Community Outreach and Engagement

社区外展和参与

• 批准号: 10491147
• 负责人: Andrew Louis Sussman
• 金额: $ 7.2万
• 依托单位: UNIVERSITY OF NEW MEXICO HEALTH SCIS CTR
• 依托单位国家: 美国
• 财政年份: 2005
• 资助国家: 美国
• 起止时间: 2005-09-26 至 2026-08-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10491147
• 关键词: Address; Advocate; American Indians; Appointment; Area; Cancer Burden; Cancer Center; Cancer Center Support Grant; Cancer Control; Cancer Intervention; Catchment Area; Characteristics; Clinical Cancer Center; Clinical Trials; Clinical Trials Network; Communication; Communities; Community Health Systems; Community Outreach; Comprehensive Cancer Center; Cultural Diversity; Data Sources; Development; Doctor of Philosophy; Education; Environmental Exposure; Evolution; Financial Hardship; Funding; Genomic medicine; Grant; Guidelines; Health; Healthcare; High Prevalence; Hispanic; Hispanic Americans; Human Papillomavirus; Incidence; Informatics; Intervention Trial; Latinx population; Leadership; Linguistics; Link; Malignant Neoplasms; Mexican; Mission; Modeling; Molecular; Monitor; NCI Center for Cancer Research; New Mexico; Not Hispanic or Latino; Patients; Pattern; Plant Roots; Policies; Poverty; Precision Medicine Initiative; Protocols documentation; Recommendation; Recording of previous events; Registries; Research; Research Priority; Resources; Review Committee; Risk Behaviors; Role; Rural Community; Rural Population; SEER Program; Screening for cancer; Sexual and Gender Minorities; Site; Specialist; Substance Use Disorder; Sushi Domain; System; Training Activity; Training and Education; Translational Research; Underrepresented Minority; Underserved Population; Universities; Vaccination; anticancer research; cancer care; cancer clinical trial; cancer health disparity; cancer risk; care delivery; caucasian American; community engagement; community partnership; community setting; cultural competence; data warehouse; environment related cancer; evidence base; financial toxicity; food insecurity; health care availability; health disparity; health equity; hispanic community; innovation; member; mortality; multi-ethnic; patient engagement; policy recommendation; population based; precision genomic medicine; programs; public education; screening; socioeconomics; survivorship; tribal Nation; tribal community; tumor registry; tv watching; underserved community; underserved minority

SUMMARY/ABSTRACT - COMMUNITY OUTREACH AND ENGAGEMENT The Office of Community Outreach and Engagement (COE) serves as the critical bidirectional interface between all components of the University of New Mexico Comprehensive Cancer Center (UNMCCC) and a rich tapestry of community health system partners, sovereign Tribal Nations, Hispanic/Latinx populations, cancer community advocates, and patient support organizations. The COE facilitates efforts to overcome cancer health disparities in our catchment area, the State of New Mexico (NM), as the focal point for engagement and communication between the UNMCCC and our catchment area communities. Major characteristics of our catchment area include its diverse multiethnic, multicultural, and rural population composition, primarily Hispanic, American Indian, and non-Hispanic white; persistent socioeconomic challenges including deep poverty and food insecurity; and access to health care challenges. Today’s COE, formalized in 2018, coordinates with and builds upon existing UNMCCC cancer surveillance and community-engaged initiatives. Within this context, COE proposes the following specific aims: 1) define and characterize the catchment area, 2) prioritize cancer-related needs through engagement and communication with all stakeholders, 3) facilitate cancer research, and 4) disseminate, implement, and evaluate multi-level cancer control strategies to reduce cancer burden within and beyond the catchment area. To accomplish these aims, the COE has convened two major partnering groups: the Community Advisory Board (CAB) and Tribal Advisory Council. Systematic engagement with these groups, other key stakeholder organizations, and UNMCCC leadership led to identification of the following priority areas: 1) the fundamental burden of cancer health disparities, 2) enhancing access to cancer care, including receipt of timely screening and treatment, 3) reducing financial hardship associated with the continuum of cancer care, 4) survivorship needs, and 5) examining links between environmental exposures and cancer risk/incidence. The COE is led by Andrew Sussman, PhD, MCRP (CCPS), with COE representation on the UNMCCC Protocol Monitoring Review Committee (Miria Kano, PhD (CCPS)), a Senior Program Manager, and four community outreach specialists possessing unique cultural and linguistic concordance to engage American Indian, Hispanic, and underserved communities. COE major roles and impact include integration of innovative cancer surveillance registries and data sources to facilitate catchment area monitoring and priority area assessment; catalyzing impactful, culturally appropriate, and rigorous cancer control and care delivery research in all priority areas both within and beyond the catchment area; dissemination of comprehensive statewide cancer control education, training strategies, and policy impacting recommendations; and engagement with UNMCCC clinical trial components leading to high proportions of underrepresented minority accruals in research aligned with catchment area priorities.

摘要/摘要-社区外展和参与 社区外联和参与办公室(COE)是两国之间的关键双向接口 新墨西哥大学综合癌症中心的所有组成部分和丰富多彩的挂毯 社区卫生系统合作伙伴、主权部落国家、西班牙裔/拉丁裔人口、癌症社区 倡导者和患者支持组织。COE促进了克服癌症健康差距的努力 在我们的集水区，新墨西哥州(新墨西哥州)作为接触和沟通的协调中心 联东综合团和我们的集水区社区之间的合作。我们集水区的主要特点 包括其多样化的多种族、多文化和农村人口构成，主要是西班牙裔和美国人 印第安人和非西班牙裔白人；持续的社会经济挑战，包括深度贫困和粮食不安全； 以及获得医疗保健方面的挑战。今天的COE于2018年正式确定，与之协调并在此基础上发展 中非特派团现有的癌症监测和社区参与的举措。在此背景下，COE建议 以下是具体目标：1)确定集水区的定义和特征；2)确定癌症相关需求的优先次序 通过与所有利益攸关方的接触和沟通，3)促进癌症研究，以及4)传播， 实施和评估多层次的癌症控制策略，以减少癌症负担 集水区。为了实现这些目标，COE召集了两个主要的合作小组：社区 咨询委员会(CAB)和部落咨询委员会。与这些团体的系统接触，其他关键 利益攸关方组织和联东综合团的领导导致确定以下优先领域：1) 癌症健康差距的基本负担，2)加强获得癌症护理的机会，包括及时获得 筛查和治疗，3)减少与癌症连续护理相关的经济困难，4) 生存需要，以及5)检查环境暴露与癌症风险/发病率之间的联系。这个 COE由Andrew Sussman，PhD，MCRP(CCPS)领导，COE代表联合国特派团CCC议定书 监测审查委员会(Miria Kano，博士(CCPS))，一名高级项目经理和四个社区 拥有独特的文化和语言一致性的外展专家，以吸引美国印第安人，西班牙裔， 和服务不足的社区。COE的主要作用和影响包括整合创新的癌症监测 促进集水区监测和优先地区评估的登记册和数据来源；催化 在所有优先领域进行有影响力的、符合文化的、严格的癌症控制和护理提供研究 在集水区内外；在全州范围内传播全面的癌症控制教育， 培训战略和影响政策的建议；参与联合国儿童基金会临床试验 导致研究中未得到充分代表的少数群体应计利润比例较高的组成部分 集水区优先事项。