Ethical, Social and Regulatory Issues in Advanced Prenatal Testing

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This project aims to investigate the social, ethical and regulatory issues arising with the rapid advancement and increased use of genomic non-invasive prenatal testing in early pregnancy in Australia. It expects to generate new insight into key issues such as consumer information before and after testing, consent, and equitable access to genomic health technologies in human reproduction. Expected outcomes include recommendations for addressing these issues, supported by ground-breaking social research and ethical and regulatory analysis. The project is expected to have major benefits, addressing the gap between policy and practice that has emerged in prenatal testing in Australia and shaping the ethics and regulation of pregnancy care.