FAMILY WELL-BEING RESEARCH NETWORK (“FAM-NET”): Measuring Family Well-Being across the Lifespan

摘要 情绪幸福感是一种重要的公共健康，它包括生活满意度、生活目标和积极情绪。 目标。尽管健康可以影响幸福感，但直到最近，人们才越来越多地关注健康如何影响幸福感 总体幸福感会影响健康结果。关键的知识差距存在于理解 关于情绪幸福感在健康和衡量幸福结果中的作用的研究，这些结果制约了 对干预策略进行有效和严格的评估。健康与幸福内在的相互依存关系 而在家庭成员中一直没有很好的特点：患者的健康和福祉影响着 家庭成员，但家庭成员的福祉--特别是非正式的照顾者或父母--也可以 直接影响患者的幸福感。此外，这些相互关联的影响在整个生命周期内都不同，从 家庭内的儿童幸福感与家庭成员和亲戚之间的长辈幸福感。 这项U24研究网络提案的具体目标集中在开发一套协调的 协作、跨学科的机制，旨在创建、启动和维持新一代井- 作为研究人员和创新的终身研究活动，特别强调衡量 家庭幸福和儿童生活质量：(1)通过以下方式改进获得和使用情感幸福措施 创建基于Web的资源库，其中包括经过管理的仪器、研究结果、数据集和 培训/学习材料；(2)通过资助的试点项目促进幸福感研究 通过为儿科生活质量项目提供专项资金来衡量整个生命周期的幸福感；(3) 召集一支具有多学科培训和专业知识的研究学者团队，以支持和促进 学者们正在为未来的测量研究铺路。这套活动将有助于将这一点结合起来 新兴领域，建设研究能力以支持更好地评估干预措施并改善公众 通过在人口一级衡量幸福感来衡量健康。

ABSTRACT Emotional well-being, which includes life satisfaction, life purpose, and positive emotions, is a key public health target. Although health can influence well-being, only recently has there been increasing attention on how overall well-being can influence health outcomes. Critical knowledge gaps exist in both understanding the research on the role of emotional well-being in health and in measuring well-being outcomes, which constrain valid and rigorous evaluation of intervention strategies. The interdependence of health and well-being within and among family members has not been well-characterized: the health and well-being of a patient affects family members, but the well-being of family members--especially informal caregivers or parents--can also directly affect the well-being of the patient. Moreover, these interrelated effects vary across the lifespan, from child well-being within a family to elder well-being among family members and relatives. The specific aims of this U24 research network proposal focus on developing a coordinated set of collaborative, transdisciplinary mechanisms designed to create, launch, and sustain a new generation of well- being researchers and innovative research activities across the lifespan, with a special emphasis on measuring family well-being and child quality of life: (1) improve access to and use of emotional well-being measures by creating a web-based resource repository of curated instruments, research findings, datasets, and training/learning materials; (2) stimulate well-being research through funded pilot projects that address the measurement of well-being across the lifespan with dedicated funding for pediatric quality of life projects; (3) assemble a research scholars corps with multidisciplinary training and expertise that will support and foster a pipeline of scholars for future research on measurement. This set of activities will serve to coalesce this emerging field, building research capacity to support better evaluation of interventions and improving public health through the measurement of measurement of well-being at the population level.