Patient Navigator Education and Training Strategies to Support Cancer Survivors in Tanzania

支持坦桑尼亚癌症幸存者的患者导航教育和培训策略

• 批准号: 10428290
• 负责人: Alan Ashworth
• 金额: $ 17.76万
• 依托单位: UNIVERSITY OF CALIFORNIA, SAN FRANCISCO
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-01-01 至 2022-12-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10428290
• 关键词: 3-Dimensional; Accounting; Advocacy; Africa; Africa South of the Sahara; Behavior; Cancer Center; Cancer Control; Cancer Etiology; Cancer Patient; Cancer Survivor; Caregivers; Caring; Cervical Cancer Screening; Cessation of life; Clinic; Clinical; Communities; Country; Data; Development; Diagnosis; Diagnostic; Early Diagnosis; Early treatment; Education; Educational Curriculum; Emotional; Face; Family; Female; Focus Groups; Funding; Goals; Health Personnel; Health Promotion; Institutes; Intervention; Knowledge; Late Effects; Linear Accelerator Radiotherapy Systems; Long-Term Survivors; Malignant Neoplasms; Malignant neoplasm of cervix uteri; Modeling; National Cancer Institute; Oceans; Outcome; Patients; Persons; Physical assessment; Play; Population; Psyche structure; Publishing; Quality of life; Radiation; Resource-limited setting; Resources; Role; Screening for cancer; Services; Societies; Survival Rate; Survivors; Tanzania; Time; Training; Training and Education; Travel; Uganda; United States; United States National Institutes of Health; Woman; cancer care; cancer diagnosis; cancer education; cancer therapy; care systems; cost; empowered; end of life; experience; follow-up; formative assessment; health seeking behavior; improved; innovation; interest; mortality; peer; response; screening; screening program; screening services; skills; social; social stigma; survivorship; treatment adherence; treatment effect; treatment guidelines

ABSTRACT This application is submitted in response to the Notice of Special Interest (NOSI) identified as “NOT-CA-21- 058.” Cervical cancer is the leading cause of cancer mortality among women in sub-Saharan Africa. As in many low-resource countries, cervical cancer patients in Tanzania face many barriers in receiving cancer care such as lack of access to screening programs, diagnostic delays, high cost of travel to the cancer centers, and stigma and myths associated with cancer diagnosis and treatment. C ervical cancer is, however, highly curable with early diagnosis and treatment adherence. As a result of recent capacity- building for both screening and treatment of cervical cancer, Tanzania is poised to see an increase in the number of cervical cancer patients who will be eligible to undergo definitive therapy. This growing population of potential long-term survivors presents a critical opportunity to dispel myths around cancer which still prevail and to leverage survivors for development of innovative health promotion interventions. Preliminary data from within East Africa suggests that advocacy and education through cancer survivors and their caregivers can play a critical role in improving cancer outcomes by dispelling cancer misconceptions and promoting health-seeking behaviors. We hypothesize that by empowering, imparting knowledge, and training cervical cancer survivors as agents of change, we will improve treatment adherence and treatment completion rates for cervical cancer patients in Tanzania. Our immediate aims for the funding period are two-fold. First, we will evaluate the needs and behaviors of cervical cancer patients in Tanzania along the cancer control continuum.We will conduct focus groups with survivors, caregivers, and healthcare providers to perform an assessment of physical, mental, emotional, social, and financial effects of a cervical cancer diagnosis, beginning at diagnosis and continuing through and beyond treatment. In addition, our assessment of the survivorship experience will also focus on issues related to follow-up care, late effects of treatment, and quality of life.Following the formative evaluation, we will develop and pilot a curriculum to train cervical cancer survivors to become patient navigators. This proposal aims to empower and train cervical cancer survivors to become patient navigators and agents of change. Our long-term goal is to improve treatment adherence and treatment completion rates for cervical cancer patients in Tanzania through implementation of patient navigation services.

摘要 本申请是为了响应标识为“NOT-CA-21-”的特别利益通知（NOSI）而提交的 058。”宫颈癌是撒哈拉以南非洲妇女癌症死亡的主要原因。如在 在许多资源匮乏的国家，坦桑尼亚的宫颈癌患者在接受癌症治疗方面面临许多障碍。 护理，如缺乏获得筛查计划，诊断延误，前往癌症的高成本 中心，以及与癌症诊断和治疗相关的耻辱和神话。C 乳腺癌是， 然而，通过早期诊断和治疗坚持，高度可治愈。 由于最近的能力- 建设筛查和治疗宫颈癌，坦桑尼亚准备看到增加， 有资格接受明确治疗的宫颈癌患者人数。这一日益严重 潜在的长期幸存者群体为消除围绕癌症的神话提供了一个关键机会 这仍然普遍存在，并利用幸存者制定创新的健康促进干预措施。 来自东非的初步数据表明，通过癌症幸存者进行宣传和教育 他们的护理人员可以通过消除癌症， 错误观念和促进寻求健康的行为。我们假设通过授权， 传授知识，培训宫颈癌幸存者作为变革的推动者，我们将提高 坦桑尼亚宫颈癌患者的治疗依从性和治疗完成率。我们 供资期间的近期目标有两个。首先，我们将评估的需求和行为， 沿着癌症控制连续体，我们将与 幸存者，照顾者和医疗保健提供者进行身体，精神，情绪， 宫颈癌诊断的社会和经济影响，从诊断开始，一直持续到 超越治疗。此外，我们对生存经验的评估也将重点关注以下问题： 与随访护理、治疗的晚期效应和生活质量有关。在形成性评估后，我们 将开发和试点一个课程，培训宫颈癌幸存者成为患者导航员。这 该提案旨在授权和培训宫颈癌幸存者成为患者导航员和代理人， 变化我们的长期目标是提高宫颈癌的治疗依从性和治疗完成率。 通过实施患者导航服务，帮助坦桑尼亚的癌症患者。