Ethical, Social and Regulatory Issues in Advanced Prenatal Testing

高级产前检测中的伦理、社会和监管问题

• 批准号: LP190100841
• 负责人: Prof Catherine Mills
• 金额: $ 33.69万
• 依托单位: Monash University
• 依托单位国家: 澳大利亚
• 项目类别: Linkage Projects
• 财政年份: 2021
• 资助国家: 澳大利亚
• 起止时间: 2021-04-11 至 2024-12-23
• 项目状态: 已结题
• 来源: https://dataportal.arc.gov.au/RGS/Web/Grants/LP190100841
• 关键词: Ethical; Social; Regulatory; Issues; Advanced

This project aims to investigate the social, ethical and regulatory issues arising with the rapid advancement and increased use of genomic non-invasive prenatal testing in early pregnancy in Australia. It expects to generate new insight into key issues such as consumer information before and after testing, consent, and equitable access to genomic health technologies in human reproduction. Expected outcomes include recommendations for addressing these issues, supported by ground-breaking social research and ethical and regulatory analysis. The project is expected to have major benefits, addressing the gap between policy and practice that has emerged in prenatal testing in Australia and shaping the ethics and regulation of pregnancy care.

该项目旨在调查随着基因组非侵入性产前检测在澳大利亚的快速发展和越来越多的使用而产生的社会、伦理和监管问题。它预计将对关键问题产生新的见解，如检测前后的消费者信息、同意以及在人类生殖过程中公平获得基因组健康技术。预期成果包括解决这些问题的建议，并得到开创性的社会研究以及伦理和监管分析的支持。该项目预计将带来重大好处，解决澳大利亚产前检测中出现的政策与实践之间的差距，并塑造怀孕护理的道德和监管。