Building research capacity within tribal organizations for research to improve the health of Alaska Native children

项目摘要/摘要 阿拉斯加土著部落健康联盟(ANTHC)成立于1997年12月，是一个非营利性的美国国税局 501(C)(3)管理阿拉斯加原住民和 美洲印第安人。ANTHC将继续通过ECHO参与多中心临床试验 ISPCTN与最大的地区性部落卫生组织南方中央基金会(SCF)合作，为 107,400平方英里的锚地服务单位，并共同管理阿拉斯加土著医疗中心。在……里面 此外，我们将在阿拉斯加农村部落卫生系统(ATHS)内建立研究能力，通过 将偏远的部落组织Yukon Kuskokwim Health Corporation(YKHC)带入ECHO ISPCTN。我们将在与来自所有阿拉斯加的部落首领、临床主任的持续磋商的基础上再接再厉 部落组织，以及我们的社区顾问委员会，ANTHC研究咨询委员会， 确定和评估与部落研究优先顺序一致的临床试验。我们会 与目前的ECHO ISPCTN合作伙伴合作，实施和发展联合研究 利用每个组织的长处的项目。 我们的组织结构将由ANTHC为牵头组织，SCF为次要获奖者 而YKHC作为未来个别项目的合作者。ANTHC联合制作人Pi Rosalyn Singleton，作品 在社区卫生司的ANTHC临床和研究服务部(C&RS) 服务。Singleton博士将领导该项目并指导SCF联合PI Melissa Hammes，她将 在头两年增加对研究监督的责任，并领导研究团队 在过去的三年里，辛格尔顿博士转到了顾问职位。ANTHC研究护士 协调员艾米·斯旺戈-威尔逊在C&RS工作，她将培训研究护士并监督 研究预算和业务。联合PIS和高级学院发展主管Jennifer Shaw 高级联合调查员马修·赫希菲尔德将与ECHO ISPCTN数据合作 协调和运营中心(DCOC)，美国印第安人/阿拉斯加本土临床和转化部 研究计划(AI/AN CTRP)，为 初级学院。高级联合调查员将加入高级学院发展主管和PI 作为核心高级学院，特别专注于在以下方面提供咨询和技术援助 研究设计，知情同意，部落研究过程和政策，为初级学院和 阿拉斯加回声ISPCTN研究小组。

Project Summary/Abstract Alaska Native Tribal Health Consortium (ANTHC) was formed in December 1997 as a nonprofit IRS 501(c)(3) organization to manage statewide health services and programs for Alaska Native and American Indian people. ANTHC will continue to participate in multicenter clinical trials through ECHO ISPCTN with Southcentral Foundation (SCF), the largest regional tribal health organization, serving the 107,400 square mile Anchorage Service Unit, and co-managing the Alaska Native Medical Center. In addition, we will build research capacity within the rural Alaska Tribal Health System (ATHS), by bringing the remote tribal organization, Yukon Kuskokwim Health Corporation (YKHC), into the ECHO ISPCTN. We will build on our ongoing consultations with tribal leaders, clinical directors from all Alaska tribal organizations, and our community advisory board, the ANTHC Research Consultation Committee, to identify and evaluate clinical trials which are congruent with tribal research priorities. We will collaborate with current ECHO ISPCTN partners on implementing and developing joint research projects which use the strengths of each organization. Our organizational structure will consist of ANTHC as the lead organization with SCF as sub-awardee and YKHC as a collaborator on future individual projects. The ANTHC co-PI Rosalyn Singleton, works in the ANTHC Clinical and Research Services (C&RS) Department in the Division of Community Health Services. Dr. Singleton will lead the project and mentor the SCF co-PI, Melissa Hammes, who will take increasing responsibility for research oversight during the first 2 years, and lead the research team during the last 3 years with Dr. Singleton moving to a consultant role. The ANTHC research nurse coordinator, Amy Swango-Wilson, works in the C&RS, and will train research nurses and will oversee research budgets and operations. The co-PIs and Senior Faculty Development leader Jennifer Shaw and Senior Co-investigator Matthew Hirschfeld will collaborate with the ECHO ISPCTN Data Coordination and Operations Center (DCOC), American Indian/Alaska Native Clinical and Translational Research Program (AI/AN CTRP), to offer training opportunities and research development for the Junior Faculty. The SCF Senior Co-investigator will join the Senior Faculty Development Leader and PI as core Senior Faculty with special focus on providing consultation and technical assistance on research design, informed consents, and tribal research process and policies for Junior Faculty and the Alaska ECHO ISPCTN research team.