patients in Tanzania face many barriers in receiving cancer care such as lack of access to screening programs, diagnostic delays, high cost of travel to the cancer centers, and stigma and myths associated with cancer diagnosis and treatment. C ervical cancer is, however, highly curable with early diagnosis and treatment adherence. As a result of recent capacity- building for both screening and treatment of cervical cancer, Tanzania is poised to see an increase in the number of cervical cancer patients who will be eligible to undergo definitive therapy. This growing population of potential long-term survivors presents a critical opportunity to dispel myths around cancer which still prevail and to leverage survivors for development of innovative health promotion interventions. Preliminary data from within East Africa suggests that advocacy and education through cancer survivors and their caregivers can play a critical role in improving cancer outcomes by dispelling cancer misconceptions and promoting health-seeking behaviors. We hypothesize that by empowering, imparting knowledge, and training cervical cancer survivors as agents of change, we will improve treatment adherence and treatment completion rates for cervical cancer patients in Tanzania. Our immediate aims for the funding period are two-fold. First, we will evaluate the needs and behaviors of cervical cancer patients in Tanzania along the cancer control continuum.We will conduct focus groups with survivors, caregivers, and healthcare providers to perform an assessment of physical, mental, emotional, social, and financial effects of a cervical cancer diagnosis, beginning at diagnosis and continuing through and beyond treatment. In addition, our assessment of the survivorship experience will also focus on issues related to follow-up care, late effects of treatment, and quality of life.Following the formative evaluation, we will develop and pilot a curriculum to train cervical cancer survivors to become patient navigators. This proposal aims to empower and train cervical cancer survivors to become patient navigators and agents of change. Our long-term goal is to improve treatment adherence and treatment completion rates for cervical cancer patients in Tanzania through implementation of patient navigation services.