All About Me: An Intervention to Ease the Transition to Long-term Care, Build Community, and Improve Quality of Care for Persons with Dementia

关于我的一切：缓解痴呆症患者向长期护理过渡、建立社区并提高护理质量的干预措施

• 批准号: 10481163
• 负责人: Gregg Gorzelle
• 金额: $ 25.9万
• 依托单位: HOPEFUL AGING LLC
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-06-15 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10481163
• 关键词: Affect; Agitation; Alzheimer' s Disease; American; Anxiety; Assisted Living Facilities; Behavior; Caregivers; Caring; Categories; Communities; Computer software; Coronary heart disease; Data; Dementia; Depressed mood; Development; Devices; Environment; Evaluation; Exhibits; Family member; Feedback; Felis catus; Fill-It; Future; Goals; Hippocampus (Brain); Home; Hormones; Hypertension; Impaired cognition; Intervention; Judgment; Language; Learning; Long-Term Care; Memory impairment; Nursing Homes; Outcome; Participant; Persons; Phase; Play; Process; Quality of Care; Quasi-experiment; Recording of previous events; Research; Social isolation; Socialization; Stress; Surveys; Testing; Training Activity; Withdrawal; Work; base; care preference; digital health; experience; gray matter; immune function; improved; innovation; interest; loved ones; member; person centered; phase 1 study; phase 2 study; preference; programs; satisfaction; smart watch; social; wound healing

PROJECT SUMMARY/ABSTRACT Given the large number of persons with dementia (PWD) who move into long-term care (LTC) settings each year, and the issues that arise during both this process and their subsequent adaptation to the new living situation, there is a need for a person-centered program to improve both the transition itself and to assist PWD in adapting to their new environment. This Phase I study will involve initial development and evaluation of an innovative cross-platform software app called All About Me (AAM), which will consist of Serious Digital Health Games (SDHGs) for PWD. The AAM App will assist staff in providing person-centered care and enable residents to improve relationships with one another and with staff, thereby promoting a sense of community. The market-ready version of the AAM App will consist of five components. (1) The Fun Facts About Me Game will be used when a PWD is moving into LTC. Family members of PWD will play this game with their relative with dementia. The goal of the game is to provide an enjoyable way for family members and PWD to provide important information about the PWD's social history, personal interests, and care preferences. (2) The Resident Game Bundle will consist of SDHGs that will allow PWD to learn about one another in an enjoyable way. Game content will be automatically created, based upon data collected during the Fun Facts About Me Game. (3) The My Residents Module will provide staff with a convenient way to view information about a PWD with whom they will be working. Staff will launch this module from any device, including a smartwatch in the market-ready version. (4) The Meet the Staff Module, which will be developed and tested in a future Phase II study, will allow residents to learn about staff members at their community, thereby improving relationships between staff members and PWD. (5) The AAM Training Modules will provide staff and family members with access to video-based training modules that describe how to use relevant portions of the app. This Phase I study has three Specific Aims, which will be completed by three project teams over the course of 12 months. Aim 1. Develop an Alpha version of the AAM App. The Software Team and Content Team will work collaboratively to complete Aim 1 during Months 1-7 of the project. They will create (1) The Fun Facts About Me Game and a single Resident Game Bundle game, (2) Two categories of information for the My Residents Module, and (3) Alpha versions of staff and family member Training Modules. Development of the AAM App will be iterative and be informed by Advisory Panels of staff members, family members, and PWD. Aim 2. Examine acceptability of and satisfaction with the AAM App. Aim 3. Examine the impact of the Resident Game Bundle / Survey Says Game on engagement/affect. The Experimental Team will meet Aims 2 and 3 by conducting a quasi-experiment with 24 PWD, 12 Staff, and 24 Family Members during Months 8-11. After an initial 4-week Baseline Period, staff and PWD will be asked to use the AAM App during Months 9-10, while family members will play The Fun Facts About Me Game at least once during Month 9.

项目总结/摘要 鉴于每年有大量痴呆症患者进入长期护理机构， 在这一过程中出现的问题和他们随后适应新的生活状况，有必要 一个以人为本的计划，以改善过渡本身，并协助残疾人适应他们的新环境。 第一阶段研究将涉及一个创新的跨平台软件应用程序的初步开发和评估， 关于我（AAM），这将包括严重的数字健康游戏（SDHG）的残疾人。AAM应用程序将帮助工作人员 提供以人为本的护理，使居民能够改善彼此之间以及与工作人员的关系， 促进社区意识。 AAM应用程序的市场就绪版本将由五个组件组成。(1)关于我的有趣事实游戏将是 当PWD进入LTC时使用。PWD的家人将与患有痴呆症的亲戚一起玩这个游戏。的 游戏的目标是为家庭成员和残疾人提供一种愉快的方式， PWD的社会历史，个人兴趣和护理偏好。(2)常驻游戏包将由SDHG组成， 将允许PWD以一种愉快的方式相互学习。游戏内容将自动创建，基于 在"关于我的有趣事实"游戏中收集的数据(3)我的住院医师模块将为员工提供一个方便的方法， 查看他们将与之一起工作的残疾人的信息。工作人员将从任何设备启动此模块，包括 一款智能手表的上市版本。(4)会见工作人员模块，将在未来开发和测试 第二阶段的研究将使居民了解他们社区的工作人员，从而改善关系 工作人员和残疾人之间。(5)AAM培训模块将为工作人员及其家属提供以下机会： 基于视频的培训模块，描述如何使用应用程序的相关部分。 第一阶段研究有三个具体目标，将由三个项目小组在12个月内完成。 目标1。开发AAM应用程序的Alpha版本。软件团队和内容团队将协同工作 在项目的第1 - 7个月完成目标1。他们将创造（1）关于我的有趣的事实游戏和一个单一的 居民游戏捆绑游戏，（2）我的居民模块的两类信息，以及（3）Alpha版本的 工作人员和家庭成员培训单元。AAM应用程序的开发将是迭代的，并由咨询部门提供信息 工作人员、家庭成员和残疾人小组。 目标二。检查AAM应用程序的可接受性和满意度。 目标3.检查居民游戏包/调查说游戏对参与/影响的影响。 实验小组将通过与24名残疾人、12名工作人员和24个家庭进行准实验来实现目标2和3 8 - 11个月的成员。在最初的4周基线期后，将要求工作人员和PWD使用AAM应用程序 在第9 - 10个月，而家庭成员将在第9个月至少玩一次关于我的有趣事实游戏。