RAPHAEL - Integrating a Palliative Care Approach for Patients with Heart Failure

RAPHAEL - 为心力衰竭患者整合姑息治疗方法

• 批准号: 10112701
• 金额: $ 100.29万
• 依托单位: UNIVERSITY COLLEGE LONDON
• 依托单位国家: 英国
• 项目类别: EU-Funded
• 财政年份: 2024
• 资助国家: 英国
• 起止时间: 2024 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=10112701
• 关键词: RAPHAEL; Integrating; Palliative; Care; Approach

While the need for integrating palliative care (PC) services into heart failure (HF) care has been well recognised, as of yet this integrationlacks behind, especially when compared to cancer care. Currently, only 5-7% of patients with HF utilise PC services, due to a focus onoptimising therapy and an unpredictable disease trajectory with exacerbations which hampers prognosis. As a result, many symptomsand concerns that are not directly related to HF are not recognised and undertreated and patients are often referred to PC services only atthe very end of their lives. The RAPHAEL consortium sets out to take the next big step in integrating PC into HF care by integrating theRAPHAEL palliative care approach in existing HF care pathways. This flexible and patient centred approach starts with the identificationof multidimensional symptoms and concerns, prioritise needs with patient and informal carer and formulate a proactive care plan. Thesymptoms and concerns will be monitored by the patient at home using the PAL@HEART application. The app can be used to evaluateinterventions, support communication and earl identify new or increasing needs. As a result, the care needs of each individual patient withHF are addressed faster and better, improving their quality of life and autonomy. Moreover, this will lead to a reduction in emergencyhospitalisations, unburdening the healthcare system and reducing costs. The RAPHAEL project sets out to adapt the RAPHAEL approachto HF care within a European context and test and validate its (cost-)effectiveness via a feasibility and large-scale evaluation studyperformed in 7 EU countries, the UK and Switzerland. It brings together experts in palliative care, cardiology, and primary care as wellas professional organisations and patient representatives. Together the RAPHAEL consortium is uniquely situated to demonstrate the(cost-)effectiveness of the RAPAHEL approach and launch its implementation in Europe and beyond.

虽然将姑息治疗（PC）服务整合到心力衰竭（HF）护理中的必要性已得到充分认识，但到目前为止，这种整合仍然落后，特别是与癌症护理相比。目前，只有5-7%的HF患者使用PC服务，这是因为专注于优化治疗和不可预测的疾病轨迹，加重会阻碍预后。因此，许多与HF没有直接关系的疾病和问题没有得到识别和治疗，患者通常只在生命的最后阶段才被转介到PC服务。RAPHAEL联盟通过将RAPHAEL姑息治疗方法整合到现有的HF护理途径中，在将PC整合到HF护理中方面迈出了下一大步。这种灵活和以患者为中心的方法从识别多维症状和问题开始，优先考虑患者和非正式护理人员的需求，并制定积极的护理计划。患者将在家中使用PAL@HEART应用程序监测症状和问题。该应用程序可用于评估干预措施，支持沟通，并帮助确定新的或不断增加的需求。因此，每个HF患者的护理需求都得到了更快、更好的解决，提高了他们的生活质量和自主性。此外，这将导致减少紧急住院，减轻医疗保健系统的负担并降低成本。RAPHAEL项目旨在使RAPHAEL方法适应欧洲范围内的HF护理，并通过在7个欧盟国家、英国和瑞士进行的可行性和大规模评估研究来测试和验证其（成本）有效性。它汇集了姑息治疗，心脏病学和初级保健以及专业组织和患者代表的专家。RAPHAEL联合体在展示RAPHAEL方法的（成本）效益并在欧洲及其他地区启动其实施方面具有独特的地位。