TOPIC 424 - MYH 2.0: A DIGITAL EXPERIENCE TO IMPROVE SURVIVORSHIP AMONG AYA CANCER SURVIVORS

主题 424 - MYH 2.0：提高 AYA 癌症幸存者生存率的数字体验

• 批准号: 10498205
• 负责人: JEFFERY MCLAUGHLIN
• 金额: $ 25.18万
• 依托单位: RADIANT CREATIVE GROUP, LLC
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-09-16 至 2022-06-15
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10498205
• 关键词: Address; Adherence; Adolescent and Young Adult; Adult; Advocacy; Cancer Institute of New Jersey; Cancer Survivor; Caring; Communication; Development; Educational workshop; Health; Health Priorities; Health Status; Healthcare; Intervention; Knowledge; Late Effects; Minority; Outcome; Parents; Population; Provider; Readiness; Research; Risk; Sampling; Self Efficacy; Self Management; Survivors; System; base; cancer therapy; childhood cancer survivor; cohort; design; digital health; experience; follow-up; health care service utilization; improved; informant; next generation; peer coaching; programs; prototype; recruit; skills; survivorship; system architecture; treatment effect; usability

Adolescent and Young Adult (AYA) cancer survivors are expected to assume primary responsibility for their healthcare when they reach adulthood. However, only a minority (<18%) of adult childhood cancer survivors obtain risk-based follow-up care. Transition readiness is a critical precursor to adult self-management of care, and adult self-management improves health status and reduces healthcare utilization. A growing body of research in other populations has generally shown positive associations between transition readiness and adherence to adult care and better health outcomes. While there is strong evidence demonstrating that the transition to adult-oriented healthcare is critical, there are few formal transition programs available, and no theoretically driven survivor-focused interventions. In this project, we will adapt and extend a prototype digital health intervention, Managing Your Health (MYH), that features guided peer mentor interaction with tailored expert content that addresses survivor-related barriers to transition readiness including inadequate knowledge of cancer treatment and late effect risks, lack of self-management skills, low self-efficacy for managing care, concern about impersonal relationships with adult providers, poor communication with parents and providers, and lower perceived priority of health compared with competing developmental pursuits. Informed by a cohort of key stakeholders and representative users, we will develop the next generation of the intervention of MYH and evaluate it for usability and feasibility among a sample of pediatric cancer survivors.

青少年和青壮年(Aya)癌症幸存者应该在成年后对自己的医疗保健承担主要责任。然而，只有一小部分(18%)成年儿童癌症幸存者获得了基于风险的后续护理。过渡准备是成人自我护理管理的关键先兆，成人自我管理可改善健康状况并降低医疗保健利用率。在其他人群中越来越多的研究普遍表明，过渡准备与坚持成人护理和更好的健康结果之间存在正相关。虽然有强有力的证据表明，向以成人为导向的医疗保健过渡至关重要，但几乎没有可用的正式过渡计划，也没有理论上驱动的以幸存者为重点的干预措施。在这个项目中，我们将调整和扩展一个原型数字健康干预，管理您的健康(MYH)，以指导同行导师互动与量身定制的专家内容，解决与幸存者相关的过渡准备障碍，包括对癌症治疗和后遗症风险的知识不足，缺乏自我管理技能，管理护理的自我效能低，对与成人提供者的客观关系的担忧，与父母和提供者的沟通不畅，以及与相互竞争的发展追求相比，认为健康优先。在一群关键的利益相关者和有代表性的用户的帮助下，我们将开发MYH的下一代干预措施，并评估其在儿科癌症幸存者样本中的可用性和可行性。