BCI-DEF: Brain Computer Interfaces and Disability: Developing an Inclusive Ethical Framework

BCI-DEF：脑机接口与残疾：制定包容性的道德框架

• 批准号: 10508135
• 负责人: KAREN G HIRSCH
• 金额: $ 42.5万
• 依托单位: STANFORD UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-07-08 至 2026-05-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10508135
• 关键词: Acute; Acute Brain Injuries; Address; Affect; Area; Attitude; BRAIN initiative; Benefits and Risks; Brain; Brain Diseases; Brain Injuries; Caregivers; Chronic Care; Collaborations; Communication; Communication Disability; Critical Care; Data; Decision Making; Development; Devices; Disabled Persons; Engineering; Ensure; Ethical Issues; Ethicists; Ethics; Family; Family Caregiver; Family member; Funding; Funding Opportunities; Future; Healthcare; Hemorrhage; Human; Intervention; Interview; Justice; Measures; Methodology; Motor; Movement; Nervous System Trauma; Neurologic; Neurologic Deficit; Neurologist; Neurosciences Research; Neurosurgeon; Outcome; Participant; Pathway interactions; Patient Care; Patients; Perception; Personhood; Physicians; Policies; Privacy; Prognosis; Quality of life; Recommendation; Research; Research Personnel; Safety; Science; Series; Signal Transduction; Stroke; Structure; Subacute Care; Technology; Translations; Traumatic Brain Injury; Work; acute care; brain computer interface; clinical decision-making; clinical practice; deliberative democracy; design; disability; disability impact; experience; innovation; neuroregulation; neurotechnology; novel; physically handicapped; post stroke; recruit; relating to nervous system; social stigma; stakeholder perspectives; tool; usability

Project Summary/Abstract The objective of “Brain Computer Interfaces and Disability: Developing an Inclusive Ethical Framework (BCI- DEF)” is to use structured vignettes, video-supported interviews, and a deliberative democracy approach to assess and analyze diverse, critical stakeholder perspectives about the benefits, risks, and ethical challenges of Brain Computer Interface (BCI) technology. BCIs measure and interpret brain signals and interface with a device to allow users to perform a task, such as communication or movement. BCIs hold great promise, especially for end users with disability due to neurologic deficits in communication or motor function, but this potential may be limited by unaddressed ethical challenges. Issues of concern include stigma, autonomy, privacy, safety, impacts to personhood, responsibility and justice. Through the innovative approach in this project, we will focus on input from a primary group of potential end users (patients with neurologic disability and their family/caregivers) and clinicians who care for patients with acute neurologic injury to obtain critical and heretofore absent information about important focus areas related to ethics of BCI. The inclusion of additional key stakeholders including BCI engineers and research teams will further inform the deliberative democracy approach. Issues we will further investigate through this project include weighing the potential benefits and risks of BCI; evaluating ethical challenges surrounding BCI and disability including those around autonomy, stigma, and justice; impact of BCI on perceptions of disability and clinical decision making in acute brain injury; and defining critical information needed by end users, families, and clinicians to make future informed decisions about BCI use. This work is critical to ensure seamless, equitable, and ethical adaptation of innovative and cutting edge BCI technologies being developed through BRAIN Initiative projects.

项目总结/文摘