FAMILY WELL-BEING RESEARCH NETWORK (“FAM-NET”): Measuring Family Well-Being across the Lifespan

家庭福祉研究网络 (“FAM-NET”)：衡量整个生命周期的家庭福祉

• 批准号: 10437604
• 负责人: Janel Hanmer
• 金额: $ 58.77万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-06-24 至 2025-05-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10437604
• 关键词: Address; Affect; Age; Area; Attention; Caregivers; Centers for Disease Control and Prevention (U.S.); Child; Child Welfare; Childhood; Collaborations; Complex; Data Set; Development; Discipline; Elderly; Evaluation; Extended Family; Family; Family Relationship; Family member; Fostering; Funding; Generations; Goals; Health; Healthy People 2020; Improve Access; Individual; Institution; Intervention; Knowledge; Leadership; Learning; Life; Longevity; Measurement; Measures; Mentors; Michigan; Online Systems; Ontology; Outcome; Outcome Measure; Parents; Patient Outcomes Assessments; Patient Self-Report; Patients; Personal Satisfaction; Persons; Pilot Projects; Population; Public Health; Quality of life; Reporting; Research; Research Activity; Research Personnel; Research Training; Resource Development; Role; Training; U-Series Cooperative Agreements; Universities; Validation; Well in self; World Health Organization; design; experience; family structure; improved; indexing; informal caregiver; innovation; instrument; learning materials; multidisciplinary; online resource; positive emotional state; repository; satisfaction

ABSTRACT Emotional well-being, which includes life satisfaction, life purpose, and positive emotions, is a key public health target. Although health can influence well-being, only recently has there been increasing attention on how overall well-being can influence health outcomes. Critical knowledge gaps exist in both understanding the research on the role of emotional well-being in health and in measuring well-being outcomes, which constrain valid and rigorous evaluation of intervention strategies. The interdependence of health and well-being within and among family members has not been well-characterized: the health and well-being of a patient affects family members, but the well-being of family members--especially informal caregivers or parents--can also directly affect the well-being of the patient. Moreover, these interrelated effects vary across the lifespan, from child well-being within a family to elder well-being among family members and relatives. The specific aims of this U24 research network proposal focus on developing a coordinated set of collaborative, transdisciplinary mechanisms designed to create, launch, and sustain a new generation of well- being researchers and innovative research activities across the lifespan, with a special emphasis on measuring family well-being and child quality of life: (1) improve access to and use of emotional well-being measures by creating a web-based resource repository of curated instruments, research findings, datasets, and training/learning materials; (2) stimulate well-being research through funded pilot projects that address the measurement of well-being across the lifespan with dedicated funding for pediatric quality of life projects; (3) assemble a research scholars corps with multidisciplinary training and expertise that will support and foster a pipeline of scholars for future research on measurement. This set of activities will serve to coalesce this emerging field, building research capacity to support better evaluation of interventions and improving public health through the measurement of measurement of well-being at the population level.

摘要 情绪幸福感包括生活满意度、生活目标和积极情绪，是一项关键的公共健康 目标虽然健康可以影响幸福，但直到最近才越来越多地关注如何 总体福祉可影响健康结果。关键的知识差距存在于理解， 研究情绪福祉在健康和衡量福祉结果中的作用，这限制了 对干预战略进行有效和严格的评价。健康和福祉的相互依存性 和家庭成员之间的关系还没有得到很好的描述：病人的健康和福祉影响 家庭成员，但家庭成员的福祉-特别是非正式的照顾者或父母-也可以 直接影响患者的健康。此外，这些相互关联的影响在整个生命周期中变化， 从家庭中的儿童福祉到家庭成员和亲属中的老年人福祉。 这一U24研究网络提案的具体目标侧重于开发一套协调的 合作，跨学科的机制，旨在创造，启动和维持新一代的良好， 作为研究人员和创新的研究活动，在整个生命周期，特别强调测量 家庭福祉和儿童生活质量：（1）改善获得和使用情感福祉措施的机会， 创建一个基于网络的资源库，其中包含精选的工具、研究成果、数据集， 培训/学习材料;（2）通过资助的试点项目，促进福祉研究， 通过为儿科生活质量项目提供专项资金，衡量整个生命周期的福祉;（3） 组建一支具有多学科培训和专业知识的研究学者队伍，以支持和促进 未来的测量研究的学者管道。这一系列活动将有助于将这一点结合起来， 新兴领域，建设研究能力，以支持更好地评价干预措施，并改善公共卫生 通过衡量人口一级的福祉来衡量健康。